Volume 66, Issue 2 pp. 138-139
EDITORIAL
Free Access

Beyond the game: Promoting sports in young people with disabilities

First published: 13 November 2023
Citations: 1

The Latin term ‘agito’ means ‘to move, to put in motion’. In 2004, the International Paralympic Committee launched a logo known as Agitos. The three elements of red, blue, and green rotate around a central point symbolizing motion reflecting the paralympic motto, ‘Spirit in motion’, and the perseverance of each athlete. With excitement and anticipation of the Paris 2024 Olympics and Paralympics, what better time than now to reflect on motion in young people with disabilities?

The World Health Organization's International Classification of Functioning, Disability and Health framework emphasizes the roles of activities and participation in one's health. Engaging in physical activities (or bodily motion that requires energy expenditure), including sports and active recreational activities, has well-known physical, emotional, and social benefits. Outcomes of aerobic and muscle-strengthening physical activity include improved cardiovascular health, muscular endurance, flexibility, coordination, and bone density.1 Sedentary behavior has been linked with a wide range of adverse consequences, including overweight and obesity, musculoskeletal disorders, and increased risk of cancer and metabolic disorders.1, 2 Improvements in emotional and social functioning are additional outcomes, often overlooked, of participation in sports and recreational activities. Young people with disabilities involved in sports demonstrate increased self-confidence, personal growth, and overall quality of life and decreased depressive symptoms. Participation promotes development of new friendships, teamwork and leadership skills, and a sense of belonging.1, 2 Moreover, routine exposure to sports and recreational activities from a young age leads to a lifelong relationship with physical fitness and healthy behaviors that is particularly crucial for young people with disabilities.

Despite known benefits, young people with disabilities are less likely to participate in sports and recreational activities than peers without disabilities.1, 3 These young people face barriers to participation at the individual, environmental, and societal levels that supersede functional limitations.2 Young people may lose confidence in their ability to be physically active, particularly when sports are more competitive, and are more likely to be bullied than athletes without disabilities.4, 5 Parents may perceive participation as too risky and coaches may lack training as to how to safely adapt activities to the child's functional levels. Adaptive sports and recreational activities provide an opportunity for young people to play and compete; however, programs may not be readily available near the child's home and the options offered may be limited or not align with the young person's interests. Transportation, equipment, and the costs associated with modifications may also serve as barriers. While international programs such as the Paralympics and Special Olympics promote sports and recreational activities in individuals with disabilities, societal barriers remain, including implicit biases favoring competition over fun and inclusion, low performance expectations, stigmatization, and lack of policies and infrastructure to develop and maintain equity, as well as high-quality and safe sports opportunities.2, 5

As healthcare professionals and advocates, we promote this ‘Spirit in motion’ by setting expectations for participation and routinely assessing activity levels, addressing perceived risks, and providing education to young people, families, coaches, and policy-makers. Motivational interviewing may help address individual and familial barriers and facilitate decision-making processes and behavioral change. It is critical that parents are involved and buy into the benefits of physical activity, introducing sports throughout the child's development, and providing encouragement, emotional support, and the resources needed for participation. Moreover, creating environments that foster inclusion and equity among peers with and without disabilities may increase self-efficacy, confidence, and enjoyment in all young people.

All individuals can derive benefits from participation in sports and recreational activities. Sports are much more than competition and a winning score. Physical fitness may be gained from the training regimen, but the psychological and social rewards are gained throughout the process, from challenging oneself and learning new skills, to working with and supporting others, as well as overcoming setbacks and defeat. Athletes inspire and motivate regardless of their abilities. Sports and recreational activities provide young people with disabilities opportunities to unite with others, foster positive self-identities, challenge societal attitudes and misconceptions about disability, and most importantly, to have fun.

To all the athletes participating in the 2024 Paralympic Games, Bonne Chance!

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DATA AVAILABILITY STATEMENT

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In this issue

My Editor’s Choice is a narrative review on narrative medicine by Lis Guthrie and Rita Charon, who originated the field, explaining how it can improve the lives of children with developmental disability, their family, and society as a whole. Another narrative review clarifies how we can best use health-related quality of life constructs. A scoping review of neurodevelopmental follow-up care for children with congenital heart disease stresses the need to prioritize defining components of effective care globally. A follow-up study of children with Guillain-Barré syndrome found that 67% of them have late-onset, often minor but life-altering sequelae. A study documents that teenagers with Duchenne muscular dystrophy can survive for over 20 years (median 14 years) after scoliosis surgery. Two studies explored the experience of parents with a developmental and epileptic encephalopathy; one found that the main problem many parents face is the lack of knowledge among professionals at the emergency department, the other that they report high needs for looking after themselves. Two studies used machine learning; one demonstrating early clinical validation of a stereoelectroencephalography-based lesion detection algorithm to optimize surgical strategy for children with drug-resistant epilepsy; the other validating the reduced version of the GMFM-66 to detect clinically relevant gross motor function changes in children with cerebral palsy (CP). The invited commentary on these papers suggests a model card for new submissions involving artificial intelligence. A randomized controlled trial found benefits of an intensive mobility training programme on gross motor development in 2- to 3-year-old children with CP. A Japanese study found that the Whitney Comorbidity Index is associated with 2-year mortality in adults with CP also in Japan, and further suggested that aspiration pneumonia and pressure ulcers should additionally be taken into account. Surveillance of CP in Europe (SCPE) proposes a classification of post-neonatal events contributing to CP, including infections, head injury, surgery or medical interventions, cerebrovascular accidents, and other hypoxic events. Finally, a study addressed what parents of a child with CP think is the cause, and how they experience this emotionally.

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