Adaptation and evaluation of the Family Involvement and Alienation Questionnaire for use in the care of older people, psychiatric care, palliative care and diabetes care
Corresponding Author
Mats Ewertzon
Department of Health Care Sciences, Ersta Sköndal Bräcke University College, Stockholm, Sweden
Correspondence
Mats Ewertzon, Ersta Sköndal Bräcke University College, Department of Health Care Sciences, P.O. Box 11189, SE, 100 61 Stockholm, Sweden.
Email: [email protected]
Search for more papers by this authorAnette Alvariza
Department of Health Care Sciences/Palliative Research Centre, Ersta Sköndal Bräcke University College, Stockholm, Sweden
Capio Palliative Care, Dalen Hospital, Stockholm, Sweden
Search for more papers by this authorElisabeth Winnberg
Department of Health Care Sciences, Ersta Sköndal Bräcke University College, Stockholm, Sweden
Search for more papers by this authorJaneth Leksell
School of Health and Social Sciences, Dalarna University, Falun, Sweden
Department of Medical Sciences, Uppsala University, Uppsala, Sweden
Search for more papers by this authorBirgitta Andershed
Facuilty of Health, Care and Nursing, Norwegian University of Science and Technology, Gjövik, Norway
Search for more papers by this authorIda Goliath
Learning, Informatics, Management and Ethics, Medical Management Center, Karolinska Institutet, Stockholm, Sweden
Ersta Hospital, Stockholm, Sweden
Search for more papers by this authorPardis Momeni
Department of Health Care Sciences, Ersta Sköndal Bräcke University College, Stockholm, Sweden
Search for more papers by this authorÅsa Kneck
Department of Health Care Sciences, Ersta Sköndal Bräcke University College, Stockholm, Sweden
Search for more papers by this authorMaria Skott
Department of Clinical Neuroscience, Karolinska Institutet, Stockholm, Sweden
Northern Stockholm Psychiatry, Stockholm County Hospital, Stockholm, Sweden
Search for more papers by this authorKristofer Årestedt
Faculty of Health and Life Sciences, Linnaeus University, Kalmar, Sweden
Department of Medical and Health Sciences, Linköping University, Linköping, Sweden
Department of Research, Kalmar County Hospital, Kalmar, Sweden
Search for more papers by this authorCorresponding Author
Mats Ewertzon
Department of Health Care Sciences, Ersta Sköndal Bräcke University College, Stockholm, Sweden
Correspondence
Mats Ewertzon, Ersta Sköndal Bräcke University College, Department of Health Care Sciences, P.O. Box 11189, SE, 100 61 Stockholm, Sweden.
Email: [email protected]
Search for more papers by this authorAnette Alvariza
Department of Health Care Sciences/Palliative Research Centre, Ersta Sköndal Bräcke University College, Stockholm, Sweden
Capio Palliative Care, Dalen Hospital, Stockholm, Sweden
Search for more papers by this authorElisabeth Winnberg
Department of Health Care Sciences, Ersta Sköndal Bräcke University College, Stockholm, Sweden
Search for more papers by this authorJaneth Leksell
School of Health and Social Sciences, Dalarna University, Falun, Sweden
Department of Medical Sciences, Uppsala University, Uppsala, Sweden
Search for more papers by this authorBirgitta Andershed
Facuilty of Health, Care and Nursing, Norwegian University of Science and Technology, Gjövik, Norway
Search for more papers by this authorIda Goliath
Learning, Informatics, Management and Ethics, Medical Management Center, Karolinska Institutet, Stockholm, Sweden
Ersta Hospital, Stockholm, Sweden
Search for more papers by this authorPardis Momeni
Department of Health Care Sciences, Ersta Sköndal Bräcke University College, Stockholm, Sweden
Search for more papers by this authorÅsa Kneck
Department of Health Care Sciences, Ersta Sköndal Bräcke University College, Stockholm, Sweden
Search for more papers by this authorMaria Skott
Department of Clinical Neuroscience, Karolinska Institutet, Stockholm, Sweden
Northern Stockholm Psychiatry, Stockholm County Hospital, Stockholm, Sweden
Search for more papers by this authorKristofer Årestedt
Faculty of Health and Life Sciences, Linnaeus University, Kalmar, Sweden
Department of Medical and Health Sciences, Linköping University, Linköping, Sweden
Department of Research, Kalmar County Hospital, Kalmar, Sweden
Search for more papers by this authorFunding information
This study was funded by grants from Ersta Sköndal Bräcke University College, Stockholm Sweden, The Red Cross Home Foundation, Stockholm Sweden, and University College and Norwegian University of Science and Technology, Gjövik Norway.
Abstract
Aim
To adapt the Family Involvement and Alienation Questionnaire (FIAQ) for use in the care of older people, psychiatric care, palliative care and diabetes care and to evaluate its validity and reliability.
Background
Involvement in the professional care has proven to be important for family members. However, they have described feelings of alienation in relation to how they experienced the professionals’ approach. To explore this issue, a broad instrument that can be used in different care contexts is needed.
Design
A psychometric evaluation study, with a cross-sectional design.
Method
The content validity of the FIAQ was evaluated during 2014 by cognitive interviews with 15 family members to adults in different care contexts. Psychometric evaluation was then conducted (2015–2016). A sample of 325 family members participated, 103 of whom in a test–retest evaluation. Both parametric and non-parametric methods were used.
Results
The content validity revealed that the questionnaire was generally understood and considered to be relevant and retrievable by family members in the contexts of the care of older people, psychiatric care, palliative care and diabetes care. Furthermore, the FIAQ (Revised), demonstrated satisfactory psychometric properties in terms of data quality, homogeneity, unidimensionality (factor structure), internal consistency and test–retest reliability.
Conclusion
The study provides evidence that the FIAQ (Revised) is reliable and valid for use in further research and in quality assessment in the contexts of the care of older people, psychiatric care, palliative care and diabetes care.
CONFLICT OF INTEREST
No conflict of interest has been declared by the author(s).
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