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Parents’ Perspective of Quality of Life of Retinoblastoma Survivors

Atul Batra MD

Department of Medical Oncology, Dr. B. R. A. Institute Rotary Cancer Hospital, All India Institute of Medical Sciences, New Delhi, India

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Raman Kain MD,

Raman Kain MD

Department of Medical Oncology, Dr. B. R. A. Institute Rotary Cancer Hospital, All India Institute of Medical Sciences, New Delhi, India

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Mamta Kumari MA,

Mamta Kumari MA

Department of Medical Oncology, Dr. B. R. A. Institute Rotary Cancer Hospital, All India Institute of Medical Sciences, New Delhi, India

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Reeja Paul BSc,

Reeja Paul BSc

Department of Medical Oncology, Dr. B. R. A. Institute Rotary Cancer Hospital, All India Institute of Medical Sciences, New Delhi, India

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Deepa Dhawan MA,

Deepa Dhawan MA

Department of Medical Oncology, Dr. B. R. A. Institute Rotary Cancer Hospital, All India Institute of Medical Sciences, New Delhi, India

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Sameer Bakhshi MD,

Corresponding Author

Sameer Bakhshi MD

Department of Medical Oncology, Dr. B. R. A. Institute Rotary Cancer Hospital, All India Institute of Medical Sciences, New Delhi, India

Correspondence to: Sameer Bakhshi, Department of Medical Oncology, Dr. B. R. A. Institute Rotary Cancer Hospital, All India Institute of Medical Sciences, New Delhi 110 029, India.

E-mail: [email protected]

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Atul Batra MD,

Atul Batra MD

Department of Medical Oncology, Dr. B. R. A. Institute Rotary Cancer Hospital, All India Institute of Medical Sciences, New Delhi, India

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Raman Kain MD,

Raman Kain MD

Department of Medical Oncology, Dr. B. R. A. Institute Rotary Cancer Hospital, All India Institute of Medical Sciences, New Delhi, India

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Mamta Kumari MA,

Mamta Kumari MA

Department of Medical Oncology, Dr. B. R. A. Institute Rotary Cancer Hospital, All India Institute of Medical Sciences, New Delhi, India

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Reeja Paul BSc,

Reeja Paul BSc

Department of Medical Oncology, Dr. B. R. A. Institute Rotary Cancer Hospital, All India Institute of Medical Sciences, New Delhi, India

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Deepa Dhawan MA,

Deepa Dhawan MA

Department of Medical Oncology, Dr. B. R. A. Institute Rotary Cancer Hospital, All India Institute of Medical Sciences, New Delhi, India

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Sameer Bakhshi MD,

Corresponding Author

Sameer Bakhshi MD

Department of Medical Oncology, Dr. B. R. A. Institute Rotary Cancer Hospital, All India Institute of Medical Sciences, New Delhi, India

Correspondence to: Sameer Bakhshi, Department of Medical Oncology, Dr. B. R. A. Institute Rotary Cancer Hospital, All India Institute of Medical Sciences, New Delhi 110 029, India.

E-mail: [email protected]

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First published: 01 April 2016

https://doi.org/10.1002/pbc.25982

Citations: 14

Conflict of interest: Nothing to declare.

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Abstract

Health-related quality of life (HRQOL) in retinoblastoma survivors was assessed using parent proxy report of PedsQL^TM 4.0 generic core scale. One hundred twenty-two parents of retinoblastoma survivors filled the questionnaire satisfactorily. This was compared with parent-reported HRQOL of 50 siblings. The median age of survivors was 98 (range, 60–247) months and male:female ratio was 2:1. The overall parent-reported HRQOL was significantly worse in survivors as compared to controls (74.4 ± 8.5 vs. 85.1 ± 4.6, P < 0.001). All health domains were significantly affected when compared with controls. None of the baseline and treatment-related factors predicted HRQOL.

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Volume63, Issue7

July 2016

Pages 1287-1289

Parents’ Perspective of Quality of Life of Retinoblastoma Survivors

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Parents’ Perspective of Quality of Life of Retinoblastoma Survivors

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