• Issue

    Health Expectations: Volume 25, Issue 1

    i-iv, 1-475
    February 2022
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COVER IMAGE

Free Access

Outside Front Cover: Volume 25 Issue 1

Jane Desborough,  Anne Parkinson,  Fiona Lewis BABiol (Hons),  Harry Ebbeck,  Michelle Banfield,  Christine Phillips, 
  • First Published: 16 February 2022
Outside Front Cover: Volume 25 Issue 1 Volume 25 Issue 1, 2022

Outside Front Cover Caption: The cover image is based on the Research Article A framework for involving coproduction partners in research about young people with type 1 diabetes by Jane Desborough et al., https://doi.org/10.1111/hex.13403.

Free Access

Inside Front Cover: Volume 25 Issue 1

Petter Viksveen PhD,  Nicole E. Cardenas MA,  Maya Ibenfeldt BSc,  Laia G. Meldahl BA Psychology,  Lou Krijger BSc,  Julia R. Game,  Maren McLean Andvik BSc,  Oliver Cuddeford BA,  Samuel Duerto BA Philosophy,  Murad Mustafa BN,  Mathias Tong BE (Hons), 
  • First Published: 16 February 2022
Inside Front Cover: Volume 25 Issue 1 Volume 25 Issue 1, 2022

Inside Front Cover Caption: The cover image is based on the Research Article Involvement of adolescent representatives and coresearchers in mental health research: Experiences from a research project by Petter Viksveen et al., https://doi.org/10.1111/hex.13383.

Free Access

Outside Back Cover: Volume 25 Issue 1

Xiu-Jing Hu MMed,  Harry H. X. Wang PhD,  Yu-Ting Li MPH,  Xiao-Ya Wu MPH,  Yi Wang MMed,  Jia-Heng Chen BMed,  Jia-Ji Wang MPH,  Samuel Y. S. Wong MD,  Stewart W. Mercer PhD, 
  • First Published: 16 February 2022
Outside Back Cover: Volume 25 Issue 1 Volume 25 Issue 1, 2022

Outside Back Cover Caption: The cover image is based on the Research Article Healthcare needs, experiences and treatment burden in primary care patients with multimorbidity: An evaluation of process of care from patients' perspectives by Harry H.X. Wang et al., https://doi.org/10.1111/hex.13363.

ISSUE INFORMATION

Free Access

Issue Information

  • Pages: i-iv
  • First Published: 16 February 2022

EDITORIAL

Open Access

How can we achieve health equity? Revisit the premise informing the scientific method

Karen L. Fortuna PhD, LICSW,  Matthew F. Hudson PhD, MPH,  Amanda Myers MPH,  Arya Kadakia,  Jennifer Rivera BSW,  Tony Nutz BS, 
  • Pages: 1-3
  • First Published: 16 February 2022

REVIEW ARTICLES

Open Access

Towards conceptual convergence: A systematic review of psychological resilience in family caregivers of persons living with chronic neurological conditions

Odessa McKenna MSc,  Afolasade Fakolade PhD,  Katherine Cardwell BHSc,  Nigèle Langlois MLIS,  Karen Jiang BHSc,  Lara A. Pilutti PhD, 
  • Pages: 4-37
  • First Published: 22 October 2021
Open Access

Pragmatism as a paradigm for patient-oriented research

Brooke Allemang MSW, RSW,  Kathleen Sitter PhD, RSW,  Gina Dimitropoulos MSW, PhD, RSW, RMFT, 
  • Pages: 38-47
  • First Published: 08 November 2021
Open Access

Barriers and facilitators to hepatitis C screening and treatment for people with lived experience of homelessness: A mixed-methods systematic review

Martha Paisi PhD,  Neeltje Crombag PhD,  Lorna Burns MSc,  Annick Bogaerts PhD,  Lyndsey Withers PhD,  Laura Bates BSc,  Daniel Crowley,  Robert Witton MPH,  Jill Shawe PhD, 
  • Pages: 48-60
  • First Published: 03 December 2021
Open Access

Conceptualisations of positive mental health and wellbeing among children and adolescents in low- and middle-income countries: A systematic review and narrative synthesis

Laoise Renwick RMN, BNS, PhD,  Rebecca Pedley BSc (Hons), PhD,  Isobel Johnson BA (Hons),  Vicky Bell BA(Hons),  Karina Lovell BA, MSc, PhD,  Penny Bee BSc (Hons), GIBiol, PhD,  Helen Brooks BSc, MRes, PhD, 
  • Pages: 61-79
  • First Published: 14 December 2021

ORIGINAL ARTICLES

Open Access

It takes three to tango: An ethnography of triadic involvement of residents, families and nurses in long-term dementia care

Luzan Koster MSc,  Henk Nies Prof, Dr, 
  • Pages: 80-90
  • First Published: 20 July 2021
Open Access

‘A life I can cope with’. An alternative model of cognitive behavioural therapy (CBT) for CFS/ME

Dr. Catherine Clark DClinPsy,  Dr. Sue Holttum PhD, AFBPsS, 
  • Pages: 91-102
  • First Published: 02 September 2021

Participatory codesign of patient involvement in a Learning Health System: How can data-driven care be patient-driven care?

