Avoiding piecemeal research on participation in cervical cancer screening: the advantages of a social identity framework
Candice Tribe DPsych
School of Psychology, Deakin University, Melbourne, Vic., Australia
Search for more papers by this authorJanine Webb PhD
School of Psychology, Deakin University, Melbourne, Vic., Australia
Search for more papers by this authorCandice Tribe DPsych
School of Psychology, Deakin University, Melbourne, Vic., Australia
Search for more papers by this authorJanine Webb PhD
School of Psychology, Deakin University, Melbourne, Vic., Australia
Search for more papers by this authorThis line of reasoning also seems consistent with some research in the field of social justice that emphasises the importance of social identity processes to people’s perceptions of justice 109–112.
Abstract
Background Cervical cancer screening research has predominantly focused on one type of participation, namely compliance with medical recommendations, and has largely ignored other types of participation. While there is some research that has taken a different approach, findings in this research area are not well integrated under a theoretical framework.
Objective The aim of this study is to show how consideration of a broader definition of participation and better integration of the theoretical conceptualization of participation in cervical cancer screening are both possible and desirable to enable a better understanding of women’s experiences of cervical cancer screening specifically and to improve women’s health generally.
Main Conclusion It is suggested that alternative types of participation in cervical cancer screening warrant further investigation and that a social identity theoretical approach offers one way of integrating such conceptualizations of participation. The paper also argues for more explicit consideration of the role of social processes and of the variables, such as power, social identity and relational justice, which are involved in participation in cervical cancer screening.
References
- 1CampbellC , JovchelovitchS . Health, community and development: towards a social psychology of participation . Journal of Community and Applied Social Psychology , 2000 ; 10 : 255 – 270 .
- 2FondacaroM , FrognerB , MoosR . Justice in healthcare decision-making: patient’s appraisals of health care providers and health plan representatives . Social Justice Research , 2005 ; 18 : 63 – 81 .
- 3StreetRL . “Active patients as powerful communicators” . In : WP Robinson , H Giles ( eds ) The New Handbook of Language and Social Psychology . Chichester : John Wiley & Sons , 2001 : 541 – 560 .
- 4CahillJ . Patient participation – a review of the literature . Journal of Clinical Nursing , 1998 ; 7 : 119 – 128 .
- 5CahillJ . Patient participation: a concept analysis . Journal of Advanced Nursing , 1996 ; 24 : 561 – 571 .
- 6SahlstenMJM , LarssonIE , SjostromB , PlosKAE . An analysis of the concept of patient participation . Nursing Forum , 2008 ; 43 : 2 – 11 .
- 7BorrayoEA , ThomasJJ , LawsinC . Cervical cancer screening among Latinas: the importance of referral and participation in parallel cancer screening behaviors . Women and Health , 2004 ; 39 : 13 – 30 .
- 8EardleyA , ElkindAK , SpencerB , HobbsP , PendletonLL , HaranD . Attendance for cervical screening – whose problem?Social Science and Medicine , 1985 ; 20 : 955 – 962 .
- 9EiserJR , ColeN . Participation in cervical screening as a function of perceived risk, barriers, and need for cognitive closure . Journal of Health Psychology , 2002 ; 7 : 99 – 105 .
- 10HeywoodA , FirmanD , RingI . Factors associated with Pap smear taking in general practice: focusing on public health initiatives . Australian and New Zealand Journal of Public Health , 1996 ; 20 : 260 – 266 .
- 11GorinSS , HeckJE . Cancer screening among Latino subgroups in the United States . Preventative Medicine , 2005 ; 40 : 515 – 526 .
- 12MandelblattJS , GoldK , O’MalleyAS et al. Breast and cervix cancer screening among multiethnic women: role of age, health and source of care . Preventative Medicine , 1999 ; 28 : 418 – 425 .
- 13CheekJ , FullerJ , GilchristS , MaddockA , BallantyneA . Vietnamese women and pap smears: issues in promotion . Australian and New Zealand Journal of Public Health , 1999 ; 23 : 72 – 76 .
- 14GuptaA , KumarA , StewartDECervical cancer screening among South Asian women in Canada: the role of education and acculturation . Health Care for Women International , 2002 ; 23 : 123 – 135 .
