A review and commentary of the social factors which influence stroke care: issues of inequality in qualitative literature
Corresponding Author
Freda Mold PhD
Department of Public Health Sciences, Kings’ College London, London, UK
Correspondence Freda MoldKings’ College LondonDepartment of Public Health Sciences5th FloorCapital House42 Weston StreetLondon SE13 3QDUK E-mail: [email protected]Search for more papers by this authorChristopher McKevitt PhD
Department of Public Health Sciences, Kings’ College London, London, UK
Search for more papers by this authorCharles Wolfe MD FFPHM
Department of Public Health Sciences, Kings’ College London, London, UK
Search for more papers by this authorCorresponding Author
Freda Mold PhD
Department of Public Health Sciences, Kings’ College London, London, UK
Correspondence Freda MoldKings’ College LondonDepartment of Public Health Sciences5th FloorCapital House42 Weston StreetLondon SE13 3QDUK E-mail: [email protected]Search for more papers by this authorChristopher McKevitt PhD
Department of Public Health Sciences, Kings’ College London, London, UK
Search for more papers by this authorCharles Wolfe MD FFPHM
Department of Public Health Sciences, Kings’ College London, London, UK
Search for more papers by this authorAbstract
Stroke is the third most common cause of death in the UK and a major cause of adult disability. Stroke services have long been criticised for being deficient and there is evidence that some aspects of care provision vary across different population groups. While there is information about the patterns of service provision, questions remain about processes which might underlie these variations. The present paper sought to assess how well the processes which might lead to inequity in the delivery and uptake of stroke services are currently understood by reviewing the qualitative literature in the area. The review was carried out by systematically searching online literature databases, using keyword and bibliographical searches, within a particular time frame. In total, 55 articles were reviewed, including studies related to primary and secondary clinical care, as well as social care. Articles focused on both professionals’ and patients’ perspectives. The review reports the cultural factors and processes which have been identified as possible causes of barriers to professionals’ delivering stroke services, as well as issues which influence patients’ uptake of services. Issues identified in the literature were categorised into four broad thematic areas: conceptualisations of stroke illness and ageing, socio-economic factors, resource allocation and information provision. These themes are then revisited through the hypothesis that the concept of social and personal identity could cast new light on our understanding of how inequity in stroke care provision might arise. It is argued that the ways in which professionals and patients view themselves and each other influences their interaction, and in turn, the delivery and demand for services. Finally, the authors suggest areas where further research is warranted.
References
- Ahmed A., Lemkau J.P., Nealeigh N. & Mann B. (2001) Barriers to healthcare access in a non-elderly urban poor American population. Health and Social Care in the Community 9, 445–453.
- Becker G. (1994) Age bias in stroke rehabilitation: effects on adult status. Journal of Aging Studies 8 (3), 271–290.
- Becker G. & Kaufman S. (1988) Old age, rehabilitation, and research: a review of the issues. Gerontologist 28, 459–468.
- Becker G. & Kaufman S. (1995) Managing an uncertain illness trajectory in old age: patients’ and physicians’ views of stroke. Medical Anthropology 9, 165–187.
- Blackmore K. (2000) Health and social care needs in minority communities: An over-problematized issue? Health and Social Care in the Community 8, 22–30.
- Bury M. (1982) Chronic illness as biographical disruption. Sociology of Health and Illness 4, 167–182.
- Bywaters P. (2000) Talking about inequality: accounts of ill health. British Journal of Social Work 30, 873–878.
- Cappuccio F.P., Cook D.G., Atkinson R.W. & Strazzullo P. (1997) Prevalence, detection, and management of cardiovascular risk factors in different ethnic groups in South London. Heart 78, 555–563.
- Charmaz K. (1983) Loss of self: a fundamental form of suffering in the chronically ill. Sociology of Health and Illness 5 (168), 95.
- Charmaz K. (1987) Struggling for a self: identity levels of the chronically ill. Research in the Sociology of Health Care 6, 283–321.
- Department of Health. (2001) National Service Framework – for Older People. Department of Health, London.
- Dowswell G., Lawler J., Young J., Forester A. & Hearn J. (1997) A qualitative study for specialist nurse support for stroke patients and care-givers at home. Clinical Rehabilitation 11, 293–301.
