• Issue

    Health Expectations: Volume 25, Issue 3

    i-iv, 803-1175
    June 2022
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COVER IMAGE

Free Access

Front Cover: Volume 25 Issue 3

Anne Parkinson PhD,  Crystal Brunoro MPH,  Jack Leayr BA,  Vanessa Fanning PhD,  Katrina Chisholm,  Janet Drew MBA,  Jane Desborough PhD,  Christine Phillips BMedSc, 
  • First Published: 20 May 2022
Front Cover: Volume 25 Issue 3 Volume 25 Issue 3, 2022

Cover Caption: The cover image is based on the Review Article Intertwined like a double helix: A meta-synthesis of the qualitative literature examining the experiences of living with someone with multiple sclerosis by Anne Parkinson et al., https://doi.org/10.1111/hex.13432.

ISSUE INFORMATION

Free Access

Issue Information

  • Pages: i-iv
  • First Published: 20 May 2022

REVIEW ARTICLES

Open Access

Intertwined like a double helix: A meta-synthesis of the qualitative literature examining the experiences of living with someone with multiple sclerosis

Anne Parkinson PhD,  Crystal Brunoro MPH,  Jack Leayr BA,  Vanessa Fanning PhD,  Katrina Chisholm,  Janet Drew MBA,  Jane Desborough PhD,  Christine Phillips BMedSc, 
  • Pages: 803-822
  • First Published: 04 February 2022
Open Access

How is patient-centred care conceptualized in obstetrical health? comparison of themes from concept analyses in obstetrical health- and patient-centred care

Kelly Dong BHSc,  Bismah Jameel BSc,  Anna R. Gagliardi PhD, 
  • Pages: 823-839
  • First Published: 13 January 2022

Mapping the role of patient and public involvement during the different stages of healthcare innovation: A scoping review

Victoria Cluley PhD,  Alexandra Ziemann PhD,  Claire Feeley PhD,  Ellinor K. Olander PhD,  Shani Shamah BSc,  Charitini Stavropoulou PhD, 
  • Pages: 840-855
  • First Published: 17 February 2022
Open Access

Seeking a deeper understanding of ‘distributed health literacy’: A systematic review

Danielle M. Muscat PhD,  Danielle Gessler MClinPsych,  Julie Ayre PhD,  Ole Norgaard MSc,  Iben R. Heuck BaSc,  Stefanie Haar MSc,  Helle T. Maindal PhD, 
  • Pages: 856-868
  • First Published: 18 February 2022
Open Access

Patients' experiences across the trajectory of atrial fibrillation: A qualitative systematic review

Jie Wang MD,  Shenxinyu Liu MD,  Zhipeng Bao MD,  Min Gao MD,  Yuanyuan Peng MD,  Yangxi Huang MD,  Tianxi Yu MD,  Lin Wang BS,  Guozhen Sun MD, 
  • Pages: 869-884
  • First Published: 17 February 2022
Open Access

Centredness in health care: A systematic overview of reviews

Caroline Feldthusen PhD,  Emma Forsgren PhD,  Sara Wallström PhD,  Viktor Andersson MSc,  Noah Löfqvist MSc,  Richard Sawatzky,  Joakim Öhlén,  Eva J. Ung, 
  • Pages: 885-901
  • First Published: 08 March 2022
Open Access

Mapping definitions of co-production and co-design in health and social care: A systematic scoping review providing lessons for the future

Daniel Masterson PsyD,  Kristina Areskoug Josefsson PhD,  Glenn Robert PhD,  Elisabeth Nylander MSc,  Sofia Kjellström PhD, 
  • Pages: 902-913
  • First Published: 23 March 2022

ORIGINAL ARTICLES

Open Access

Patients with low activation level report limited possibilities to participate in cancer care

Bodil Westman MSc,  Karin Bergkvist PhD,  Andreas Karlsson Rosenblad PhD,  Lena Sharp PhD,  Mia Bergenmar PhD, 
  • Pages: 914-924
  • First Published: 20 January 2022
Open Access

Outcomes of importance to children and young adults with cerebral palsy, their parents and health professionals following lower limb orthopaedic surgery: A qualitative study to inform a Core Outcome Set

Hajar Almoajil MSc,  Francine Toye PhD,  Helen Dawes PhD,  Jo Pierce MSc,  Andrew Meaney PhD,  Aziz Baklouti BSc,  Lara Poverini BSc,  Sally Hopewell PhD,  Tim Theologis PhD, 
  • Pages: 925-935
  • First Published: 27 January 2022
Open Access

