• Issue

    Health Expectations: Volume 23, Issue 5

    i, 1-1386
    October 2020
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COVER IMAGE

Free Access

Cover image

  • Page: i
  • First Published: 28 November 2020
Cover image

The cover image is based on the Review Article ‘It struck at the heart of who I thought I was’: A meta-synthesis of the qualitative literature examining the experiences of people with multiple sclerosisby Jane Desborough et al., https://doi.org/10.1111/hex.13093 Cover Credit: Dr. Erin Walsh.

ISSUE INFORMATION

Free Access

Issue Information

  • Pages: 1-4
  • First Published: 28 November 2020

EDITORIAL

Open Access

Relationships and Communication—the core components of person-centred care

Kerry Kuluski MSW, PhD, 
  • Pages: 977-978
  • First Published: 28 November 2020

REVIEW ARTICLES

Open Access

Scoping review of patients’ attitudes about their role and behaviours to ensure safe care at the direct care level

Lenora Duhn RN, PhD,  Christina Godfrey RN, PhD,  Jennifer Medves RN, PhD, 
  • Pages: 979-991
  • First Published: 05 August 2020
Open Access

Priorities of patients, caregivers and health-care professionals for health research – A systematic review

Michael Levelink MA, MEd,  Mona Voigt-Barbarowicz MA,  Anna Levke Brütt PhD, 
  • Pages: 992-1006
  • First Published: 09 July 2020
Open Access

‘It struck at the heart of who I thought I was’: A meta-synthesis of the qualitative literature examining the experiences of people with multiple sclerosis

Jane Desborough,  Crystal Brunoro MS,  Anne Parkinson,  Katrina Chisholm,  Mark Elisha,  Janet Drew,  Vanessa Fanning,  Christian Lueck,  Anne Bruestle,  Matthew Cook,  Hanna Suominen,  Antonio Tricoli,  Adam Henschke,  Christine Phillips, 
  • Pages: 1007-1027
  • First Published: 24 June 2020
Open Access

How to identify, incorporate and report patient preferences in clinical guidelines: A scoping review

Claire Kim,  Melissa J. Armstrong,  Whitney B. Berta,  Anna R. Gagliardi, 
  • Pages: 1028-1036
  • First Published: 12 July 2020
Open Access

Covering patient’s perspective in case-based critical review articles to improve shared decision making in complex cases

Louis-Rachid Salmi,  Pierre Côté,  Christine Cedraschi, 
  • Pages: 1037-1044
  • First Published: 23 July 2020
Open Access

Shared decision making in breast cancer treatment guidelines: Development of a quality assessment tool and a systematic review

Marta Maes-Carballo,  Isabel Muñoz-Núñez,  Manuel Martín-Díaz,  Luciano Mignini,  Aurora Bueno-Cavanillas,  Khalid Saeed Khan, 
  • Pages: 1045-1064
  • First Published: 03 August 2020

ORIGINAL RESEARCH PAPERS

Open Access

Stakeholders’ perspectives on models of care in the emergency department and the introduction of health and social care professional teams: A qualitative analysis using World Cafés and interviews

Marica Cassarino PhD,  Rosie Quinn FSOM,  Fiona Boland PhD,  Marie E. Ward PhD,  Rosa McNamara FRCEM,  Margaret O’Connor FRCPI,  Gerard McCarthy FRCEM,  Damien Ryan FRCSEd(A, E),  Rose Galvin PhD,  Katie Robinson PhD, 
  • Pages: 1065-1073
  • First Published: 25 August 2020
Open Access

Perspectives on public involvement in health research from Singapore: The potential of a supported group model of involvement

Lidia Luna Puerta BEng, Msc, Msc (Research),  Bernadette Bartlam RGN,RCSN, TLHE Cert., MA, PhD,  Hsiao-Li Shirley Sun PhD,  Helen E. Smith BMedSci, BMBS, MSc, DM, MRCGP, FFPHM, 
  • Pages: 1074-1085
  • First Published: 10 June 2020
Open Access

A qualitative exploration of oral health care among stroke survivors living in the community

Lucy O'Malley PhD, MA, BA (Hons),  Rachael Powell PhD, MSc, BSc (Hons),  Sharon Hulme BSc (Hons),  Matthew Lievesley MBA, BA (Hons),  Wendy Westoby DMS,  Jess Zadik PGCert, PGCE, BA (Hons),  Audrey Bowen PhD, MSc, BA,  Paul Brocklehurst FDS RCS (Eng), PhD, MDPH, FFGDP, MFGDP , BSc (Hons), BDS,  Craig J. Smith MD MRCP, MBCHB, BSc (Hons), 
  • Pages: 1086-1095
  • First Published: 19 June 2020
Open Access

Interdisciplinary communication and collaboration as key to improved nutritional care of malnourished older adults across health-care settings – A qualitative study