- Ellis-Hill C.S. & Horn S. (2000a) Changing in identity and self-concept: a new theoretical approach to recovery following a stroke. Clinical Rehabilitation 14, 279–287.
- Ellis-Hill C.S., Payne S. & Ward C. (2000b) Self-body split: issues of identity in physical recovery following a stroke. Disability and Rehabilitation 22, 725–733.
- Forster A., Dowswell G., Young J., Bagley P., Sheard J. & Wright P. (1999) Effect of a physiotherapist-led training programme on attitudes of nurses caring for patients after stroke. Clinical Rehabilitation 13, 113–122.
- Gerrish K. (1999) Inequalities in service provision: an examination of institutional influences on the provision of district nursing care to minority ethnic communities. Journal of Advanced Nursing 30, 1263–1271.
- Gibbon B. (1991) A reassessment of nurses’ attitudes towards stroke patients in general medical wards. Journal of Advanced Nursing 16, 1336–1342.
- Gibbon B. & Little V. (1995) Improving stroke care through action research. Journal of Advanced Nursing 4, 93–100.
- Gladman J.R.F. (2000) Improving long-term rehabilitation. British Medical Bulletin 56, 495–500.
- Gliksman M.D., Lazarus R., Wilson A. & Leeder S.R. (1995) Social support, marital status and living arrangements correlates of cardiovascular disease risk factors in the elderly. Social Science and Medicine 40, 811–814.
- Goddard M. & Smith P. (2001) Equity of access to health care services: theory and evidence from the UK. Social Science and Medicine 53, 1149–1162.
-
Gold S.J. (1983) Getting well: impression management as stroke rehabilitation.
Qualitative Sociology
6 (3), 238–254.
10.1007/BF00987448 Google Scholar
- Greveson G. & James O. (1991) Improving long-term outcomes after stroke – the views of patients and carers. Health Trends 23, 161–162.
- Griffiths C., Kaur G., Gantley M., Feder G., Hillier S., Goodard J. & Packe G. (2001) Influences on hospital admission for asthma in South Asian and White adults: qualitative interview study. British Medical Journal 323, 962–966.
- Hafsteinsdóttir T.B. & Grypdonck M. (1997) Being a stroke patient: a review of the literature. Journal of Advanced Nursing 26, 580–588.
- Hebert R.A., Jenckes M.W., Ford D.E., O'Conner D.R. & Cooper M.D. (2001) Patient perspectives on spirituality and the patient–physician relationship. Journal of General International Medicine 16, 685–692.
- Home Office. (2001) Race Equality in Public Services. The Stationery Office, London.
- Karlsen S. & Nazroo J.Y. (2002) Agency and structure: the impact of ethnic identity and racism on the health of ethnic minority people. Sociology of Health and Illness 24, 1–20.
- Kaufman S. (1988) Illness, biography, and the interpretation of self following a stroke. Journal of Aging Studies 2, 217–227.
- Kaufman S. & Becker G. (1986) Stroke: health care on the periphery. Social Science and Medicine 22, 983–989.
- Kerr S.M. & Smith L.N. (2001) Stroke: an exploration of the experience of informal caregiving. Clinical Rehabilitation 15, 428–436.
- Lillie-Blanton M. & Laveist T. (1996) Race/ethnicity, the social environment, and health. Social Science and Medicine 43, 83–91.
- Low J.T.S., Payne S. & Roderick P. (1999) The impact of stroke on informal carers: a literature review. Social Science and Medicine 49, 711–725.
- Maclean N., Pound P., Wolfe C. & Rudd A. (2000) Qualitative analysis of stroke patients’ motivation for rehabilitation. British Medical Journal 321, 1051–1054.
- Maclean N., Pound P., Wolfe C. & Rudd A. (2002) The concept of patient motivation: a qualitative analysis of stroke professionals’ attitudes. Stroke 33, 444–448.
-
McKevitt C. &
Wolfe C. (2000) Community support after stroke: patient and carer views.
British Journal of Therapy and Rehabilitation
7, 6–10.
10.12968/bjtr.2000.7.1.13907 Google Scholar
- McLean J., Roper-Hall A., Mayer P. & Main A. (1991) Service needs of stroke survivors and their informal carers: a pilot study. Journal of Advanced Nursing 16, 559–564.