Osteoarthritis management: Does the pharmacist play a role in bridging the gap between what patients actually know and what they ought to know? Insights from a national online survey

Andrew J. McLachlan BPharm (Hons), PhD,  Peter R. Carroll BPharm, MSc, PhD, FPS,  David J. Hunter MBBS (Hons), MSc (Clin Epi), MSpMed, PhD, FRACP (Rheum),  Tom A. N. Wakefield BSc (Hons1 Stat, Math), BCom (Econ), GradCert (DataSci),  Rodney Stosic BSc, PhD, MBA, 
  • Pages: 936-946
  • First Published: 08 January 2022
Open Access

The chronic disease Self-Management Programme: A phenomenological study for empowering vulnerable patients with chronic diseases included in the EFFICHRONIC project

Dallal Fracso MD,  Gérard Bourrel MD, PhD,  Christian Jorgensen MD, PhD,  Hélène Fanton MD,  Hein Raat MD,  Alberto Pilotto MD,  Graham Baker MD,  Marta M. Pisano PhD,  Rosanna Ferreira MD,  Verushka Valsecchi PhD,  Yves-Marie Pers MD, PhD,  Agnes Oude Engberink MD, 
  • Pages: 947-958
  • First Published: 10 January 2022
Open Access

Attribute nonattendance in COVID-19 vaccine choice: A discrete choice experiment based on Chinese public preference

Jianhong Xiao,  Fei Wang,  Min Wang,  Zegang Ma, 
  • Pages: 959-970
  • First Published: 20 January 2022
Open Access

The interactive work of narrative elicitation in person-centred care: Analysis of phone conversations between health care professionals and patients with common mental disorders

Matilda Cederberg Master of Science in Psychology,  Andreas Fors,  Lilas Ali PhD,  Anneli Goulding,  Åsa Mäkitalo, 
  • Pages: 971-983
  • First Published: 11 February 2022
Open Access

Using financial incentives to support service engagement of adults experiencing homelessness and mental illness: A qualitative analysis of key stakeholder perspectives

Nadine Reid PhD,  Rebecca Brown BA,  Cheryl Pedersen MSc,  Nicole Kozloff MD, Msc,  Alexandra Sosnowski BSc,  Vicky Stergiopoulos MD, MHSc, 
  • Pages: 984-993
  • First Published: 01 February 2022
Open Access

Parents' perspectives on user participation and shared decision-making in adolescents' inpatient mental healthcare

Stig Bjønness MD,  Trond Grønnestad PhD,  Jan O. Johannessen PhD,  Marianne Storm PhD, 
  • Pages: 994-1003
  • First Published: 07 February 2022
Open Access

The involvement matrix as a framework for involving youth with severe communication disabilities in developing health education materials

Shakila Dada PhD AAC,  Adele May PHD AAC,  Kirsty Bastable PhD AAC,  Alecia Samuels PhD AAC,  Kerstin Tönsing PHD AAC,  Jenny Wilder PhD,  Maureen Casey MA AAC,  Constance Ntuli,  Vasu Reddy PhD, 
  • Pages: 1004-1015
  • First Published: 11 February 2022
Open Access

Cultural adaptation of a community-based advance serious illness planning decision aid to the Quebec context involving end-users

Ariane Plaisance PhD (c),  Yoanna Skrobik MD, FRCP (c), MSc,  Mathieu Moreau MD, MSc (c),  Felix Pageau MD, MA,  Diane Tapp RN, PhD,  Daren K. Heyland MD, MSc, 
  • Pages: 1016-1028
  • First Published: 02 February 2022
Open Access

Developing lay summaries and thank you notes in paediatric pragmatic clinical trials

Kanecia O. Zimmerman MD, MPH,  Brian Perry MPH,  Emily Hanlen-Rosado MPH, MEd,  Adora Nsonwu BA,  Morgan D. Lane BA,  Daniel K. Benjamin Jr. MD, PhD, MPH,  Mara Becker MD,  Amy Corneli PhD, MPH,  Best Pharmaceuticals for Children Act—Pediatric Trials Network Steering Committee , 
  • Pages: 1029-1037
  • First Published: 04 March 2022
Open Access

Coproducing a library of videos to support families caring for children with gastrostomies: A mixed-methods evaluation with family carers and clinicians

