Community Engagement in a complex intervention to improve access to primary mental health care for hard-to-reach groups
Corresponding Author
Jonathan Lamb PhD
Research Associate
Centre for Primary Care, Institute of Population Health, University of Manchester, Manchester, UK
Correspondence
Dr Jonathan Lamb
Centre for Primary Care
University of Manchester
5th Floor
Williamson Building
Oxford Road
Manchester M13 9PL
UK
E-mail: [email protected]
Search for more papers by this authorChristopher Dowrick MD
Professor
Institute of Psychology Health and Society, University of Liverpool, Liverpool, UK
Search for more papers by this authorHeather Burroughs PhD
Research Fellow
Institute of Primary Care and Health Sciences, Keele University, Keele, UK
Search for more papers by this authorSusan Beatty PhD
Research Associate
Centre for Primary Care, Institute of Population Health, University of Manchester, Manchester, UK
Search for more papers by this authorSuzanne Edwards PhD
Lecturer
Institute of Psychology Health and Society, University of Liverpool, Liverpool, UK
Search for more papers by this authorKate Bristow PhD
Research Fellow
Institute of Psychology Health and Society, University of Liverpool, Liverpool, UK
Search for more papers by this authorPam Clarke MSc
PhD Student
Institute of Psychology Health and Society, University of Liverpool, Liverpool, UK
Search for more papers by this authorJonathan Hammond MSc
PhD Student
Centre for Primary Care, Institute of Population Health, University of Manchester, Manchester, UK
Search for more papers by this authorWaquas Waheed MD
Academic Consultant Psychiatrist
Centre for Primary Care, Institute of Population Health, University of Manchester, Manchester, UK
Search for more papers by this authorMark Gabbay MD
Professor
Institute of Psychology Health and Society, University of Liverpool, Liverpool, UK
Search for more papers by this authorLinda Gask PhD
Professor
Centre for Primary Care, Institute of Population Health, University of Manchester, Manchester, UK
Search for more papers by this authorCorresponding Author
Jonathan Lamb PhD
Research Associate
Centre for Primary Care, Institute of Population Health, University of Manchester, Manchester, UK
Correspondence
Dr Jonathan Lamb
Centre for Primary Care
University of Manchester
5th Floor
Williamson Building
Oxford Road
Manchester M13 9PL
UK
E-mail: [email protected]
Search for more papers by this authorChristopher Dowrick MD
Professor
Institute of Psychology Health and Society, University of Liverpool, Liverpool, UK
Search for more papers by this authorHeather Burroughs PhD
Research Fellow
Institute of Primary Care and Health Sciences, Keele University, Keele, UK
Search for more papers by this authorSusan Beatty PhD
Research Associate
Centre for Primary Care, Institute of Population Health, University of Manchester, Manchester, UK
Search for more papers by this authorSuzanne Edwards PhD
Lecturer
Institute of Psychology Health and Society, University of Liverpool, Liverpool, UK
Search for more papers by this authorKate Bristow PhD
Research Fellow
Institute of Psychology Health and Society, University of Liverpool, Liverpool, UK
Search for more papers by this authorPam Clarke MSc
PhD Student
Institute of Psychology Health and Society, University of Liverpool, Liverpool, UK
Search for more papers by this authorJonathan Hammond MSc
PhD Student
Centre for Primary Care, Institute of Population Health, University of Manchester, Manchester, UK
Search for more papers by this authorWaquas Waheed MD
Academic Consultant Psychiatrist
Centre for Primary Care, Institute of Population Health, University of Manchester, Manchester, UK
Search for more papers by this authorMark Gabbay MD
Professor
Institute of Psychology Health and Society, University of Liverpool, Liverpool, UK
Search for more papers by this authorLinda Gask PhD
Professor
Centre for Primary Care, Institute of Population Health, University of Manchester, Manchester, UK
Search for more papers by this authorAbstract
Background
Despite the availability of effective evidence-based treatments for depression and anxiety, many ‘harder-to-reach’ social and patient groups experience difficulties accessing treatment. We developed a complex intervention, the AMP (Improving Access to Mental Health in Primary Care) programme, which combined community engagement (CE), tailored (individual and group) psychosocial interventions and primary care involvement.
Objectives
To develop and evaluate a model for community engagement component of the complex intervention. This paper focuses on the development of relationships between stakeholders, their engagement with the issue of access to mental health and with the programme through the CE model.
Design
Our evaluation draws on process data, qualitative interviews and focus groups, brought together through framework analysis to evaluate the issues and challenges encountered.
Setting & participants
A case study of the South Asian community project carried out in Longsight in Greater Manchester, United Kingdom.
Key findings
Complex problems require multiple local stakeholders to work in concert. Assets based approaches implicitly make demands on scarce time and resources. Community development approaches have many benefits, but perceptions of open-ended investment are a barrier. The time-limited nature of a CE intervention provides an impetus to ‘do it now’, allowing stakeholders to negotiate their investment over time and accommodating their wider commitments. Both tangible outcomes and recognition of process benefits were vital in maintaining involvement.