- 15CoughlinSS , LeadbetterS , RichardsT , SabatinoSA . Contextual analysis of breast and cervical cancer screening and factors associated with health care access among United States women, 2002 . Social Science and Medicine , 2008 ; 66 : 260 – 275 .
- 16JuonHS , Seung-LeeC , KlassenAC . Predictors of regular Pap smears among Korean-American women . Preventive Medicine , 2003 ; 37 : 585 – 592 .
- 17RodriguezMA , WardLM , Perez-StableEJ . Breast and cervical cancer screening: impact of health insurance status, ethnicity and nativity of Latinas . Annals of Family Medicine , 2005 ; 3 : 235 – 241 .
- 18HislopGT , TheC , LaiA , RalstonJD , ShuJ , TaylorVM . Pap screening and knowledge of risk factors for cervical cancer in Chinese women in British Columbia, Canada . Ethnicity and Health , 2004 ; 9 : 267 – 281 .
- 19SabatesR , FeinsteinL . The role of education in the uptake of preventative health care: the case of cervical screening in Britain . Social Science and Medicine , 2006 ; 62 : 2998 – 3010 .
- 20TaylorVM , SchwartzSM , YasuiY et al. Pap testing among Vietnamese women: health care system and physician factors . Journal of Community Health , 2004 ; 29 : 437 – 450 .
- 21SavageSA , ClarkeVA . Factors associated with breast and cervical cancer screening behaviours . Health Education , 2001 ; 101 : 176 – 186 .
10.1108/09654280110398761 Google Scholar
- 22ChiltonJA , GorBJ , HajekRA , JonesLA . Cervical cancer among Vietnamese women: efforts to define the problem among Houston’s population . Gynecologic Oncology , 2005 ; 99 : S203 – S206 .
- 23ChingangLC , BischofU , Andall-BreretonG , RazumO . ‘Have a pap smear!’– doctors, their clients, and opportunistic cervical cancer screening . International Journal of STD and AIDS , 2005 ; 16 : 233 – 236 .
- 24FernbachM . The impact of a media campaign on cervical cancer screening knowledge and self-efficacy . Journal of Health Psychology , 2002 ; 7 : 85 – 97 .
- 25KahnJ , ChiouV , AllenJD , GoodmanE , PerlmanSE , EmansSJ . Beliefs about Papanicolaou smears and compliance with Papanicolaou smear follow-up in adolescents . Archives of Pediatrics and Adolescent Medicine , 1999 ; 153 : 1046 – 1054 .
- 26KowalskiRM , BrownKJ . Psychosocial barriers to cervical cancer screening: concerns with self presentation and social evaluation . Journal of Applied Social Psychology , 1994 ; 24 : 941 – 958 .
- 27McMullinJM , De AlbaI , ChavezLR , HubbellFA . Influence of beliefs about cervical cancer etiology on Pap smear use among Latina immigrants . Ethnicity and Health , 2005 ; 10 : 3 – 18 .
- 28OrbellS , CrombieI , RobertsonA , JohnstonG , KenicerM . Assessing the effectiveness of a screening campaign: who is missed by 80% cervical screening coverage?Journal of the Royal Society of Medicine , 1995 ; 88 : 389 – 394 .
- 29WeeCC , PhillipsRS , McCarthyEP . BMI and cervical cancer screening among white, African-American, and Hispanic women in the United States . Obesity Research , 2005 ; 13 : 1275 – 1280 .
- 30YiJK . Acculturation and Pap smear screening practices among college-aged Vietnamese women in the United States . Cancer Nursing , 1998 ; 21 : 335 – 341 .
- 31AustinLT , AhmadF , McNallyM , StewartDE . Breast and cervical cancer screening in Hispanic women: a literature review using the health belief model . Women’s Health Issues , 2002 ; 12 : 122 – 128 .
- 32HillD , GardnerG , RassabyJ . Factors predisposing women to take precautions against breast and cervix cancer . Journal of Applied Social Psychology , 1985 ; 15 : 59 – 79 .
- 33ByrdTL , PetersonSK , ChavezR , HeckertA . Cervical cancer beliefs among young Hispanic women . Preventive Medicine , 2004 ; 38 : 192 – 197 .
