Reliability, validity and evaluation of the Haemophilia Coping and Perception Test
P. F. Limperg
Psychosocial Department, Emma Children's Hospital, Academic Medical Center, Amsterdam, The Netherlands
Search for more papers by this authorM. Peters
Department of Pediatric-Hematology, Emma Children's Hospital and Hemophilia Comprehensive Care Treatment Center, Academic Medical Center, Amsterdam, The Netherlands
Search for more papers by this authorV. T. Colland
Psychosocial Department, Emma Children's Hospital, Academic Medical Center, Amsterdam, The Netherlands
Search for more papers by this authorC. H. van Ommen
Department of Pediatric-Hematology, Emma Children's Hospital and Hemophilia Comprehensive Care Treatment Center, Academic Medical Center, Amsterdam, The Netherlands
Search for more papers by this authorM. Beijlevelt
Department of Pediatric-Hematology, Emma Children's Hospital and Hemophilia Comprehensive Care Treatment Center, Academic Medical Center, Amsterdam, The Netherlands
Search for more papers by this authorM. A. Grootenhuis
Psychosocial Department, Emma Children's Hospital, Academic Medical Center, Amsterdam, The Netherlands
Search for more papers by this authorL. Haverman
Psychosocial Department, Emma Children's Hospital, Academic Medical Center, Amsterdam, The Netherlands
Search for more papers by this authorP. F. Limperg
Psychosocial Department, Emma Children's Hospital, Academic Medical Center, Amsterdam, The Netherlands
Search for more papers by this authorM. Peters
Department of Pediatric-Hematology, Emma Children's Hospital and Hemophilia Comprehensive Care Treatment Center, Academic Medical Center, Amsterdam, The Netherlands
Search for more papers by this authorV. T. Colland
Psychosocial Department, Emma Children's Hospital, Academic Medical Center, Amsterdam, The Netherlands
Search for more papers by this authorC. H. van Ommen
Department of Pediatric-Hematology, Emma Children's Hospital and Hemophilia Comprehensive Care Treatment Center, Academic Medical Center, Amsterdam, The Netherlands
Search for more papers by this authorM. Beijlevelt
Department of Pediatric-Hematology, Emma Children's Hospital and Hemophilia Comprehensive Care Treatment Center, Academic Medical Center, Amsterdam, The Netherlands
Search for more papers by this authorM. A. Grootenhuis
Psychosocial Department, Emma Children's Hospital, Academic Medical Center, Amsterdam, The Netherlands
Search for more papers by this authorL. Haverman
Psychosocial Department, Emma Children's Hospital, Academic Medical Center, Amsterdam, The Netherlands
Search for more papers by this authorCorrespondence: Lotte Haverman, PhD, Psychosocial Department, Emma Children's Hospital, Academic Medical Center, A3-241, PO Box 22660, 1100 DD Amsterdam, The Netherlands.
Tel.: +31 20 5665674; fax: +31 20 6091242;
e-mail: [email protected]

References
- 1Mannucci PM, Tuddenham EGD. The hemophilias: from royal genes to gene therapy. N Engl J Med 2001; 344: 1773–9.
- 2von Mackensen S. Quality of life and sports activities in patients with haemophilia. Haemophilia 2007; 13: 38–43.
- 3Cassis FR, Querol F, Forsyth A, Iorio A, Board HIA. Psychosocial aspects of haemophilia: a systematic review of methodologies and findings. Haemophilia 2012; 18: e101–14.
- 4Lazarus RS, Folkman S. Stress, Appraisal and Coping. New York, NY: Springer, 1984.
- 5Santavirta N, Bjorvell H, Solovieva S, Alaranta H, Hurskainen K, Konttinen Y. Coping strategies, pain, and disability in patients with hemophilia and related disorders. Arthritis Care Res 2001; 45: 48–55.
- 6Weinman J, Petrie KJ, Moss-Morris R, Horne R. The illness perception questionnaire: a new method for assessing the cognitive representation of illness. Psychol Health 1996; 11: 431–45.
- 7Colland VT, Fournier EP. De Astma Coping- en Belevingtest (ACBT). Een test voor kinderen met astma in de leeftijd van 8 tot 13 jaar [The Asthma Coping Test. A test for asthmatic children aged 8 to 13 years]. Gedrag en Gezondheid 1990; 18: 68–77.
- 8Wiener L, Battles H, Mamalian C, Zadeh S. ShopTalk: a pilot study of the feasibility and utility of a therapeutic board game for youth living with cancer. Support Care Cancer 2011; 19: 1049–54.
- 9Petersen C, Schmidt S, Bullinger M. Brief report: development and pilot testing of a coping questionnaire for children and adolescents with chronic health conditions. J Pediatr Psychol 2004; 29: 635–40.
- 10Last BF, Stam H, Onland-van Nieuwenhuizen A-M, Grootenhuis MA. Positive effects of a psycho-educational group intervention for children with a chronic disease: first results. Patient Educ Couns 2007; 65: 101–12.
- 11Spielberger CD, Edwards CD, Lushene RD, Montouri J, Platzek D. STAIC Preliminary Manual for the State-Trait Anxiety Inventory for Children. Palo Alto, CA: Consulting Psychologists Press, 1973.
- 12Cronbach LJ. Coefficient alpha and the internal structure of tests. Psychometrika 1951; 16: 297–334.
- 13Lorig KR, Holman HR. Self-management education: history, definition, outcomes, and mechanisms. Ann Behav Med 2003; 26: 1–7.
- 14Breakey VR, Ignas DM, Warias AV, White M, Blanchette VS, Stinson JN. A pilot randomized control trial to evaluate the feasibility of an Internet-based self-management and transitional care program for youth with haemophilia. Haemophilia 2014; 20: 784–93.