Parent-Related Stress of Male and Female Carers of Adolescents with Intellectual Disabilities and Carers of Children within the General Population: A Cross-Sectional Comparison
Corresponding Author
Kiri A. Patton
School of Psychology, The University of Queensland, St Lucia, Brisbane, Qld, Australia
Correspondence
Any correspondence should be directed to Kiri A. Patton, School of Psychology, The University of Queensland, St Lucia, Brisbane, Qld 4072, Australia (e-mail: [email protected]).
Search for more papers by this authorRobert Ware
Queensland Centre for Intellectual and Developmental Disability, The University of Queensland, Mater Hospital, Raymond Terrace, South Brisbane, Qld, Australia
School of Population Health, The University of Queensland, Herston, Qld, Australia
Search for more papers by this authorLyn McPherson
Queensland Centre for Intellectual and Developmental Disability, The University of Queensland, Mater Hospital, Raymond Terrace, South Brisbane, Qld, Australia
Search for more papers by this authorEric Emerson
Centre for Disability Research & Policy, University of Sydney, Sydney, NSW, Australia
Centre for Disability Research, Lancaster University, UK
Search for more papers by this authorNicholas Lennox
Queensland Centre for Intellectual and Developmental Disability, The University of Queensland, Mater Hospital, Raymond Terrace, South Brisbane, Qld, Australia
Search for more papers by this authorCorresponding Author
Kiri A. Patton
School of Psychology, The University of Queensland, St Lucia, Brisbane, Qld, Australia
Correspondence
Any correspondence should be directed to Kiri A. Patton, School of Psychology, The University of Queensland, St Lucia, Brisbane, Qld 4072, Australia (e-mail: [email protected]).
Search for more papers by this authorRobert Ware
Queensland Centre for Intellectual and Developmental Disability, The University of Queensland, Mater Hospital, Raymond Terrace, South Brisbane, Qld, Australia
School of Population Health, The University of Queensland, Herston, Qld, Australia
Search for more papers by this authorLyn McPherson
Queensland Centre for Intellectual and Developmental Disability, The University of Queensland, Mater Hospital, Raymond Terrace, South Brisbane, Qld, Australia
Search for more papers by this authorEric Emerson
Centre for Disability Research & Policy, University of Sydney, Sydney, NSW, Australia
Centre for Disability Research, Lancaster University, UK
Search for more papers by this authorNicholas Lennox
Queensland Centre for Intellectual and Developmental Disability, The University of Queensland, Mater Hospital, Raymond Terrace, South Brisbane, Qld, Australia
Search for more papers by this authorAbstract
Background
Carers of children with intellectual disability show high rates of parent-related stress and are at an increased risk for deleterious physical and mental health.
Materials and Methods
This study investigated the relationship between demographic and social characteristics and parenting stress, within two different cross-sectional samples of carers: those who care for an adolescent with an intellectual disability and carers from a population based sample. Participants were 1152 carers from the Household Income and Labour Dynamic in Australia study and 284 carers of adolescents with intellectual disabilities from the Ask study.
Results and Conclusions
The results supported previous research suggesting carers of children with intellectual disabilities experience high parent-related stress. The results also support the buffer model of social support, as high social support was related to lower parent-related stress. Self-rated prosperity, financial pressure and relationship status were also related to lower levels of parent-related stress.
References
- Baker B. L., Mcintyre L. L., Blacher J., Crnic K., Edelbrock C. & Low C. (2003) Pre-school children with and without developmental delay: behaviour problems and parenting stress over time. Journal of Intellectual Disability Research 47, 217–230.
- Baker B. L., Blacher J. & Olsson M. B. (2005) Preschool children with and without developmental delay: behaviour problems, parents’ optimism and well-being. Journal of Intellectual Disability Research 49, 575–590.
- Baxter C., Cummins R. A. & Polak S. (1995) A longitudinal study of parental stress and support: from diagnosis of disability to leaving school. International Journal of Disability, Development and Education 42, 125–136.
