Volume 26, Issue 1 e12432
Original Article

Supporting children facing a parent's cancer diagnosis: a systematic review of children's psychosocial needs and existing interventions

S.J. Ellis BA-Psych Hons, B-Health

Corresponding Author

S.J. Ellis BA-Psych Hons, B-Health

Research Officer

Behavioural Sciences Unit, proudly supported by the Kids with Cancer Foundation, Kids Cancer Centre, Sydney Children's Hospital, Randwick, NSW, Australia

Discipline of Paediatrics, School of Women's and Children's Health, UNSW Medicine, University of New South Wales, Sydney, NSW, Australia

Correspondence address: Sarah J. Ellis, Behavioural Sciences Unit, proudly supported by the Kids with Cancer Foundation, Kids Cancer Centre, Sydney Children's Hospital, High Street, Randwick, NSW 2031, Australia (e-mail: [email protected]).Search for more papers by this author
C.E. Wakefield BPsych (Hons 1), MPH, PhD

C.E. Wakefield BPsych (Hons 1), MPH, PhD

Program Leader, Senior Research Fellow, Research Development Fellow

Behavioural Sciences Unit, proudly supported by the Kids with Cancer Foundation, Kids Cancer Centre, Sydney Children's Hospital, Randwick, NSW, Australia

Discipline of Paediatrics, School of Women's and Children's Health, UNSW Medicine, University of New South Wales, Sydney, NSW, Australia

Cancer Institute of NSW, Alexandria, NSW, Australia

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G. Antill BA-Commun

G. Antill BA-Commun

National Program Strategy Manager

Camp Quality, Epping, NSW, Australia

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M. Burns BSc Psych (Hons)

M. Burns BSc Psych (Hons)

Research Officer

Behavioural Sciences Unit, proudly supported by the Kids with Cancer Foundation, Kids Cancer Centre, Sydney Children's Hospital, Randwick, NSW, Australia

Discipline of Paediatrics, School of Women's and Children's Health, UNSW Medicine, University of New South Wales, Sydney, NSW, Australia

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P. Patterson BSocSc (Hons I), PhD

P. Patterson BSocSc (Hons I), PhD

General Manager, Adjunct Associate Professor

Research, Evaluation and Social Policy, CanTeen Australia, Sydney, NSW, Australia

Faculty of Nursing, Sydney Medical School, University of Sydney, Sydney, NSW, Australia

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First published: 18 January 2016
Citations: 108

Abstract

This review aimed to (1) summarise the psychosocial needs of children/adolescents (0–18 years) with a parent with cancer across the illness trajectory (diagnosis to bereavement) and (2) evaluate existing interventions for this population. Medline, CINAHL, PsychInfo, EMBASE and Social Work Abstracts were systematically searched for articles published from 1985 to 2015. Of 98 full text articles retrieved, 12 reported on children's psychosocial needs, and 12 intervention studies were identified. Each article was appraised in accordance with the Mixed Method Appraisal Tool. Three factors emerged as critical to consider in future intervention development: (1) Children need age-appropriate information about their parent's cancer; (2) Children require support communicating with parents, family members and health professionals and (3) Children need an environment where they feel comfortable sharing positive/negative emotions and can have their experiences normalised among peers. All intervention studies reported at least one positive outcome, however, only five reported significant improvements in child/family functioning based on validated quantitative measure/s. Variability in study design and quality, combined with considerable heterogeneity in intervention characteristics and outcome variables limited the conclusions, which could be drawn. Therefore, further carefully designed and scientifically evaluated interventions for children facing a parent's cancer diagnosis are clearly warranted.

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