External breast prostheses in post-mastectomy care: women's qualitative accounts

Corresponding Author

P. GALLAGHER phd

Faculty of Science and Health, School of Nursing, Dublin City University, Dublin 9

Pamela Gallagher, Senior Lecturer in Psychology, Faculty of Science and Health, School of Nursing, Dublin City University, Glasnevin, Dublin 9, Ireland (e-mail: [email protected]). Search for more papers by this author

A. BUCKMASTER msc ,

A. BUCKMASTER msc

Faculty of Science and Health, School of Nursing, Dublin City University, Dublin 9

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S. O’CARROLL rgn ,

S. O’CARROLL rgn

Action Breast Cancer, Irish Cancer Society, Dublin 4

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G. KIERNAN phd ,

G. KIERNAN phd

Faculty of Science and Health, School of Nursing, Dublin City University, Dublin 9

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J. GERAGHTY mch, phd, frcsi,

J. GERAGHTY mch, phd, frcsi

Department of Surgery, Tallaght Hospital, Dublin 24, Ireland

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P. GALLAGHER phd ,

Corresponding Author

P. GALLAGHER phd

Faculty of Science and Health, School of Nursing, Dublin City University, Dublin 9

A. BUCKMASTER msc ,

A. BUCKMASTER msc

Faculty of Science and Health, School of Nursing, Dublin City University, Dublin 9

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S. O’CARROLL rgn ,

S. O’CARROLL rgn

Action Breast Cancer, Irish Cancer Society, Dublin 4

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G. KIERNAN phd ,

G. KIERNAN phd

Faculty of Science and Health, School of Nursing, Dublin City University, Dublin 9

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J. GERAGHTY mch, phd, frcsi,

J. GERAGHTY mch, phd, frcsi

Department of Surgery, Tallaght Hospital, Dublin 24, Ireland

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First published: 21 December 2009

https://doi.org/10.1111/j.1365-2354.2008.00942.x

Citations: 32

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Abstract

GALLAGHER P., BUCKMASTER A., O’CARROLL S., KIERNAN G. & GERAGHTY J. (2009) European Journal of Cancer Care19, 61–71
External breast prostheses in post-mastectomy care: women's qualitative accounts

A good-quality external breast prosthesis and prosthesis-fitting service is an integral part of the recovery process post-mastectomy. However, this is an area of care that has minimal information or research available. The aim of this research was to investigate women's experience of the provision, fitting, supply and use of breast prostheses in Ireland. To ascertain women's own personal and subjective experiences, five focus groups with 47 women recruited through national cancer advocacy/support organizations and four Follow-up Breast Clinics throughout Ireland were conducted.

As a result, five main themes emerged: (1) The fitting experience – Fitting? (2) Post-mastectomy products – Having? (3) Cost – Affording? (4) Information – Knowing? and (5) Adaptation – Accepting? The emerging themes pinpointed the impact of the fitting experience, fitting environment and the qualities of a prosthesis fitter on a woman's experience in obtaining a first or replacement breast prosthesis; the importance of the physical characteristics of the prosthesis and mastectomy bras; cost, affordability and entitlements; a lack of and perceived difficulty in getting information; and the myriad of personal and social impacts of a breast prosthesis for the woman.

These findings are integral for the development of standards of practice in the fitting and supply of external breast prostheses in post-mastectomy care.

