Volume 26, Issue 23-24 pp. 4325-4334
Original Article

Barriers and enablers to adherence to anticoagulation in heart failure with atrial fibrillation: patient and provider perspectives

Caleb Ferguson RN, PhD

Corresponding Author

Caleb Ferguson RN, PhD

UTS Chancellor's Postdoctoral Research Fellow

Centre for Cardiovascular & Chronic Care, University of Technology Sydney, Sydney, Australia

Correspondence: Dr. Caleb Ferguson, UTS Chancellors Postdoctoral Research Fellow, Centre for Cardiovascular & Chronic Care, University of Technology Sydney, PO Box 123, Ultimo, Sydney, NSW, 2007, Australia. Telephone: +61 2 9514 3545.

Email:[email protected]

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Sally C. Inglis RN, PhD

Sally C. Inglis RN, PhD

Associate Professor

Centre for Cardiovascular and Chronic Care, Faculty of Health, University of Technology Sydney, Sydney, Australia

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Phillip J. Newton RN, PhD

Phillip J. Newton RN, PhD

Associate Professor

Centre for Cardiovascular and Chronic Care, Faculty of Health, University of Technology Sydney, Sydney, Australia

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Sandy Middleton RN, PhD

Sandy Middleton RN, PhD

Professor of Nursing Research & Director of Nursing Research Institute

St Vincent's Health Australia (Sydney) & Australian Catholic University, North Sydney, NSW, Australia

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Peter S. Macdonald MBBS, PhD, MD

Peter S. Macdonald MBBS, PhD, MD

Medical Director

Heart Transplant Program, St Vincent's Hospital, Sydney and Victor Chang Cardiac Research Institute, Darlinghurst, NSW, Australia

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Patricia M. Davidson RN, PhD

Patricia M. Davidson RN, PhD

Professor and Dean, Professor of Cardiovascular Nursing

Centre for Cardiovascular and Chronic Care, Faculty of Health, University of Technology Sydney, Sydney, Australia

School of Nursing, Johns Hopkins University, Baltimore, MD, USA

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First published: 08 February 2017
Citations: 32

Abstract

Aims & Objectives

The purpose of this study was to elucidate the barriers and enablers to adherence to anticoagulation in individuals with chronic heart failure (CHF) with concomitant atrial fibrillation (AF) from the perspective of patients and providers.

Background

CHF and AF commonly coexist and are associated with increased stroke risk and mortality. Oral anticoagulation significantly reduces stroke risk and improves outcomes. Yet, in approximately 30% of cases, anticoagulation is not commenced for a variety of reasons.

Design

Qualitative study using narrative inquiry.

Methods

Data from face-to-face individual interviews with patients and information retrieved from healthcare file note review documented the clinician perspective. This study is a synthesis of the two data sources, obtained during patient clinical assessments as part of the Atrial Fibrillation And Stroke Thromboprophylaxis in hEart failuRe (AFASTER) Study.

Results

Patient choice and preference were important factors in anticoagulation decisions, including treatment burden, unfavourable or intolerable side effects and patient refusal. Financial barriers included cost of travel, medication cost and reimbursement. Psychological factors included psychiatric illness, cognitive impairment and depression. Social barriers included homelessness and the absence of a caregiver or lack of caregiver assistance. Clinician reticence included fear of falls, frailty, age, fear of bleeding and the challenges of multimorbidity. Facilitators to successful prescription and adherence were caregiver support, reminders and routine, self-testing and the use of technology.

Conclusions

Many barriers remain to high-risk individuals being prescribed anticoagulation for stroke prevention. There are a number of enabling factors that facilitate prescription and optimise treatment adherence. Nurses should challenge these treatment barriers and seek enabling factors to optimise therapy.

Relevance to clinical practice

Nurses can help patients and caregivers to understand complex anticoagulant risk-benefit information, and act as a patient advocate when making complex stroke prevention decisions.

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