- Minichiello V., Browne. J. & Kendig H. (2000) Perceptions and consequences of ageism: views of older people. Ageing and Society 20, 253–278.
- Nazroo J.Y. (1997) Health and health services. In: T. Modood & R. Berthoud (Eds) Ethnic Minorities in Britain Diversity and Disadvantage, pp. 224–258 . Policy Studies Institute, London.
- Nazroo J.Y. (1998) Genetic, cultural or socio-economic vulnerability? Explaining ethnic inequalities in health. Sociology of Health and Illness 20, 710–730.
- Nilsson I., Jansson L. & Norberg A. (1997) To meet with a stroke: patients’ experiences and aspects seen through a screen of crises. Journal of Advanced Nursing 25, 953–963.
- Pendleton D.A. & Bochner S. (1980) The communication of medical information in general practice consultants as a function of patients’ social class. Social Science and Medicine 14a, 669–673.
- Popay J., Bennett S., Thomas C., Williams G., Gatrell A. & Bostock L. (2003) Beyond ‘beer, fags, egg and chips’? Exploring lay understanding of social inequalities in health. Sociology of Health and Illness 25, 1–23.
- Pound P. & Ebrahim S. (1997) Refining ‘doing something’: health professionals’ views on their role in the care of stroke patients. Physiotherapy Research International 2, 12–28.
- Pound P., Gompertz P. & Ebrahim S. (1998) Illness in the context of older age: the case of stroke. Sociology of Health and Illness 20, 489–506.
- Pound P., Gompertz P. & Ebrahim S. (1999) Social and practical strategies described by people living at home with stroke. Health and Social Care in the Community 7, 120–128.
- Pursey. A. & Luker K. (1995) Attitudes and stereotypes: nurses’ work with older people. Journal of Advanced Nursing 22, 547–555.
- Scambler G. & Higgs P. (1999) Stratification, class and health: class relations and health inequalities in high modernity. Sociology 33, 275–296.
- Scott A., Shiell A. & King M. (1996) Is general practitioner decision making associated with patient socio-economic status? Social Science and Medicine 42, 35–46.
- Smaje C. & Le Grand J. (1997) Ethnicity, equity and the use of heath services in the British NHS. Social Science and Medicine 45, 485–496.
- Strauss A.L., Fagerhaugh S., Suczek B. & Wiener C. (1982) The work of hospital patients. Social Science and Medicine 16, 977–986.
- Sundin K., Norberg A. & Jansson L. (2001) The meaning of skilled care providers’ relationship with stroke and aphasia patients. Qualitative Health Research 11, 308–321.
- Tanner D. (2001) Sustaining the self in later life: supporting older people in the community. Ageing and Society 21, 255–278.
- Tyson S. & Turner G. (2000) Discharge and follow-up for people with stroke: what happens and why. Clinical Rehabilitation 14, 381–392.
- Van der Smagt-Duijnstee M.E., Hamers J.P.H., Huijer Abu-Saad H. & Zuidhof A. (2001) Relatives of hospitalized stroke patients: their needs for information, counselling and accessibility. Journal of Advanced Nursing 33, 307–315.
- Van Ryn M. & Burke J. (2000) The effect of patient race and socio-economic status on physicians’ perceptions of patients. Social Science and Medicine 50, 813–828.
- Wagner E.H. (2001) Meeting the needs of chronically ill people. British Medical Journal 323, 945–946.
- Wellwood I., Dennis M.S. & Warlow C.P. (1994) Perceptions and knowledge of stroke among surviving patients with stroke and their carers. Age and Ageing 23, 293–298.
- White M.A. & Johnstone A.S. (2000) Recovery from stroke: Does rehabilitation counselling have a role to play? Disability and Rehabilitation 22, 140–143.
- Wiles R., Pain H., Buckland S. & McLellan L. (1998) Providing appropriate information to patients and carers following a stroke. Journal of Advanced Nursing 28, 794–801.
- Wilkinson R.G. (1997) Socioeconomic determinants of health: health inequalities: Relative or absolute material standards? British Medical Journal 314, 591–596.
- Wolfe C.D.A., Rudd A. & Beech R. (Eds) (1996) Stroke Services and Research. An Overview, with Recommendations for Future Research. The Stroke Association, London.