Sarah E. Knowles,  Dawn Allen,  Ailsa Donnelly,  Jackie Flynn,  Kay Gallacher,  Annmarie Lewis,  Grace McCorkle,  Manoj Mistry,  Pat Walkington,  Lisa Brunton, 
  • Pages: 103-115
  • First Published: 20 October 2021

The perspectives of survivors of Hodgkin lymphoma on lung cancer screening: A qualitative study

Dr Rachel Broadbent MBBCh,  Dr Louise Gorman PhD,  Professor Christopher J. Armitage PhD,  Professor John Radford MD,  Dr Kim Linton PhD, 
  • Pages: 116-124
  • First Published: 09 November 2021
Open Access

Participation preferences of health service users in health care decision-making regarding rehabilitative care in Germany—A cross-sectional study

Lisa A. Baumann MA,  Anna L. Brütt PhD, 
  • Pages: 125-137
  • First Published: 14 September 2021
Open Access

Patients as team members: Factors affecting involvement in treatment decisions from the perspective of patients with a chronic condition

Martina Buljac-Samardzic PhD,  Mark A. Clark PhD,  N. Job. A. van Exel,  Jeroen D. H. van Wijngaarden PhD, 
  • Pages: 138-148
  • First Published: 01 October 2021
Open Access

An outbreak of appreciation: A discursive analysis of tweets of gratitude expressed to the National Health Service at the outset of the COVID-19 pandemic

Giskin Day MSc, MA,  Glenn Robert PhD,  Kathleen Leedham-Green MA,  Anne Marie Rafferty PhD, 
  • Pages: 149-162
  • First Published: 20 September 2021
Open Access

Insights into how Malaysian adults with limited health literacy self-manage and live with asthma: A Photovoice qualitative study

Hani Salim MMed(Family Medicine),  Ingrid Young PhD,  Ping Yein Lee MMed(Family Medicine),  Sazlina Shariff-Ghazali PhD,  Hilary Pinnock MD,  RESPIRE collaboration , 
  • Pages: 163-176
  • First Published: 12 September 2021
Open Access

Perspectives of patients with depression and chronic pain about bone health after a fragility fracture: A qualitative study

Joanna E. M. Sale PhD,  Monique Gignac PhD,  Lucy Frankel BA,  Stephen Thielke MD,  Earl Bogoch MD,  Victoria Elliot-Gibson MSc,  Gillian Hawker MD, MSc,  Larry Funnell, 
  • Pages: 177-190
  • First Published: 27 September 2021
Open Access

The impact of Patient and Public Involvement in the SlowMo study: Reflections on peer innovation

Kathryn Greenwood PhD,  Sam Robertson PhD,  Evelin Vogel MSc,  Claire Vella MSc,  Thomas Ward PhD,  Alison McGourty DPsych,  Cat Sacadura PsyD,  Amy Hardy PhD,  Mar Rus-Calafell PhD,  Nicola Collett DClinPsy,  Richard Emsley PhD,  Daniel Freeman PhD,  David Fowler MSc,  Elizabeth Kuipers PhD,  Paul Bebbington PhD,  Graham Dunn PhD,  Philippa Garety PhD,  the SlowMo Patient and Public Involvement (PPI) team , 
  • Pages: 191-202
  • First Published: 28 September 2021
Open Access

Healthcare needs, experiences and treatment burden in primary care patients with multimorbidity: An evaluation of process of care from patients' perspectives

Xiu-Jing Hu MMed,  Harry H. X. Wang PhD,  Yu-Ting Li MPH,  Xiao-Ya Wu MPH,  Yi Wang MMed,  Jia-Heng Chen BMed,  Jia-Ji Wang MPH,  Samuel Y. S. Wong MD,  Stewart W. Mercer PhD, 
  • Pages: 203-213
  • First Published: 28 September 2021
Open Access

Experiences of and attitudes to lifestyle modification for the management of multiple sclerosis: A qualitative analysis of free-text survey data

Sandra L. Neate MBBS, Senior Research Fellow,  Angela Donald MPH student,  George A. Jelinek MD,  Nupur Nag PhD, Senior Research Fellow, 
  • Pages: 214-222
  • First Published: 02 October 2021
Open Access

Patient-reported symptoms and experience following Guillain-Barré syndrome and related conditions: Questionnaire development and validation