Bethan Page PhD,  Alex C. H. Lee PhD,  Emily J. Harrop PhD,  Tania Beale,  Alison Sharrard,  Nick Yeung PhD,  Charles A. Vincent PhD, 
  • Pages: 1038-1047
  • First Published: 09 February 2022
Open Access

The experiences of men following recurrent miscarriage in an Irish tertiary hospital: A qualitative analysis

Tommy Harty MB BCH BAO,  Maria Trench MSc,  Orla Keegan MA,  Keelin O'Donoghue PhD,  Daniel Nuzum PhD, 
  • Pages: 1048-1057
  • First Published: 03 March 2022
Open Access

Do we have friendly services to meet the needs of young women exposed to intimate partner violence in the Madrid region?

Eva Durán-Martín CNM,  Carmen Vives-Cases PhD,  Laura Otero-García PhD,  Esther Castellanos-Torres PhD,  Belen Sanz-Barbero PhD, 
  • Pages: 1058-1068
  • First Published: 24 February 2022

Assessing the experience of person-centred coordinated care of people with chronic conditions in the Netherlands: Validation of the Dutch P3CEQ

Mieke Rijken PhD,  James Close PhD,  Juliane Menting PhD,  Manon Lette PhD,  Annerieke Stoop PhD,  Nick Zonneveld MSc,  Simone R. de Bruin PhD,  Helen Lloyd PhD,  Monique Heijmans PhD, 
  • Pages: 1069-1080
  • First Published: 23 March 2022
Open Access

The Tell me tool: The development and feasibility of a tool for person-centred infertility care

Eva W. Verkerk PhD,  Ester A. Rake MSc,  Didi D. M. Braat MD, PhD,  Willianne L. D. M. Nelen MD, PhD,  Johanna W. M. Aarts MD, PhD,  Jan A. M. Kremer MD, PhD, 
  • Pages: 1081-1093
  • First Published: 26 February 2022
Open Access

Eliciting preferences for continuing medication among adult patients and parents of children with attention-deficit hyperactivity disorder

Muhammad Umair Khan PhD,  Camila Balbontin PhD,  Michiel C. J. Bliemer PhD,  Parisa Aslani PhD, 
  • Pages: 1094-1107
  • First Published: 10 March 2022
Open Access

‘Down to the person, the individual patient themselves’: A qualitative study of treatment decision-making for shoulder pain

Christina Maxwell MSc,  Karen McCreesh PhD,  Jon Salsberg PhD,  Katie Robinson PhD, 
  • Pages: 1108-1117
  • First Published: 15 March 2022
Open Access

Understanding the support experiences of families of children with autism and sensory processing difficulties: A qualitative study

Sarah Milosevic PhD,  Lucy Brookes-Howell PhD,  Elizabeth Randell BSc,  Rhys Williams-Thomas BA (Hons),  Sue Delport MSc,  Monica Busse PhD,  David Gillespie PhD,  Alka S. Ahuja MD, MRCPsych,  Anne Marie McKigney MEd,  Eleni Glarou MSc,  Rachel McNamara PhD, 
  • Pages: 1118-1130
  • First Published: 18 March 2022
Open Access

Cancer treatment decisions for people living with dementia: Experiences of family carers, a qualitative interview study

Catherine Hynes MPH, MBChB, MRCGP,  Victoria J. Hodges MBChB, MRCGP,  Lynda Wyld BMedSci, MBChB, PhD, FRCS,  Caroline Mitchell MBChB, MD, FRCGP, 
  • Pages: 1131-1139
  • First Published: 16 March 2022
Open Access

Giving an account of patients' experience: A qualitative study on the care process of hip and knee osteoarthritis

Simone Battista MSc,  Mattia Manoni MSc,  Andrea Dell'Isola PhD,  Martin Englund PhD,  Alvisa Palese PhD,  Marco Testa PhD, 
  • Pages: 1140-1156
  • First Published: 09 March 2022
Open Access

Pain self-management intervention supports successful attainment of self-selected rehabilitation goals—secondary analysis of a randomized controlled trial

Catharina Gustavsson,  Lena von Koch, 
  • Pages: 1157-1167
  • First Published: 14 March 2022
Open Access

Perceptions of recovery and rehabilitation in people with brain injury in Spain. A qualitative study

Sagrario Pérez-de la Cruz PhD, 
  • Pages: 1168-1175
  • First Published: 14 March 2022