The use of videophones for patient and family participation in hospice interdisciplinary team meetings: a promising approach
Corresponding Author
D. PARKER OLIVER msw, phd, associate professor
Family and Community Medicine, University of Missouri, Columbia, MO
Debra Parker Oliver, Associate Professor, University of Missouri, Department of Family and Community Medicine, MA306, Columbia, MO 65212, USA (e-mail: [email protected]). Search for more papers by this authorG. DEMIRIS phd, associate professor
Biobehavioral Nursing and Health Systems, School of Nursing & Biomedical and Health Informatics, School of Medicine, University of Washington, Seattle, WA
Search for more papers by this authorE. WITTENBERG-LYLES phd, assistant professor
Department of Communication Studies, University of North Texas, Denton, TX, USA
Search for more papers by this authorD. POROCK phd, professor
University of Nottingham, School of Nursing, Nottingham, UK
Search for more papers by this authorCorresponding Author
D. PARKER OLIVER msw, phd, associate professor
Family and Community Medicine, University of Missouri, Columbia, MO
Debra Parker Oliver, Associate Professor, University of Missouri, Department of Family and Community Medicine, MA306, Columbia, MO 65212, USA (e-mail: [email protected]). Search for more papers by this authorG. DEMIRIS phd, associate professor
Biobehavioral Nursing and Health Systems, School of Nursing & Biomedical and Health Informatics, School of Medicine, University of Washington, Seattle, WA
Search for more papers by this authorE. WITTENBERG-LYLES phd, assistant professor
Department of Communication Studies, University of North Texas, Denton, TX, USA
Search for more papers by this authorD. POROCK phd, professor
University of Nottingham, School of Nursing, Nottingham, UK
Search for more papers by this authorAbstract
PARKER OLIVER P., DEMIRIS G., WITTENBERG-LYLES E. & POROCK D. (2010) European Journal of Cancer Care19, 729–735The use of videophones for patient and family participation in hospice interdisciplinary team meetings: a promising approach
Inclusion of patients and caregivers in decisions related to the delivery of care is inherent in the hospice philosophy. Telemedicine technologies offer a potential solution to the challenges presented by the geographic distance between team meetings and the home environment. While inclusion requires additional coordination by the hospice team, it also offers an important opportunity to improve communication between the team and the patient and family. A modified conceptual model based on two previous frameworks is outlined to support patient and family involvement in hospice team meetings. Further research is suggested to determine the structural feasibility of patient and family involvement via videophone as well as the structural and procedural changes resulting from this inclusion. Finally, clinical outcomes and family evaluation of the inclusion experience need to be thoroughly researched before final conclusions may be reached.
REFERENCES
- Abbas S.Q. & Abbas Z. (2003) Is opiate compliance a problem in cancer pain? A survey of health-care professionals' views. International Journal of Palliative Nursing 9, 56.
- Andrews J., Seaver E., Whiteley J. & Stevens G. (1998) Family members as participants on craniofacial teams. Infant-Toddler Intervention: The Transdisciplinary Journal 8, 127–134.
- Argyle M., Lalljee M. & Cook M. (1968) The effects of visibility on interaction in the dyad. Human Relations 28, 289–304.
- Austin C., Cody C.P., Eyres P.J., Hefferin E.A. & Krasnow R.W. (1986) Hospice home care pain management: four critical variables. Cancer Nursing 9, 58–65.
- Axford A.T., Askill C. & Jones A.J. (2002) Virtual multidisciplinary teams for cancer care. Journal of Telemedicine and Telecare 8, 3–4.
- Berry P.E. & Ward S.E. (1995) Barriers to pain management in hospice: a study of family caregivers. Hospice Journal 10, 19–33.
- Bronstein L.R. (2003) A model for interdisciplinary collaboration. Social Work 48, 297–306.
-
Broughton F. (2003) Conclusions: thoughts of a palliative care user. In: Patient participation in Palliative Care: A Voice for the VoiceLess (eds
B. Monroe &
D. Oliviere), pp.
196–201. Oxford University Press, Oxford, UK.
10.1093/acprof:oso/9780198515814.003.0015 Google Scholar
- Bruner C. (1991) Ten questions and answers to help policy makers improve children's services. Education and Human Services Consortium, Washington, DC.
- Clark H.H. & Brennan S.E. (1991) Grounding in communication. In: Perspectives on Socially Shared Cognition (eds L.B. Resnick, J.M. Levine & E. Al), pp. 127–149. US: American Psychological Association, Washington, USA.
- Clark H.H. & Schaefer E.F. (1989) Contributing to discourse. Cognitive Science 13, 259–294.
- Cook D.J., Doolittle G.C. & Whitten P.S. (2001) Administrator and provider perceptions of the factors relating to programme effectiveness in implementing telemedicine to provide end-of-life care. Journal of Telemedicine and Telecare 7, 17–19.
- Dansky K., Palmer L., Shea D. & Boles K. (2001) Cost-analysis of telehomecare. Telemedicine Journal 7, 225–232.
- Dansky K.H. & Bowles K.H. (2002) Lessons learned from a telehomecare project. Caring 21, 18–22.