- Bourke-Taylor H., Pallant J. F., Law M. & Howie L. (2012) Predicting mental health among mothers of school-aged children with developmental disabilities: the relative contribution of child, maternal and environmental factors. Research in Developmental Disabilities 33, 1732–1740.
- Burke J. D., Pardini D. A. & Loeber R. (2008) Reciprocal relationships between parenting behavior and disruptive psychopathology from childhood through adolescence. Journal of Abnormal Child Psychology 36, 679–692.
- Burton-Smith R., McVilly K. R., Yazbeck M., Parmenter T. R. & Tsutsui T. (2009) Quality of life of Australian family carers: implications for research, policy, and practice. Journal of Policy and Practice in Intellectual Disabilities 6, 189–198.
- Chou Y. C. & Lu Z. Y. (2012) Caring for a daughter with intellectual disabilities in managing menstruation: a mother's perspective. Journal of Intellectual and Developmental Disability 37, 1–10.
- Cohen S. (2004) Social relationships and health. The American Psychologist 59, 676–684.
- Cormack K. F., Brown A. C. & Hastings R. P. (2000) Behavioural and emotional difficulties in students attending schools for children and adolescents with severe intellectual disability. Journal of Intellectual Disability Research 44, 124–129.
- Einfeld S. L., Piccinin A. M., Mackinnon A., Hofer S. M., Taffe J., Gray K. M., Bontempo D. E., Hoffman L. R., Parmenter T. & Tonge B. J. (2006) Psychopathology in young people. The Journal of the American Medical Association 296, 1981–1989.
- Einfeld S. L., Ellis L. A. & Emerson E. (2011) Comorbidity of intellectual disability and mental disorder in children and adolescents: a systematic review. Journal of Intellectual and Developmental Disability 36, 137–143.
- Emerson E. (2003) Mothers of children and adolescents with intellectual disability: social and economic situation, mental health status, and the self-assessed social and psychological impact of the child's difficulties. Journal of Intellectual Disability Research 47, 385–399.
- Emerson E., McCulloch A., Graham H., Blacher J., Llwellyn G. M. & Hatton C. (2010) Socioeconomic circumstances and risk of psychiatric disorders among parents of children with early cognitive delay. American Journal on Intellectual and Developmental Disabilities 115(1), 30–42. doi:10.1352/1944-7558-115.1.30.
- Emerson E. (2013) Commentary: Childhood exposure to environmental adversity and the well-being of people with intellectual disabilities. Journal of Intellectual Disability Research 57, 589–600.
- Emerson E. & Brigham P. (2015) Exposure of children with developmental delay to social determinants of poor health: cross-sectional case record review study. Child: Care Health and Development, 41, 249–257.
- Emerson E. & Hatton C. (2007) Poverty, socio-economic position, social capital and the health of children and adolescents with intellectual disabilities in Britain: a replication. Journal of Intellectual Disability Research 51, 866–874.
- Families Special Interest Research Group of IASSIDD (2014) Families supporting a child with intellectual or developmental disabilities: the current state of knowledge. Journal of Applied Research in Intellectual Disabilities 27, 420–430.
- Feldman M., McDonald L., Serbin L., Stack D., Secco M. L. & Yu C. T. (2007) Predictors of depressive symptoms in primary caregivers of young children with or at risk for developmental delay. Journal of Intellectual Disability Research 51, 606–619.
- Fidler D. J., Hodapp R. M. & Dykens E. M. (2000) Stress in families of young children with Down Syndrome, Williams Syndrome, and Smith-Magenis Syndrome. Early Education & Development 11, 395–406.
10.1207/s15566935eed1104_2 Google Scholar
- Foley K. R., Dyke P., Girdler S., Bourke J. & Leonard H. (2012) Young adults with intellectual disability transitioning from school to post-school: a literature review framed within the ICF. Disability and Rehabilitation 34, 1747–1764.