Aloysius Niroshan Siriwardena MMedSci, PhD, FRCGP,  Joseph N. A. Akanuwe MMedSci, MPH, PhD,  Vanessa Botan PhD,  Despina Laparidou BSc, MSc,  Ffion Curtis PhD,  Jennifer Jackson BA, PhD,  Zahid B. Asghar PhD,  Timothy L. Hodgson PhD, 
  • Pages: 223-231
  • First Published: 01 October 2021
Open Access

Development of a patient decision aid for patients with breast cancer who consider immediate breast reconstruction after mastectomy

Jacqueline A. ter Stege PhD Student, MSc,  Daniela B. Raphael PhD Student, MD,  Hester S. A. Oldenburg MD, PhD,  Martine A. van Huizum MD,  Frederieke H. van Duijnhoven MD, PhD,  Daniela E. E. Hahn MSc,  Regina The Ir,  Klemens Karssen Ir,  Eveline M. L. Corten MD, PhD,  Irene S. Krabbe-Timmerman MD,  Menno Huikeshoven MD, PhD,  Quinten (P. Q.) Ruhé MD, PhD,  Nikola (A. N.) Kimmings MD, PhD,  Wies Maarse MD, PhD,  Kerry A. Sherman PhD,  Arjen J. Witkamp MD, PhD,  Leonie A. E. Woerdeman MD, PhD,  Eveline M. A. Bleiker PhD, 
  • Pages: 232-244
  • First Published: 28 October 2021
Open Access

Young adults' healthcare utilisation and healthcare needs: Perceptions and experiences of healthcare providers

Lisa Viktorsson Doctorial student, MSc,  Eva Törnvall RN, DN, PhD,  Magnus Falk MD,  Ingrid Wåhlin CCRN, PhD,  Pia Yngman-Uhlin RN, 
  • Pages: 245-253
  • First Published: 08 October 2021
Open Access

Identifying local barriers to access to healthcare services in Chile using a communitarian approach

Alicia Núñez PhD,  Carlos A. Manzano PhD, 
  • Pages: 254-263
  • First Published: 08 October 2021
Open Access

Patients at the centre after a health care incident: A scoping review of hospital strategies targeting communication and nonmaterial restoration

Rachel I. Dijkstra LLM, PhD Candidate,  Ruud T. J. Roodbeen PhD,  Renée J. R. Bouwman PhD,  Antony Pemberton PhD,  Roland Friele PhD, 
  • Pages: 264-275
  • First Published: 20 December 2021
Open Access

Tailored patient therapeutic educational interventions: A patient-centred communication model

Laetitia Ricci LR, PhD,  Julie Villegente JV, MSc,  Déborah Loyal DL, PhD,  Carole Ayav CA, MD, MSc,  Joëlle Kivits JK, PhD,  Anne-Christine Rat ACR, MD, PhD, 
  • Pages: 276-289
  • First Published: 24 November 2021
Open Access

How do consumers respond when presented with novel doctor performance information? A multivariate regression analysis

Michelle B. Hanson MPH, PhD, 
  • Pages: 290-303
  • First Published: 01 December 2021
Open Access

How to build a game for empirical bioethics research: The case of ‘Tracing Tomorrow’

David M. Lyreskog PhD,  Gabriela Pavarini PhD,  Jessica Lorimer MSc, PhD Candidate,  Edward Jacobs MSc, PhD Candidate,  Vanessa Bennett MSc,  Ilina Singh PhD, 
  • Pages: 304-312
  • First Published: 29 October 2021
Open Access

Qualitative investigation of factors impacting pre-exposure prophylaxis initiation and adherence in sexual minority men

Marcus Alt PhD,  Paul Rotert DO, MPH,  Kate Conover PhD,  Sarah Dashwood MD,  Andrew T. Schramm PhD, 
  • Pages: 313-321
  • First Published: 14 December 2021
Open Access

Involvement of adolescent representatives and coresearchers in mental health research: Experiences from a research project

Petter Viksveen PhD,  Nicole E. Cardenas MA,  Maya Ibenfeldt BSc,  Laia G. Meldahl BA Psychology,  Lou Krijger BSc,  Julia R. Game,  Maren McLean Andvik BSc,  Oliver Cuddeford BA,  Samuel Duerto BA Philosophy,  Murad Mustafa BN,  Mathias Tong BE (Hons), 
  • Pages: 322-332
  • First Published: 10 November 2021
Open Access

Viewpoints among experts and the public in the Netherlands on including a lifestyle criterion in the healthcare priority setting

Charlotte M. Dieteren MSc,  Vivian T. Reckers-Droog,  Sara Schrama MSc,  Dynothra de Boer MSc,  Job van Exel, 
  • Pages: 333-344
  • First Published: 29 November 2021
Open Access