- 34Jennings-DozierK . Predicting intentions to obtain a Pap smear among African American and Latina women: testing the theory of planned behaviour . Nursing Research , 1999 ; 48 : 198 – 205 .
- 35MichieS , ThompsonM , HankinsM . To be reassured or to understand? A dilemma in communicating normal cervical screening results . British Journal of Health Psychology , 2004 ; 9 : 113 – 123 .
- 36OrbellS . Cognition and affect after cervical screening: the role of previous test outcome and personal obligation in future uptake expectations . Social Science and Medicine , 1996 ; 43 : 1237 – 1243 .
- 37SheeranP , OrbellS . Using implementation intentions to increase attendance for cervical cancer screening . Health Psychology , 2000 ; 19 : 283 – 289 .
- 38GoldmanRE , RisicaPM . Perceptions of breast and cervical cancer risk and screening among Dominicans and Puerto Ricans in Rhode Island . Ethnicity and Disease , 2004 ; 14 : 32 – 42 .
- 39HolroydE , TwinnSF , ShiaATY . Chinese women’s experiences and images of the Pap smear examination . Cancer Nursing , 2001 ; 24 : 68 – 75 .
- 40MarkovicM , KesicV , TopicL , MatejicB . Barriers to cervical cancer screening: a qualitative study with women in Serbia . Social Science and Medicine , 2005 ; 61 : 2528 – 2535 .
- 41TwinnS , ChengF . Increasing uptake rates of cervical cancer screening amongst Hong Kong Chinese women: the role of the practitioner . Journal of Advanced Nursing , 2000 ; 32 : 335 – 342 .
- 42van TilL , MacQuarrieC , HerbertR . Understanding the barriers to cervical cancer screening among older women . Qualitative Health Research , 2003 ; 3 : 1116 – 1131 .
- 43HarrisMA , BylesJE , MishraGD , BrownWJ . Screening for cervical cancer: health care, isolation and social support . Health Promotion Journal of Australia , 1998 ; 8 : 167 – 172 .
- 44SiahpushM , SinghGK . Sociodemographic predictors of Pap test receipt, currency and knowledge among Australian women . Preventative Medicine , 2002 ; 35 : 362 – 368 .
- 45SeowA , HuangJ , StraughanPT . Effects of social support, regular physician and health-related attitudes on cervical cancer screening in an Asian population . Cancer Causes and Control , 2000 ; 11 : 223 – 230 .
- 46BinnsPL , CondonJR . Participation in cervical cancer screening by indigenous women in the Northern Territory: a longitudinal study . The Medical Journal of Australia , 2006 ; 186 : 490 – 494 .
- 47AgurtoI , ArrossiS , WhiteS et al. Involving the community in cervical cancer prevention programs . International Journal of Gynecology and Obstetrics , 2005 ; 89 : S38 – S45 .
- 48HancockL , Sanson-FisherR , PerkinsJ , CorkreyR , BurtonR , ReidS . Effect of a community action intervention on cervical cancer screening rates in rural Australian towns: the CART project . Preventive Medicine , 2001 ; 32 : 109 – 117 .
- 49SmithA , ChristopherS , McCormickAKHG . Development and implementation of a culturally sensitive cervical health survey: a community-based participatory approach . Women and Health , 2004 ; 40 : 67 – 86 .
- 50FylanF . Screening for cervical cancer: a review of women’s attitudes, knowledge and behavior . British Journal of General Practice , 1998 ; 48 : 1509 – 1514 .
- 51IdestromM , MilsomI , Andersson-EllstromA . Knowledge and attitudes about the pap-smear screening program: a population-based study of women aged 20–59 year . Acta Obstetricia et Gynecologia Scandinavia , 2002 ; 81 : 962 – 967 .
- 52OrbellS , SheeranP . Health psychology and the uptake of preventive health services: a review of thirty years’ research on cervical cancer screening . Psychology and Health , 1993 ; 8 : 417 – 433 .
- 53BishA , SuttonS , GolombokS . Predicting uptake of a routine cervical smear test: a comparison of the health belief model and the theory of planned behaviour . Psychology and Health , 2000 ; 15 : 35 – 50 .