- Grant G. & Whittell B. (2000) Differentiated coping strategies in families with children or adults with intellectual disabilities: the relevance of gender, family composition and the life span. Journal of Applied Research in Intellectual Disabilities 13, 256–275.
- Griffith G. M., Totsika V., Nash S., Jones R. S. & Hastings R. P. (2012) “We are all there silently coping”. The hidden experiences of parents of adults with Asperger syndrome. Journal of Intellectual and Developmental Disability 37, 237–247.
- Hammen C. (2005) Stress and depression. Annual Review of Clinical Psychology 1, 293–319.
- Haslam S. A., Jetten J., Postmes T. & Haslam C. (2009) Social identity, health and well-being: an emerging agenda for applied psychology. Applied Psychology 58, 1–23.
- Hassall R., Rose J. & McDonald J. (2005) Parenting stress in mothers of children with an intellectual disability: the effects of parental cognitions in relation to child characteristics and family support. Journal of Intellectual Disability Research 49, 405–418.
- Hastings R. P. (2002) Parental stress and behaviour problems of children with developmental disability. Journal of Intellectual & Developmental Disability 27, 149–160.
- Hatton C. & Emerson E. (2009) Does socioeconomic position moderate the impact of child behaviour problems on maternal health in South Asian families with a child with intellectual disabilities? Journal of Intellectual & Developmental Disability 34, 10–16.
- Hauser-Cram P., Warfield M. E., Shonkoff J. P., Krauss M. W., Sayer A., Upshur C. C. & Hodapp R. M. (2001) Children with disabilities: a longitudinal study of child development and parent well-being. Monographs of the Society for Research in Child Development, 66, i–viii + 1–126.
- Henderson S., Duncan-Jones P., McAuley H. & Ritchie K. (1978) The patient's primary group. British Journal of Psychiatry, 132, 78–86.
- Hofferth S., Davis-Kean P. E., Davis J. & Finkelstein J. (1998) The Child Development Supplement to the Panel Study of Income Dynamics: 1997 User Guide. Institute for Social Research, University of Michigan, Institute for Social Research.
- Hubert J. (2011) ‘My heart is always where he is’. Perspectives of mothers of young people with severe intellectual disabilities and challenging behaviour living at home. British Journal of Learning Disabilities 39, 216–224.
- Johnson R. F., O'Reilly M. & Vostanis P. (2006) Caring for children with learning disabilities who present problem behaviours: a maternal perspective. Journal of Child Health Care 10, 188–198.
- Kuruvilla A. & Jacob K. S. (2007) Poverty, social stress & mental health. The Indian Journal of Medical Research 126, 273–278.
- Lazarus R. S. & Folkman S. (1984) Stress, Appraisal, and Coping. Springer, New York.
- Lennox N., Ware R., Carrington S., O'Callaghan M., Williams G., McPherson L. & Bain C. (2012) Ask: a health advocacy program for adolescents with an intellectual disability: a cluster randomised controlled trial. BMC Public Health 12, 750.
- Leuvin E. & Sianesi B. (2003) PSMATCH2: Stata Module to Perform Full Mahalanobis and Propensity Score Matching, Common Support Graphing, and Covariate Imbalance Testing. Boston College Department of Economics, Boston, MA.
- Marshall M. L. & Barnett R. C. (1993) Work family strains and gains among twoearner couples. Journal of Community Psychology 21, 64–78.
- Masi G. (1998) Psychiatric illness in mentally retarded adolescents: clinical features. Adolescence 33, 425–434.
- McIntyre L. L., Blacher J. & Baker B. L. (2002) Behaviour/mental health problems in young adults with intellectual disability: the impact on families. Journal of Intellectual Disability Research 46, 239–249.
- Melbourne Institute of Applied Economic and Social Research (2010) HILDA Survey Annual Report 2010. The University of Melbourne, Melbourne.
- Murray S. (2007) Families’ care work during the transition from school to post-school for children with severe disabilities. Family Matters 76, 24–29.