Part of the solution: A survey of community organisation perspectives on barriers and facilitating actions to Advance Care Planning in British Columbia, Canada

Ellie G. Siden BA,  Rachel Z. Carter PhD,  Doris Barwich MD,  Eman Hassan MD, 
  • Pages: 345-354
  • First Published: 14 December 2021
Open Access

‘I just thought that it was such an impossible thing’: A qualitative study of barriers and facilitators to discontinuing long-term use of benzodiazepine receptor agonists using the Theoretical Domains Framework

Tom Lynch MPharm,  Cristín Ryan PhD,  Cathal A. Cadogan PhD, 
  • Pages: 355-365
  • First Published: 03 December 2021
Open Access

Development and field testing of a decision aid to facilitate shared decision making for adults newly diagnosed with attention-deficit hyperactivity disorder

Yumi Aoki,  Takashi Tsuboi,  Yoshikazu Takaesu,  Koichiro Watanabe,  Kazuhiro Nakayama,  Yasuhito Kinoshita,  Mami Kayama, 
  • Pages: 366-373
  • First Published: 02 December 2021
Open Access

Views of healthcare consumer representatives on defensive practice: ‘We are your biggest advocate and supporter… not the enemy’

Nola M. Ries PhD, LLM, MPA, JD, BA (Hons),  Briony Johnston BComm/BLaws (Hons), PhD candidate,  Jesse Jansen PhD, MA, 
  • Pages: 374-383
  • First Published: 03 December 2021
Open Access

How paediatric departments in Sweden facilitate giving children a voice on their experiences of healthcare: A cross-sectional study

Anna Nordlind RN, MN, Doctoral Student,  Ann-Sofie Sundqvist RNA, PhD,  Agneta Anderzén-Carlsson RN, PhD,  Ann-Charlotte Almblad RN, PhD,  Karin Ängeby RNM, PhD, 
  • Pages: 384-393
  • First Published: 02 December 2021
Open Access

Swallowing the pill of adverse effects: A qualitative study of patients' and pharmacists' experiences and decision-making regarding the adverse effects of chronic pain medications

Lise Dassieu PhD,  Emilie Paul-Savoie PhD,  Élise Develay MSc,  Ana Cecilia Villela Guilhon PhD(c),  Anaïs Lacasse PhD,  Line Guénette BPharm, PhD,  Kadija Perreault PhD,  Hélène Beaudry PhD,  Laurent Dupuis,  the Quebec Consortium on Adverse Effects of Pain Medications , 
  • Pages: 394-407
  • First Published: 21 December 2021
Open Access

Engaging veteran stakeholders to identify patient-centred research priorities for optimizing implementation of lung cancer screening

Alice Yan MD, PhD,  Katinka Hooyer PhD, MS,  Onur Asan PhD, MS,  Mark Flower,  Jeff Whittle MD, MPH, 
  • Pages: 408-418
  • First Published: 10 December 2021
Open Access

The relative importance of information items and preferred mode of delivery when disseminating results from trials to participants: A mixed-methods study

Jessica Wood MPH,  Seonaidh C. Cotton PhD,  Katie Gillies PhD, 
  • Pages: 419-429
  • First Published: 08 December 2021
Open Access

A framework for involving coproduction partners in research about young people with type 1 diabetes

Jane Desborough,  Anne Parkinson,  Fiona Lewis BABiol (Hons),  Harry Ebbeck,  Michelle Banfield,  Christine Phillips, 
  • Pages: 430-442
  • First Published: 10 December 2021
Open Access

The lived experience of a novel disruptive therapy in a group of men and boys with haemophilia A with inhibitors: Emi & Me

Simon Fletcher MA, BA (Hons), Dip N RGN,  Kathryn Jenner MA,  Michael Holland BSc,  Kate Khair PhD, 
  • Pages: 443-454
  • First Published: 08 December 2021
Open Access

Adolescents encouraging healthy lifestyles through a peer-led social marketing intervention: Training and key competencies learned by peer leaders

Elisabet Llauradó PhD,  Magaly Aceves-Martins PhD,  Jordi Prades-Tena PhD,  Maria Besora-Moreno MSc, PhD Student,  Ignasi Papell-Garcia MSc,  Montse Giralt MD, PhD,  Amy Davies MSc,  Lucia Tarro PhD,  Rosa Solà MD, PhD, 
  • Pages: 455-465
  • First Published: 22 December 2021
Open Access

‘You have to do what is best’: The lived reality of having a child who is repeatedly hospitalized because of acute lower respiratory infection

Karen McBride-Henry RN, PhD,  Charissa Miller RN, MN,  Adrian Trenholm FRACP, MA MB BChir,  Tara N. Officer RegPharmNZ, BPharm, DPH, PhD, 
  • Pages: 466-475
  • First Published: 20 December 2021