Volume 25, Issue 3 pp. 348-355
Original Article

Does labelling a rare cancer diagnosis ‘good’ affect the patient's experience of treatment and recovery?

E. Ridgway RGN, MSc, DipN (Palliative Care)

Corresponding Author

E. Ridgway RGN, MSc, DipN (Palliative Care)

Oncology Nurse Specialist

Mustard Tree Macmillan Centre, Derriford Hospital, Plymouth

Correspondence address: Elizabeth Ridgway, Mustard Tree Macmillan Centre, Derriford Hospital, Plymouth PL6 8DH, UK (e-mail: [email protected]).Search for more papers by this author
J. Grose PhD

J. Grose PhD

Research Fellow

Faculty of Health, Education and Society, University of Plymouth, Drake Circus, Plymouth

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A. Charles SRN, BSc Psychology, MSc Health Psychology, Diploma Humanistic Counselling, PGCE

A. Charles SRN, BSc Psychology, MSc Health Psychology, Diploma Humanistic Counselling, PGCE

c/o Mustard Tree Macmillan Centre, Derriford Hospital, Plymouth

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J. Hewett RGN, DipN, BSc(Hons)

J. Hewett RGN, DipN, BSc(Hons)

Macmillan Head and Neck CNS

Forest Ward, Torbay Hospital, Devon

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M. Jarvis SRN, Dip. Nursing, BSc(Hons), Nursing and Dip. Head & Neck Oncology

M. Jarvis SRN, Dip. Nursing, BSc(Hons), Nursing and Dip. Head & Neck Oncology

Nurse Specialist

c/o Mustard Tree Macmillan Centre, Derriford Hospital, Plymouth

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S. Benjamin BSc(Hons), IPM Diploma MBA Health Services Management Commissioning Support Manager

S. Benjamin BSc(Hons), IPM Diploma MBA Health Services Management Commissioning Support Manager

Partnerships Directorate

Northern, Eastern and Western Devon Clinical Clinical Commissioning Group, Devon, UK

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First published: 21 October 2014
Citations: 6
The research team did not receive any payment or external sponsorship for undertaking the study; however, funding towards the cost of interview transcription and clinical supervision was gratefully received from the Ear Nose and Throat Department at one of the research sites, specialist head and neck nursing group (BAHNON) and a specialist projects group at the other research site.

Abstract

Doctors sometimes tell patients with rare but highly treatable cancers that they have ‘good’ cancer which some patients have found unhelpful, but this has been little explored. The aim of this study was to explore how patients reacted to being told they had a ‘good’ cancer. Qualitative interviews were carried out with 25 people with rare but prognostically favourable cancers who had received treatment at two hospitals within a cancer network. Results showed that despite good treatment outcomes, patients are still very shocked to hear the word cancer and react in similar ways to those with other forms of cancer. The potential effects of treatment should be recognised as having a detrimental effect on patient well-being whatever the prognosis. We should therefore avoid using ‘good’ and ‘cancer’ in the same sentence. In addition, the impact on all family members should not be underestimated. The data can be used to improve clinical practice and improve support for people affected by cancer.

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