Carers and the missing link: changing professional attitudes
Corresponding Author
Richard Olsen BA, PhD, MA
Nuffield Community Care Studies Unit, Leicester University, Leicester
Richard Olsen Nuffield Community Care Studies Unit Leicester University 22–28 Princess Road West Leicester LE1 6TP UKSearch for more papers by this authorGillian Parker BA, PhD
Nuffield Community Care Studies Unit, Leicester University, Leicester
Search for more papers by this authorAlison Drewett BA, MA
Nuffield Community Care Studies Unit, Leicester University, Leicester
Search for more papers by this authorCorresponding Author
Richard Olsen BA, PhD, MA
Nuffield Community Care Studies Unit, Leicester University, Leicester
Richard Olsen Nuffield Community Care Studies Unit Leicester University 22–28 Princess Road West Leicester LE1 6TP UKSearch for more papers by this authorGillian Parker BA, PhD
Nuffield Community Care Studies Unit, Leicester University, Leicester
Search for more papers by this authorAlison Drewett BA, MA
Nuffield Community Care Studies Unit, Leicester University, Leicester
Search for more papers by this authorAbstract
The involvement of users and carers in service planning represents a central plank of reforms in social care, but clear guidance as to what this involvement should entail is absent from the legislation, leaving authorities to develop local involvement strategies. This paper is based on a project mapping the development of services for carers, carried out in the spring of 1994. We argue that the involvement of carers in planning processes at strategic levels will not guarantee changes in practice at lower levels. We discuss weaknesses in the existing literature regarding user and carer involvement, and suggest ways in which opportunities for ‘micro-level’ consultation can be developed.
References
- Atkinson J.M. & Elliott L. (1994) Evaluation and consumers. In M. Titterton (Ed) Caring for People in the Community: the New Welfare. Jessica Kingsley Publishers, London .
- Baldock J. & Ungerson C. (1994) A consumer view of the new ‘care in the community’: homecare experiences of a sample of stroke survivors and their carers. Care in Place 1, 175–187.
- Barnes M. & Wistow G. (1993) Birmingham Community Care Special Action Project: Summary and Overview, Final Report No. 7, Nuffield Institute for Health, Leeds .
- Barnes M. & Wistow G. (1994) Achieving a strategy for user involvement in community care. Health and Social Care in the Community 2, 347–356.
- Beresford P. (1988) Consumer views: data collection or democracy? In I. Allen (Ed) Hearing the Voice of the Consumer. Policy Studies Institute, London .
- Bewley C. & Glendinning C. (1994a) The right remit. Community Care 7 April, 26–28.
- Bewley C. & Glendinning C. (1994b) Involving Disabled People in Community Care Planning. Joseph Rowntree Foundation, York .
- Birmingham City Council (1991) Carers' Consultation Programme, Fourth Round 1991: Report of Consultations with African-Caribbean Carers. BCC, Birmingham .
- Birmingham City Council (1992) Carers' Consultation Programme, Fourth Round 1991–2: Report of Consultations with Asian and Chinese Carers. BCC, Birmingham .
- Coote A. (1995) Voices Off: Tackling the Democratic Deficit in Health, IPPR, London .
- Department of Health (1990) Community Care in the Next Decade and Beyond (Policy Guidance). HMSO, London .
- Department of Health/Social Services Inspectorate (Department of Health SSI) (1991) Care Management and Assessment: Practitioners' Guide. HSMO, London .
- Department of Health (1995) What Next for Carers? Findings From an SSI Project. Wetherby , Department of Health.
- Drewett A., Olsen R. & Parker G. (1994) Community Care and Informal Carers. Working paper SS19 5/94 ADROGP, Nuffield Community Care Studies Unit, Leicester .
- Griffiths K. (1992) The silent minority. Carelink Spring, 3.
- Haffenden S. (1991) Getting it Right for Carers: Setting up Services for Carers - a Guide for Practitioners. HMSO, London .
- Hoyes L. & Means R. (1994) Open plan. Health Service Journal 4 August, 23.
- Hoyes L., Lart R., Means R. & Taylor M. (1994) Community Care in Transition. Joseph Rowntree Foundation, York .
- Hudson B. (1992) Community care planning: incrementalism to rationalism Social Policy and Administration 26, 185–200.
- Jones A. (1988) Collaboration with consumers: learning to listen, In I. Allen (Ed) Hearing the Voice of the Consumer. Policy Studies Institute, London .
- Lewis J. & Meredith B. (1988) Daughters Who Care: Daughters Caring for Mothers at Home. Routledge, London .
- Lipsky M. (1980) Street-level Bureaucracy: Dilemmas of the Individual in Public Services. Russell Sage Foundation, New York .
- McEwen E. (1992) The consumer's perception of need. In Long-term Care for Elderly People: Purchasing, Providing and Quality. HMSO, London .
- Myers F. & MacDonald C. (1996) Power to the people? Involving users and carers in needs assessments and care planning - views from the practitioner. Health and Social Care in the Community 4 (2), 86–95.
- Naish J., Benaim R. & Blunden R. (1994) The Hackney/Newham GP/Carers' Project - Working with General Practice for Carers: Progress Report. Queen Mary Westfield College, London .
- Office for Public Management (1993) From Margin to Mainstream: User and Carer Involvement in Community Care. London .
- Philpot T. (1994) Getting involved. Search Summer, 24–25.
-
Richards S. (1992) Changing patterns of legitimation in public management.
Public Policy and Administration
7, 15–28.
10.1177/095207679200700302 Google Scholar
- Richardson A., Unell J. & Aston B. (1989) A New Deal for Carers. King's Fund Centre, London .
- Thornton P. & Tozer R. (1994) Involving Older People in Planning and Evaluating Community Care: A Review of Initiatives. Social Policy Research Unit, York .
- Twigg J. (1989) Models of carers: how do social care agencies conceptualise their relationship with informal carers Journal of Social Policy 18, 53–66.
- Twigg J. & Atkin K. (1994) Carers Perceived: Policy and Practice in Informal Care. Open University Press, Buckingham .
- Wistow G. & Barnes M. (1993) User involvement in community care: origins, purposes and applications. Public Administration 71, 279–299.
- Wolfensburger W. & Thomas S. (1994) Obstacles in the professional human service culture to implementation of social role valorization and community integration of clients. Care in Place 1, 53–56.