Marije H. Verwijs MSc,  Saskia Puijk-Hekman MSc,  Ellen van der Heijden RD,  Emmelyne Vasse RD, PhD,  Lisette C. P. G. M. de Groot PhD,  Marian A. E. de van der Schueren RD, PhD, 
  • Pages: 1096-1107
  • First Published: 11 June 2020
Open Access

Enabling ‘citizen voice’ in the English health and social care system: A national survey of the organizational structures, relationships and impacts of local Healthwatch in England

Giulia Zoccatelli PhD, MSc, BA,  Amit Desai PhD, MSc, LLB,  Graham Martin PhD, MSc, MA,  Sally Brearley MA, BSc, AKC,  Trevor Murrels MSc, BSc,  Glenn Robert PhD, MSc, BA, 
  • Pages: 1108-1117
  • First Published: 07 July 2020
Open Access

Living with opioids: A qualitative study with patients with chronic low back pain

Helena De Sola MSc,  Amaia Maquibar PhD,  Inmaculada Failde PhD,  Alejandro Salazar PhD,  Isabel Goicolea PhD, 
  • Pages: 1118-1128
  • First Published: 18 June 2020
Open Access

Patient enablement after a consultation with a general practitioner—Explaining variation between countries, practices and patients

Elina Tolvanen MD,  Peter P. Groenewegen PhD,  Tuomas H. Koskela MD, PhD,  Torunn Bjerve Eide MD, PhD,  Christine Cohidon MD, PhD,  Elise Kosunen MD, PhD, 
  • Pages: 1129-1143
  • First Published: 29 June 2020
Open Access

The challenges of caring for children who require complex medical care at home: ‘The go between for everyone is the parent and as the parent that’s an awful lot of responsibility’

Bethan F. Page MSc,  Lisa Hinton PhD,  Emily Harrop PhD,  Charles Vincent PhD, 
  • Pages: 1144-1154
  • First Published: 16 June 2020
Open Access

An alternate level of care plan: Co-designing components of an intervention with patients, caregivers and providers to address delayed hospital discharge challenges

Kerry Kuluski MSW, PhD,  Julia W Ho PhD Candidate,  Lauren Cadel MSc,  Sara Shearkhani PhD Candidate,  Charissa Levy MHSc, BScOT, OT,  Michelle Marcinow PhD,  Allie Peckham MSW, PhD,  Jane Sandercock MSc, OT reg (ON),  Donald J Willison ScD,  Sara JT Guilcher PT, PhD, 
  • Pages: 1155-1165
  • First Published: 30 June 2020
Open Access

Health literacy experiences of multi-ethnic patients and their health-care providers in the management of type 2 diabetes in Malaysia: A qualitative study

Adina Abdullah MMed (Fam Med),  Su May Liew PhD,  Chirk Jenn Ng PhD,  Subashini Ambigapathy MMed (Fam Med),  P. Vengadasalam V. Paranthaman MMed (Fam Med), 
  • Pages: 1166-1176
  • First Published: 19 July 2020
Open Access

Evaluation of a research awareness training programme to support research involvement of older people with dementia and their care partners

Jahanara Miah SENSE-cog,  Piers Dawes PhD,  Iracema Leroi MD,  Bella Starling PhD,  Karina Lovell PhD,  Owen Price,  Andrew Grundy,  Suzanne Parsons MPH, 
  • Pages: 1177-1190
  • First Published: 18 August 2020
Open Access

Facilitating personal development for public involvement in health-care education and research: A co-produced pilot study in one UK higher education institute

Sue Read PhD,  Alison M. Aries PhD,  Sue M. Ashby PhD,  Val Bambrick,  Steven J. Blackburn PhD,  Helen Clifford MA,  Carol Rhodes,  Sarah Thirlwall BA(Hons),  Carole A. Watkins MSc, 
  • Pages: 1191-1201
  • First Published: 24 July 2020
Open Access

Why don't patients seek help for chronic post-surgical pain after knee replacement? A qualitative investigation

Andrew J. Moore,  Rachael Gooberman-Hill, 
  • Pages: 1202-1212
  • First Published: 09 July 2020
Open Access

Priority measures for publicly reporting primary care performance: Results of public engagement through deliberative dialogues in 3 Canadian provinces

Morgan Slater PhD,  Julia Abelson PhD,  Sabrina T. Wong RN, PhD,  Julia M. Langton PhD,  Fred Burge MSc, MD, CCFP,  William Hogg MSc, MD, CCFP,  Matthew Hogel PhD,  Ruth Martin-Misener NP, PhD,  Sharon Johnston MD, LLM, CCFP, 
  • Pages: 1213-1223
  • First Published: 03 August 2020
Open Access

The impact of prenatal counselling on mothers of surviving children with hypoplastic left heart syndrome: A qualitative interview study

Sophie Bertaud MBBS, MA,  David F. A. Lloyd PhD,  Gurleen Sharland MD,  Reza Razavi MD,  Myra Bluebond-Langner PhD, 
  • Pages: 1224-1230
  • First Published: 15 July 2020
Open Access

Reluctant educators and self-advocates: Older trans adults’ experiences of health-care services and practitioners in seeking gender-affirming services