Conclusions
CE interventions can play a key role in improving accessibility and acceptability by engaging patients, the public and practitioners in research and in the local service ecology.
References
- 1 National Institute for Health and Clinical Excellence. Common mental health disorders—identification and pathways to care: NICE clinical guideline [Internet]. Manchester: National Institute for Health and Clinical Excellence, 2011. Report No.: 123. Available at: http://www.nice.org.uk/guidance/cg123, accessed 11 February 2013.
- 2 National Institute for Health and Clinical Excellence. Common Mental Health Disorders: Evidence Update March 2013 [Internet]. Manchester: National Institute for Health and Clinical Excellence, 2013. Available at: https://arms.evidence.nhs.uk/resources/hub/943108/attachment, accessed 25 March 2013.
- 3Lamb J, Bower P, Rogers A, Dowrick C, Gask L. Access to mental health in primary care: a qualitative meta-synthesis of evidence from the experience of people from “hard to reach” groups. Health, 2012; 16: 76–104.
- 4Dowrick C, Gask L, Edwards S et al. Researching the mental health needs of hard-to-reach groups: managing multiple sources of evidence. BMC Health Services Research, 2009; 9: 226.
- 5Chew-Graham C, Kovandzic M, Gask L et al. Why may older people with depression not present to primary care? Messages from secondary analysis of qualitative data. Health and Social Care in the Community, 2011; 20: 52–60.
- 6Kovandžić M, Chew-Graham C, Reeve J et al. Access to primary mental health care for hard-to-reach groups: from ‘silent suffering’ to ‘making it work’. Social Science and Medicine, 2011; 72: 763–772.
- 7Gask L, Bower P, Lamb J et al. Improving access to psychosocial interventions for common mental health problems in the United Kingdom: narrative review and development of a conceptual model for complex interventions. BMC Health Services Research, 2012; 12: 249.
- 8Dowrick C, Chew-Graham C, Lovell K et al. Report to the National Institute for Health Research on an R&D programme to increase equity of access to high quality mental health servivces in primary care (RP-PG-0606-1071) [Internet], 2013. Available at: http://www.journalslibrary.nihr.ac.uk/pgfar/volume-1/issue-2, accessed 31 October 2013.
- 9 National Institute for Health and Clinical Excellence. Community engagement to improve health [Internet]. National Institute for Health and Clinical Excellence, 2008: 1–91. Report No. 9. Available at: http://www.nice.org.uk/guidance/ph009, accessed 24 May 2014.
- 10Blake G, Diamond J, Foot J et al. Community Engagement and Community Cohesion. York: Joseph Rowntree Foundation, 2008.
- 11Chen EK, Reid MC, Parker SJ, Pillemer K. Tailoring evidence-based interventions for new populations: a method for program adaptation through community engagement. Evaluation & the Health Professions, 2013; 36: 73–92.
- 12Chung B, Jones L, Dixon EL, Miranda J, Wells K, Community Partners in Care Steering Council. Using a community partnered participatory research approach to implement a randomized controlled trial: planning community partners in care. Journal of Health Care for the Poor and Underserved, 2010; 21: 780–795.
- 13 Department of Health. Engaging and responding to communities. A Brief Guide to Local Involvement Networks [Internet]. Department of Health, 2010. Available at: http://www.nhs.uk/NHSEngland/links/healthcareproviders/Documents/Engaging_and_responding_to_communities_LINks_guide_for_professionals.pdf, accessed 28 April 2010.
- 14Michener J, Yaggy S, Lyn M et al. Improving the health of the community: Duke's experience with community engagement. Academic Medicine, 2008; 83: 408.
- 15Rogers B, Robinson E. The Benefits of Community Engagement: A Review of the Evidence. London: Home Office, 2004: 1–72.
- 16Swainson K, Summerbell C. The effectiveness of community engagement approaches and methods for health promotion interventions [Internet]. National Institute of Clinical Excellence, 2008: 1–226. Available at: http://www.nice.org.uk/guidance/ph9/resources/community-engagement-health-promotion-effectiveness-review-phase-32, accessed 29 September 2010.
- 17Downe S, Mckeown M, Johnson E, Koloczek L, Grunwald A, Malihi-Shoja L. The UCLan community engagement and service user support (Comensus) project: valuing authenticity, making space for emergence. Health Expectations, 2007; 10: 392–406.
- 18Lewin K. Action research and minority problems. Journal of Social Issues, 1946; 2: 34–46.
- 19Woods MD, Kirk D, Agarwal S et al. Vulnerable groups and access to health care: a critical interpretive review [Internet]. National Coordinating Centre for NHS Service Delivery and Organization R & D (NCCSDO), 2005. Available at: http://www.nets.nihr.ac.uk/__data/assets/pdf_file/0004/81292/ES-08-1210-025.pdf, accessed 25 March 2009.