- 54EakerS , AdamiH , SparenP . Reasons women do not attend screening for cervical cancer: a population-based study in Sweden . Preventative Medicine , 2001 ; 32 : 482 – 491 .
- 55GuilfolyleS , FrancoR , Sheinfeld GorinS . Exploring older women’s approaches to cervical cancer screening . Health Care for Women International , 2007 ; 28 : 930 – 950 .
- 56MiedemaB , TatemichiS . Breast and cervical cancer screening for women between 50 and 69 years of age: what prompts women to screen?Women’s Health Issues , 2003 ; 13 : 180 – 184 .
- 57NeilsonA , JonesK . Women’s lay knowledge of cervical cancer/cervical screening: accounting for non-adherence at cervical screening clinics . Journal of Advanced Nursing , 1998 ; 28 : 571 .
- 58OscarssonMG , WijmaBE , BenzeinEG . Nonattendance in a cervical cancer screening program – what happens if women’s requirements are met?Health Care for Women International , 2008 ; 29 : 183 – 197 .
- 59EngelGL . The need for a new medical model: a challenge for biomedicine . Science , 1977 ; 196 : 129 – 136 .
- 60BushJ . “It’s just part of being a woman”: cervical screening, the body and femininity . Social Science and Medicine , 2000 ; 50 : 429 – 444 .
- 61ForssA , TishelmanC , WidmarkC , LundgrenE , SachsL , TornbergS . ‘I got a letter…’ A Qualitative study of women’s reasoning about attendance in a cervical cancer screening program in urban Sweden . Psycho-oncology , 2001 ; 10 : 76 – 87 .
10.1002/1099-1611(200101/02)10:1<76::AID-PON496>3.0.CO;2-P CAS PubMed Web of Science® Google Scholar
- 62HowsonA . Cervical screening, compliance and moral obligation . Sociology of Health and Illness , 1999 ; 21 : 401 – 425 .
- 63LovellS , KearnsRA , FriesenW . Sociocultural barriers to cervical screening in South Auckland, New Zealand . Social Science and Medicine , 2007 ; 65 : 138 – 150 .
- 64FoucaultM . Discipline and punish: the birth of the prison, trans . Alan Sheridan . New York : Random House , 1978 .
- 65GregoryS , McKieL . The smear test: women’s views . Nursing Standard , 1991 ; 5 : 32 – 36 .
- 66ArmstrongN . Discourse and the individual in cervical cancer screening . Health: An interdisciplinary Journal for the Social Study of Health, Illness and Medicine , 2007 ; 11 : 69 – 85 .
- 67ItzhakyH , YorkAS . Empowerment and community participation: does gender make a difference?Social Work Research , 2000 ; 24 : 225 – 234 .
- 68ZakusJDL , LysackCL . Revisiting community participation . Health Policy and Planning , 1998 ; 13 : 1 – 12 .
- 69TylerTR . Social justice: outcome and procedure . International Journal of Psychology , 2000 ; 35 : 117 – 124 .
- 70BrocknerJ , HeuerL , SiegelPA et al. The moderating effect of self-esteem in reaction to voice: converging evidence from five studies . Journal of Personality and Social Psychology , 1998 ; 75 : 394 – 407 .
- 71LindEA , TylerTR . The Social Psychology of Procedural Justice . New York : Plenum Press , 1988 .
10.1007/978-1-4899-2115-4 Google Scholar
- 72TylerTR , LindEA . A relational model of authority in groups . Advances in Experimental Social Psychology , 1992 ; 25 : 115 – 121 .
- 73SafranDG . Defining the future of primary care: what can we learn from patients?Annals of Internal Medicine , 2003 ; 138 : 248 – 255 .
- 74HallJAA social psychology of health care interactions . Patient Education and Counseling , 2000 ; 40 : 3 .
- 75van VugtM , DowdingK , JohnP , van DukR . The exit of residential mobility or the voice of political action? Strategies for problem solving in residential communities . Journal of Applied Social Psychology , 2003 ; 33 : 321 – 338 .
- 76MorganLM . Community participation in health: perpetual allure, persistent challenge . Health Policy and Planning , 2001 ; 16 : 221 – 230 .