Paul Willis PhD,  Christine Dobbs PhD,  Elizabeth Evans PhD,  Michele Raithby PhD, MSc,  Jenny-Anne Bishop BSc (Hons), 
  • Pages: 1231-1240
  • First Published: 16 July 2020
Open Access

Shared decision making in surgery: A scoping review of the literature

Kacper Niburski,  Elena Guadagno,  Sadaf Mohtashami,  Dan Poenaru, 
  • Pages: 1241-1249
  • First Published: 22 July 2020
Open Access

Revisiting patient expectations and experiences of antibiotics in an era of antimicrobial resistance: Qualitative study

Olga Boiko PhD,  Martin C. Gulliford MA, FFPH,  Caroline Burgess PhD, 
  • Pages: 1250-1258
  • First Published: 14 July 2020
Open Access

‘As soon as you've been there, it makes it personal’: The experience of health-care staff shadowing patients at the end of life

Joanna Goodrich,  Damien Ridge,  Tina Cartwright, 
  • Pages: 1259-1268
  • First Published: 19 July 2020
Open Access

Is it worth it?: The experiences of persons with multiple sclerosis as they access health care to manage their condition

Julie Pétrin MSc,  Catherine Donnelly PhD, MSc, BSc,  Mary-Ann McColl PhD, MTS, MHSc, BSc,  Marcia Finlayson PhD, OT Reg (Ont), OTR, 
  • Pages: 1269-1279
  • First Published: 22 July 2020
Open Access

Physician behaviours that optimize patient-centred care: Focus groups with migrant women

Anna R. Gagliardi PhD,  Claire Kim MSc,  Bismah Jameel BSc, 
  • Pages: 1280-1288
  • First Published: 24 July 2020
Open Access

Evaluation of a community dental clinic providing care to people experiencing homelessness: A mixed methods approach

Martha Paisi PhD, MMedSci, MSc,  Rebecca Baines MSc, BSc,  Christina Worle BDS, BSc,  Lyndsey Withers PhD, BSc,  Robert Witton MPH, BDS, 
  • Pages: 1289-1299
  • First Published: 05 August 2020
Open Access

Patients' expectations and experiences of stem cell therapy for the treatment of knee osteoarthritis

Lucinda Kenihan,  Lauren McTier,  Nicole M. Phillips, 
  • Pages: 1300-1309
  • First Published: 14 August 2020
Open Access

Adaptation and qualitative evaluation of Ask 3 Questions — a simple and generic intervention to foster patient empowerment

Anja Lindig,  Pola Hahlweg,  Wiebke Frerichs,  Cheyenne Topf,  Martin Reemts,  Isabelle Scholl, 
  • Pages: 1310-1325
  • First Published: 01 August 2020
Open Access

Policy and practice suggestions to improve performance on the UNAIDS 90-90-90 targets: Results from a nominal group technique with HIV experts in Southwest Ethiopia

Hailay Abrha Gesesew PhD,  Paul Ward PhD,  Kifle Woldemichael MPH,  Pamela Lyon PhD,  Lillian Mwanri PhD, 
  • Pages: 1326-1337
  • First Published: 05 August 2020
Open Access

Exploring the experiences of having Guillain-Barré Syndrome: A qualitative interview study

Joseph N. A. Akanuwe MMedSci, MPH, PhD,  Despina Laparidou BSc, MSc,  Ffion Curtis PhD,  Jennifer Jackson BA, PhD,  Timothy L. Hodgson PhD,  Aloysius Niroshan Siriwardena MMedSci, PhD, FRCGP, 
  • Pages: 1338-1349
  • First Published: 03 August 2020
Open Access

Muscle strengthening intervention for boys with haemophilia: Developing and evaluating a best-practice exercise programme with boys, families and health-care professionals

Ferhana Hashem PhD, MA, BA,  David Stephensen PhD, MSc, BSc,  Wendy I. Drechsler PhD, BSc,  Melanie Bladen MSc, BSc,  Liz Carroll MSc,  Pellatt-Higgins Tracy MSc, BSc,  Eirini-Christina Saloniki PhD, MSc, Dip Economics, BSc, 
  • Pages: 1350-1361
  • First Published: 17 August 2020
Open Access

A national research centre for the evaluation and implementation of person-centred care: Content from the first interventional studies

Hanna Gyllensten PhD,  Ida Björkman PhD,  Eva Jakobsson Ung PhD,  Inger Ekman PhD,  Sofie Jakobsson PhD, 
  • Pages: 1362-1375
  • First Published: 18 August 2020
Open Access

Beneficial self-management support and user involvement in Healthy Life Centres—A qualitative interview study in persons afflicted by overweight or obesity

Elin Salemonsen RPHN, MSc, PhD,  Georg Førland RN, MSc, PhD,  Britt Sætre Hansen RPHN, CCN, MSc, PhD,  Anne Lise Holm RPN, MSc, PhD, 
  • Pages: 1376-1386
  • First Published: 30 August 2020