- De Lusignan S., Wells S., Johnson P., Meredith K. & Leatham E. (2001) Compliance and effectiveness of 1 year's home telemonitoring. The report of a pilot study of patients with chronic heart failure. European Journal of Heart Failure 3, 723–730.
- Demiris G., Parker Oliver D., Porock D. & Courtney K.L. (2004) The Missouri telehospice project: background and next steps. Home Health Care Technology Report 1, 49–55.
- Demiris G., Parker Oliver D., Courtney K. & Day M. (2007) Use of Telehospice tools for senior caregivers: a pilot study. Clinical Gerontologist 31, 43–58.
- Doolittle G. (2000) A cost measurement study for a home-based telehospice service. Journal of Telemedicine and Telecare 6, S193–S195.
- Duncan S. (1972) Some signals and rules for taking speaker turns in conversation. Journal of Personality and Social Psychology 23, 283–292.
- Ekman P. & Friesen W. (1975) Unmasking the Face. Prentice Hall, Englewood Cliff, NJ, USA.
- Elsey B. & McIntyre J. (1996) Assessing a support and learning network for palliative care workers in a country area of South Australia. Australian Journal of Rural Health 4, 159–164.
- Fischer M.A., Schulz J.B. & Ogletree B.T. (1999) Future directions for families and professionals in interdisciplinary service delivery. In: Bridging The Family Professional Gap: Facilitating Interdisciplinary Services for Children with Disabilities (eds B.T. Ogletree, M.A. Fischer & J.B. Schulz), pp. 258–264. Charles C Thomas, Springfield, IL, USA.
- Jerant T., Azari R. & Nesbit T. (2001) Reducing the cost of frequent hospital admissions for congestive heart failure. Medical Care 39, 1234–1245.
- Johnston B., Wheeler L., Deuser J. & Sousa K.H. (2000) Outcomes of the kaiser permanente tele-home health research project. Archives of Family Medicine 9, 40–45.
- Kahneman D. (1973) Attention and Effort. Prentice Hall, NJ, USA.
- Kapo J. & Casarett D. (2004) Working to improve palliative care trials. Journal of Palliative Medicine 7, 395–397.
- Keefe F.J., Ahles T.A., Porter L.S., Sutton L.M., Mcbride C.M., Pope M.S., Mckinstry E.T., Furstenberg C.P., Dalton J. & Baucom D.H. (2003) The self-efficacy of family caregivers for helping cancer patients manage pain at end-of-life. Pain 103, 157–162.
- Letizia M., Creech S., Norton E., Shanahan M. & Hedges L. (2004) Barriers to caregiver administration of pain medication in hospice care. Journal of Pain and Symptom Management 27, 114–124.
- Macdonald E., Hermann H., Hinds P., Crowe J. & Mcdonald P. (2002) Beyond interdisciplinary boundaries: views of consumers, carers and non-government organizations on teamwork. Australasian Psychiatry 10, 125–129.
- McMillan S.C. & Moody L.E. (2003) Hospice patient and caregiver congruence in reporting patients' symptom intensity. Cancer Nursing 26, 113–118.
- Mehrabian A. (1971) Silent Messages. Wadsworth Press, Belmont, NJ, USA.
- National Hospice and Palliative Care Organization (2008) NHPCO Facts and Figures: Hospice Care in America.
- Parker Oliver D., Porock D., Demiris G. & Courtney K.L. (2005) Patient and family involvement in hospice interdisciplinary teams: a brief study. The Journal of Palliative Care 21, 270–276.
- Parker Oliver D., Demiris G., Day H., Courtney K.L. & Porock D. (2006) Tele-hospice support for elder caregivers of hospice patients: two case studies. Journal of Palliative Medicine 9, 264–267.
- Poon W.S., Leung C.H., Lam M.K., Wai S., Ng C.P. & Kwok S. (2001) The comparative impact of video-consultation on neurosurgical health services. International Journal of Medical Informatics 62, 175–180.
- Regnard C. (2000) Using videoconferencing in palliative care. Palliative Medicine 14, 519–528.
- Reid A. (1977) Compaing the telephone with face to face interaction. In: The Social Impact of the Telephone (ed. I. Pool), pp. 386–414. MIT Press, Cambridge, MA, USA.
- Riegel B., Carlson B., Kopp Z., Lepetri B., Glaser D. & Unger A. (2002) Effect of a standardized nurse case-management telephone intervention on resource use in patients with chronic heart failure. Archives of Internal Medicine 162, 705–712.
- Saltz C.C. & Schaefer T. (1996) Interdisciplinary teams in health care: integration of family caregivers. Social Work in Health Care 22, 59–69.
- Schacht L., Pandiani J. & Maynard A. (1996) An assessment of parent involvement in local interagency teams. Journal of Child and Family Studies 5, 349–354.
- Vuokila-Oikkonen P., Janhonen S. & Nikkonen M. (2002) Patient initiatives in psychiatric care concerning shame in the discussion in co-operative team meetings. Journal of Psychiatric and Mental Health Nursing 9, 23–32.
- Whitten P.S., Doolittle G. & Mackert M. (2004) Telehospice in Michigan: use and patient acceptance. American Journal of Hospice and Palliative Care 21, 191–195.