- 77MoroneJA , KilbrethEH . Power to the people? Restoring citizen participation . Journal of Health Politics, Policy and Law , 2003 ; 28 : 271 – 288 .
- 78GivaudanM , PickS , PoortingaYE , FuertesC , GoldL . A cervical cancer prevention program in Mexico: addressing women and their context . Journal of Community and Applied Social Psychology , 2005 ; 15 : 388 – 352 .
- 79KrollJ , RothertM , DavidsonWS et al. Predictors of participation in health care at menopause . Health Communication , 2000 ; 12 : 339 – 360 .
- 80RamfeltE , LutzenK . Patients with cancer: their approaches to participation in treatment plan decisions . Nursing Ethics , 2005 ; 12 : 143 – 155 .
- 81RimerBK , BrissPA , ZellerPK , ChanECY , WoolfSH . Informed decision-making: what is its role in cancer screening?Cancer , 2004 ; 5 ( Suppl ): 1214 – 1228 .
- 82RobertsJR . Empowering older women: strategies to enhance their health and health care . Journal of Obstetric, Gynecologic, and Neonatal Nursing , 2004 ; 33 : 644 – 670 .
- 83StreetRL , GordonHS , WardMM , KrupatE , KravitzRL . Patient participation in medical consultations: why some patients are more involved than others . Medical Care , 2005 ; 43 : 960 – 969 .
- 84SahlstenMJM , LarssonIE , SjostromB , LindercronaCSC , PlosKAE . Patient participation in nursing care: towards a concept clarification from a nurse perspective . Journal of Clinical Nursing , 2007 ; 16 : 630 – 637 .
- 85TakayamaT , YamazakiY . How breast cancer outpatients perceive mutual participation in patient-physician interactions . Patient Education and Counseling , 2004 ; 52 : 279 – 289 .
- 86GrossetKA , GrossetDG . Patient perceived involvement and satisfaction in Parkinson’s disease: effect on therapy decisions and quality of life . Movement Disorders , 2005 ; 20 : 616 – 619 .
- 87RobertsKJ . Patient empowerment in the United States: a critical commentary . Health Expectations , 1999 ; 2 : 82 – 92 .
- 88GuadagnoliE , WardP . Patient participation in decision-making . Social Science and Medicine , 1998 ; 47 : 329 – 339 .
- 89KiddJ , MarteauTM , RobinsonS , UkoumunneOC , TydemanC . Promoting patient participation in consultations: a randomized controlled trial to evaluate the effectiveness of three patient focused interventions . Patient Education and Counseling , 2004 ; 52 : 107 – 112 .
- 90DunstCJ , TrivetteCM . Empowerment, effective helpgiving practices and family-centered care . Pediatric Nursing , 1996 ; 22 : 334 – 338 .
- 91HallJA , RoterDL , KantzNR . Meta-analysis of correlates of provider behavior in medical encounters . Medical Care , 1988 ; 26 : 657 – 675 .
- 92LindEA , TylerTR , HuoYJ . Procedural context and culture variation in the antecedents of procedural justice judgements . Journal of Personality and Social Psychology , 1997 ; 73 : 767 – 780 .
- 93TylerTR , DegoeyP . Collective restraint in social dilemmas: procedural justice and social identification effects on support for authorities . Journal of Personality and Social Psychology , 1995 ; 69 : 482 – 497 .
- 94TylerTR , DegoeyP , SmithH . Understanding why the justice of group procedures matters: a test of the psychological dynamics of the group-value model . Journal of Personality and Social Psychology , 1996 ; 70 : 913 – 930 .
- 95GreenbergJ . Organizational justice: yesterday, today and tomorrow . Journal of Management , 1990 ; 16 : 399 – 432 .
- 96PlatowMJ , BrewerG , EgginsRA . Authorities’ knowledge of shared group membership and its effects on the respect-informing properties of procedural fairness . Journal of Experimental Social Psychology , 2008 ; 44 : 743 – 750 .
- 97TylerTR , BladerSL . Cooperation in Groups: Procedural Justice, Social Identity and Behavioural Engagement . Philadelphia, PA. : Psychology Press , 2000 .
- 98TajfelH . Social and cultural factors in perception . In : G Lindzey , E Aronson ( eds ) Handbook of Social Psychology . Reading, MA : Addison-Wesley , 1969 : 315 – 394 .
