Volume 18, Issue 8 pp. 794-802
Review Article

An empirically based practice perspective on the transition to adulthood for solid organ transplant recipients

Rachel A. Annunziato

Corresponding Author

Rachel A. Annunziato

Fordham University, Bronx, NY, USA

Rachel A. Annunziato, PhD, Fordham University, 441 E. Fordham Road, Bronx 10458, NY, USA

Tel.: 718-817-3796

Fax: 718-817-3785

E-mail: [email protected]

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Dawn Freiberger

Dawn Freiberger

Boston Children's Hospital, Boston, MA, USA

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Kathy Martin

Kathy Martin

The Hospital for Sick Children, Toronto, Ontario, Canada

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Jacqueline Helcer

Jacqueline Helcer

Fordham University, Bronx, NY, USA

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Christopher Fitzgerald

Christopher Fitzgerald

The Children's Hospital of Philadelphia, Philadelphia, PA, USA

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Debra S. Lefkowitz

Debra S. Lefkowitz

The Children's Hospital of Philadelphia, Philadelphia, PA, USA

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First published: 16 September 2014
Citations: 17

Abstract

Preparing patients for transitioning to self-managed care and subsequently transferring to the adult healthcare system has become a critical process for clinicians working with pediatric transplant recipients. This paper reviews several barriers to a successful transition. These include patient barriers, caregiver barriers, and considerations within pediatric and adult centers. To date, few approaches for improving the transition process have been empirically tested. This review details studies that have examined possible models including usage of a transition coordinator and transition clinics. Recommendations are offered to promote an optimal transition including the importance and content of preparation, assessing and addressing transition readiness, insuring the involvement of all stakeholders, and finally, at minimum providing services during the transfer period. Future directions are offered aiming to advance this important area of investigation.

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