REFERENCES

Breast Cancer Care (2006) Breast Prosthesis Fitting Services: The Patient Perspective. Research Summary. Available at http://www.breastcancercare.org.uk (accessed 3 April 2006).
Google Scholar
Ferrell B.R., Grant M.M., Funk B., Otis-Green S. & Garcia N. (1997) Quality of life in breast cancer survivors as identified by focus groups. Psycho-Oncology 6, 13–23.
10.1002/(SICI)1099-1611(199703)6:1<13::AID-PON231>3.0.CO;2-S
CAS PubMed Web of Science® Google Scholar
Gallagher P. & MacLachlan M. (2001) Adjustment to an artificial limb: a qualitative perspective. Journal of Health Psychology 6, 85–100.
10.1177/135910530100600107
CAS PubMed Web of Science® Google Scholar
Gallagher P., Buckmaster A., O’Carroll S., Kiernan G. & Geraghty J. (2009) Experiences in the provision, fitting and supply of external breast prostheses: Findings from a national survey. European Journal of Cancer Care DOI: 10.1111/j.1365-2354.2007.00898.x (in press).
10.1111/j.1365-2354.2007.00898.x
PubMed Web of Science® Google Scholar
Hart S., Meyerowitz B.E., Apolone G. & Liberati A. (1997) Quality of life among mastectomy patients using external breast prosthesis. Tumori 83, 581–586.
CAS PubMed Web of Science® Google Scholar
Healey I.R. (2003) External breast prosthesis: misinformation and false beliefs. Medscape 5, Available at http://www.medscape.com/viewarticle/460148 (accessed 7 April 2006).
CAS PubMed Web of Science® Google Scholar
Ivanoff S.D., Sjoestrand J., Klepp K.I. & Axelsson L. (1996) Planning a health education programme for the elderly visually impaired person: A focus group study. Disability and Rehabilitation 18, 515–522.
10.3109/09638289609166038
CAS PubMed Web of Science® Google Scholar
Koppelman N.F. & Bourjolly J.N. (2001) Conducting focus groups with women with severe psychiatric disabilities: a methodological overview. Psychiatric Rehabilitation Journal 25, 142–150.
10.1037/h0095031
CAS PubMed Web of Science® Google Scholar
Krueger R.A. (1997) Analyzing and Reporting Focus Groups Results. Focus Group Kit (Vol. 6). Sage, London, UK.
Google Scholar
Krueger R.A. & Casey M.A. (2000) Focus Groups: A Practical Guide for Applied Research. Sage, Thousand Oaks, CA, USA.
10.1037/10518-189
Google Scholar
Lauzier S., Maunsell E., De Koninck M., Drolet M., Hebert-Croteau N. & Robert J. (2004) Conceptualisation and sources of costs from breast cancer: findings from patient and caregiver focus groups. Psycho-Oncology 14, 351–360.
10.1002/pon.851
Web of Science® Google Scholar
Livingston P.M., White V.M., Roberts S.B., Pritchard E., Gibbs A. & Hill D.J. (2003) Access to breast prostheses via a government-funded service in Victoria, Australia: experience of women and service providers. Evaluation Review 27, 563–578.
10.1177/0193841X03256136
Google Scholar
Livingston P.M., White V.M., Roberts S.B., Pritchard E., Hayman J., Gibbs A. & Hill D.J. (2005) Women's satisfaction with their breast prosthesis – what determines a quality prosthesis? Evaluation Review 29, 65–83.
Google Scholar
Mahon S. & Casey M. (2003) Patient education for women being fitted for breast prosthesis. Clinical Journal of Oncology Nursing 7, 194–199.
Google Scholar
Makrides L., Veinot P.L., Richard J. & Allen M.J. (1997) Primary care physicians and coronary heart disease prevention: a practice model. Patient Education and Counselling 32, 207–217.
10.1016/S0738-3991(97)00031-1
CAS PubMed Web of Science® Google Scholar
Murphy P. (2004) Provision of a prosthesis. In Irish Breast Care Nurses Association Guidelines for Practice (eds S. Carroll, A. Emery, P. Murphy & M. Shanahan), pp. 8–9. Action Breast Cancer, Dublin, Ireland.
Google Scholar
National Cancer Registry Ireland (2005). Cancer in Ireland 1994–2001: Incidence, Treatment and Mortality. A report from the National Cancer Registry, June 2005. Available at http://www.ncri.ie/pubs/pubfiles/report2005_2.pdf (accessed 3 April 2006).
Google Scholar
Nissen M.J., Swenson K.K., Ritz L.J., Farrell J.B., Sladek M.L. & Lally R.M. (2001) Quality of life after breast carcinoma surgery: a comparison of three surgical procedures. Cancer 19, 1238–1246.
Google Scholar
Reaby L.L. (1998) Reasons why women who have mastectomy decide to have or not to have breast reconstruction. Plastic and Reconstructive Surgery 101, 1810–1818.
10.1097/00006534-199806000-00006
CAS PubMed Web of Science® Google Scholar
Roberts S., Livingston P., White V. & Gibbs A. (2003) External breast prosthesis use: experiences and views of women with breast cancer, breast care nurses and prosthesis fitters. Cancer Nursing 26, 179–186.
10.1097/00002820-200306000-00002
Google Scholar
Shimozuma K., Ganz P.A., Petersen L. & Hirji K. (1999) Quality of life in the first year after breast cancer surgery: rehabilitation needs and patterns of recovery. Breast Cancer Research and Treatment 56, 45–57.
10.1023/A:1006214830854
CAS PubMed Web of Science® Google Scholar
Stevens P.E. (1996) Focus groups: collecting aggregate-level data to understand community health phenomena. Public Health Nursing 13, 170–176.
10.1111/j.1525-1446.1996.tb00237.x
CAS PubMed Web of Science® Google Scholar
Taylor D. & Dower C. (1997) Toward a women-centred health care system: women's experiences, women's voices, women's needs. Health Care for Women International 18, 407–422.
10.1080/07399339709516294
CAS PubMed Google Scholar
Tam Ashing-Giwa K., Padilla G., Tejero J., Kraemer J., Wright K., Coscarelli A., Clayton S., Williams I. & Hills D. (2004) Understanding the breast cancer experience of women: a qualitative study of African, Latina and Caucasian cancer survivors. Psycho-Oncology 13, 408–428.
10.1002/pon.750
PubMed Web of Science® Google Scholar
Vogt D.A., King D.W. & King L.A. (2004) Focus groups in psychological assessment: enhancing content validity by consulting members of the target population. Psychological Assessment 16, 231–243.
10.1037/1040-3590.16.3.231
PubMed Web of Science® Google Scholar
Wilkinson S. (1998a) Focus groups in health research: exploring the meanings of health and illness. Journal of Health Psychology 3, 329–348.
10.1177/135910539800300304
CAS PubMed Google Scholar
Wilkinson S. (1998b) Focus group methodology: a review. International Journal of Social Research Methodology 1, 181–203.
10.1080/13645579.1998.10846874
Google Scholar
Wilkinson S. & Kitzinger C. (1993) Whose breast is it anyway? A feminist consideration of advice and ‘treatment’ for breast cancer. Women's Studies International Forum 16, 229–238.
10.1016/0277-5395(93)90053-C
Web of Science® Google Scholar
Wyatt Seal D., Bogart L.M. & Ehrhardt A.A. (1998) Small group dynamics: the utility of focus group discussions as a research method. Group Dynamics: Theory, Research and Practice 2, 253–266.
10.1037/1089-2699.2.4.253
Google Scholar

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