- 99TajfelH , TurnerJC . An integrative theory of intergroup conflict . In : S Worchel , W Austin ( eds ) Psychology of Intergroup Relations . Chicago : Nelson-Hall , 1986 : 2 – 24 .
- 100TurnerJC . Social Influence . Buckingham : Open University Press , 1991 .
- 101DaveyHM , BarrattAL , DaveyE et al. Medical tests: women’s reported and decision-making roles and preferences for information on benefits, side-effects and false results . Health Expectations , 2002 ; 5 : 330 – 340 .
- 102DavisonJ , KirkP , DegnerLF , HassardTH . Information and patient participation in screening for prostate cancer . Patient Education and Counseling , 1999 ; 37 : 255 – 263 .
- 103TajfelH . Human Groups and Social Categories . Cambridge : Cambridge University Press , 1981 .
- 104TajfelH . (ed.) . Differentiation Between Social Groups: Studies in the Social Psychology of Intergroup Relations . London : Academic Press , 1978 .
- 105TajfelH , TurnerJC . An integrative theory of intergroup conflict . In : S Worchel , WG Austin ( eds ) The Social Psychology of Intergroup Relations . Monterey : Brooks/Cole , 1979 : 33 – 47 .
- 106TurnerJC . Toward a cognitive redefinition of the social group . In : H Tajfel ( ed ) Social Identity and Intergroup Relations , Cambridge : Cambridge University Press , 1982 : 15 – 40 .
- 107TurnerJC , HoggMA , OakesPJ , ReicherSD , WetherellMA . Rediscovering the Social Group: A Self-Categorization Theory . Oxford : Blackwell , 1987 .
- 108ThoitsPA , VirshupLK . Me’s and we’s: Forms and functions of social identities . In : RD Ashmore , L Jussim ( eds ) Self and Identity: Fundamental Issues . New York : Oxford University Press , 1997 : 106 – 133 .
- 109SmithHJ , TylerTR , HuoYJ , OrtizDJ , LindEA . The self-relevant implications of the group-value model: group membership, self-worth, and treatment quality . Journal of Experimental Social Psychology , 1998 ; 34 : 470 – 493 .
- 110StahlT , van ProoijenJW , VermuntR . On the psychology of procedural justice: reactions to ingroup vs. outgroup authorities . European Journal of Social Psychology , 2004 ; 34 : 173 – 189 .
- 111TylerTR , BladerSL . The group engagement model: procedural justice, social identity, and cooperative behavior . Personality and Social Psychology Review , 2003 ; 7 : 349 – 361 .
- 112WenzelM . Social identification as a determinant of concerns about individual-, group-, and inclusive-level justice . Social Psychology Quarterly , 2004 ; 67 : 70 – 87 .
- 113McGregorS . Roles, power and subjective choice . Patient Education and Counseling , 2006 ; 60 : 5 – 9 .
- 114AujoulatI , LuminetO , DeccacheA . The perspective of patients on their experience of powerlessness . Qualitative Health Research , 2007 ; 17 : 772 – 785 .
- 115ArendtH . The Human Condition . Chicago : University of Chicago Press , 1958 .
- 116LukesS . Power: A Radical View , 2nd edn . New York : Palgrave Macmillan , 2005 .
10.1007/978-0-230-80257-5 Google Scholar
- 117NgSH . The Social Psychology of Power . London : Academic Press , 1980 .
- 118TurnerJC . Explaining the nature of power: a three-process theory . European Journal of Social Psychology , 2005 ; 35 : 1 – 22 .
- 119FoucaultM . Power/Knowledge: Selected Interviews and Other Writings, 1972–77 . Brighton : Harvester , 1980 .
- 120BachrachP , BaratzMS . The two faces of power . American Political Science Review , 1962 ; 56 : 947 – 952 .
- 121FrenchJRP , RavenB . The bases of social power . In : D Cartwright ( ed ) Studies in Social Power . Ann Abor, MI : Institute of Social Research , 1959 : 150 – 167 .
- 122McEwanJ , MartiniCJM , WilkinsN . Participation in Health . London : Croom Helm , 1983 .