- Nurullah A. S. (2013) “It's Really a Roller Coaster”: experience of parenting children with developmental disabilities. Marriage & Family Review 49, 412–445.
10.1080/01494929.2013.768320 Google Scholar
- Olsson M. B. & Hwang C. P. (2001) Depression in mothers and fathers of children with intellectual disability. Journal of Intellectual Disability Research 45, 535–543.
- Patton G. C. & Viner R. M. (2009) Pubertal transitions in health. In: Challenges in Adolescent Health: An Australian Perspective (eds D. Bennet, S. Towns, E. Elliott & J. Merrick), pp. 19–37. Nova Science Publishers, Inc., New York.
- Peer J. W. & Hillman S. B. (2014) Stress and resilience for parents of children with intellectual and developmental disabilities: a review of key factors and recommendations for practitioners. Journal of Policy and Practice in Intellectual Disabilities 11, 92–98.
- Rosenbaum P. R. & Rubin D. B. (1985) Constructing a control group using multivariate matched sampling methods that incorporate the propensity score. The American Statistician 39, 33–38.
- Saloviita T., Itälinna M. & Leinonen E. (2003) Explaining the parental stress of fathers and mothers caring for a child with intellectual disability: a double ABCX model. Journal of Intellectual Disability Research 47, 300–312.
- Santiago C. D., Wadsworth M. E. & Stump J. (2011) Socioeconomic status, neighborhood disadvantage, and poverty-related stress: prospective effects on psychological syndromes among diverse low-income families. Journal of Economic Psychology 32, 218–230.
- Saunders P. (1998) Poverty and health: exploring the links between financial stress and emotional stress in Australia. Australian and New Zealand Journal of Public Health 22, 11–16.
- Schwarzer R. & Leppin A. (1991) Social support and health: a theoretical and empirical overview. Journal of Social and Personal Relationships 8, 99–127.
- Segrin C., Burke T. J. & Dunivan M. (2012) Loneliness and poor health within families. Journal of Social and Personal Relationships 29, 597–611.
- Singer G. H. S. (2006) Meta-analysis of comparative studies of depression in mothers of children with and without developmental disabilities. American Journal of Mental Retardation 111, 155–169.
- Small S. A., Eastman G. & Cornelius S. (1988) Adolescent autonomy and parental stress. Journal of Youth and Adolescence 17, 377–391.
- Smith A. M. & Grzywacz J. G. (2014) Health and well-being in midlife parents of children with special health needs. Families, Systems, & Health 32, 303–312.
- StataCorp (2015) Stata Statistical Software: Release 14. StataCorp LP, College Station, TX.
- Todd S. & Jones S. (2005) Looking at the future and seeing the past: the challenge of the middle years of parenting a child with intellectual disabilities. Journal of Intellectual Disability Research 49, 389–404.
- Waite L. J. (1995) Does marriage matter? Demography 32, 483–507.
- Weitlauf A. S., Vehorn A. C., Taylor J. L. & Warren Z. E. (2014) Relationship satisfaction, parenting stress, and depression in mothers of children with autism. Autism: the International Journal of Research and Practice 18, 194–198.
- White P., Chant D., Edwards N., Townsend C. & Waghorn G. (2005) Prevalence of intellectual disability and comorbid mental illness in an Australian community sample. Australian and New Zealand Journal of Psychiatry 39, 395–400.
- Wiley R. E. & Berman S. L. (2012) The relationships among caregiver and adolescent identity status, identity distress and psychological adjustment. Journal of Adolescence 35, 1203–1213.
- Wolf L. C., Noh S., Fisman S. N. & Speechley M. (1989) Brief report: Psychological effects of parenting stress on parents of autistic children. Journal of Autism and Developmental Disorders 19, 157–166.
- Wooden M. & Watson N. (2007) The HILDA Survey and its contribution to economic and social research (So Far). Economic Record 83, 208–231.