- 20Weiner BJ, Amick H, Lee SYD. Review: conceptualization and measurement of organizational readiness for change: a review of the literature in health services research and other fields. Medical Care Research and Review: MCRR, 2008; 65: 379–436.
- 21Las Nueces D, Hacker K, DiGirolamo A, Hicks LS. A systematic review of community-based participatory research to enhance clinical trials in racial and ethnic minority groups. Health Services Research, 2012; 47 (3 Pt 2): 1363–1386.
- 22Braithwaite RL, Bianchi C, Taylor SE. Ethnographic approach to community organization and health empowerment. Health Education & Behavior, 1994; 21: 407–416.
- 23Salzer M. Consumer empowerment in mental health organizations: concept, benefits, and impediments. Administration and Policy in Mental Health, 1997; 24: 425–434.
- 24Wells KB, Miranda J, Bruce ML, Alegria M, Wallerstein N. Bridging community intervention and mental health services research. The American Journal of Psychiatry, 2004; 161: 955–963.
- 25Yoo S, Weed N, Lempa M, Mbondo M, Shada R, Goodman R. Collaborative community empowerment: an illustration of a six-step process. Health Promotion Practice, 2004; 5: 256.
- 26Gold RL. The Ethnographic Method in Sociology. Qualitative Inquiry: QI, 1997; 3: 388–402.
- 27Carpiano RM. Come take a walk with me: the “go-along” interview as a novel method for studying the implications of place for health and well-being. Health & Place, 2009; 15: 263–272.
- 28Biernacki P, Waldorf D. Snowball sampling: problems and techniques of chain referral sampling. Sociological Methods & Research [Internet], 1981; 10: 141–163. Available at: http://www.ncjrs.gov/App/Publications/abstract.aspx?ID=146745, accessed 22 July 2012.
- 29May C, Mair F, Dowrick C, Finch T. Process evaluation for complex interventions in primary care: understanding trials using the normalization process model. BMC Family Practice, 2007; 8: 42.
- 30Campbell NC, Murray E, Darbyshire J et al. Designing and evaluating complex interventions to improve health care. BMJ, 2007; 334: 455–459.
- 31Craig P, Petticrew M. Developing and evaluating complex interventions: reflections on the 2008 MRC guidance. International Journal of Nursing Studies, 2012; 50: 1–3.
- 32Sanson-Fisher R, Redman S, Hancock L et al. Developing methodologies for evaluating community-wide health promotion. Health Promotion International, 1996; 11: 227.
- 33Russell J, Greenhalgh T, Boynton P, Rigby M. Soft networks for bridging the gap between research and practice: illuminative evaluation of CHAIN. BMJ, 2004; 328: 1174.
- 34Glaser B. Conceptualization: on theory and theorizing using grounded theory. International Journal of Qualitative Methods, 2002; 1: 1–31.
10.1177/160940690200100203 Google Scholar
- 35Ritchie J, Spencer L. Qualitative data analysis for applied policy research. In: A Brymon, RG Burgess (eds) Analysing Qualitative Data. London: Routledge, 1994: 174–194.
10.4324/9780203413081_chapter_9 Google Scholar
- 36Spencer L, Ritchie J, Lewis J, Dillon L. Quality in Qualitative Evaluation [Internet]. National Centre for Social Research. London: Cabinet Office, 2003. Available at: http://www.civilservice.gov.uk/wp-content/uploads/2011/09/a_quality_framework_tcm6-38740.pdf, accessed 31 May 2009.
- 37Rogers A, Kennedy A, Nelson E, Robinson A. Uncovering the limits of patient-centeredness: implementing a self-management trial for chronic illness. Qualitative Health Research, 2005; 15: 224–239.
- 38Seebohm P, Gilchrist A. Connect and Include [Internet]. London: National Social Inclusion Programme, 2008: 74. Available at: http://cdf.org.uk/wp-content/uploads/2012/12/Connect_and_Include.pdf, accessed 12 May 2011.
- 39Seebohm P, Henderson P, Munn-Giddings C, Thomas P, Yasmeen S. Together We will Change: Community Development, Mental Health and Diversity [Internet]. London: Sainsbury Centre for Mental Health, 2005. Available at: http://www.centreformentalhealth.org.uk/pdfs/Together_we_will_change_report.pdf, accessed 4 October 2010.
- 40Altschuler A, Somkin C, Adler N. Local services and amenities, neighborhood social capital, and health. Social Science and Medicine, 2004; 59: 1219–1229.
- 41Burkett I. Appreciating assets: a new report from the International Association for Community Development (IACD). Community Development Journal, 2011; 46: 573–578.
- 42O'Mara-Eves A, Brunton G, Mcdaid D et al. Community Engagement to Reduce Inequalities in Health: A Systematic Review, Meta-analysis and Economic Analysis. London: National Institute for Health Research, 2013: 1–548.