Volume 25, Issue 3 pp. 356-364
Original Article

Older people living alone at home with terminal cancer

S. Aoun BSc (Hons), MPH, PhD

Corresponding Author

S. Aoun BSc (Hons), MPH, PhD

Professor of Palliative Care

School of Nursing and Midwifery, Curtin University, Perth, Western Australia, Australia

Correspondence address: Samar Aoun, School of Nursing and Midwifery, Curtin University, GPO Box U1987, Perth, WA 6845, Australia (e-mail: [email protected]).Search for more papers by this author
K. Deas PGrad, Nurs, RN

K. Deas PGrad, Nurs, RN

Research Officer

School of Nursing and Midwifery, Curtin University, Perth, Western Australia, Australia

Search for more papers by this author
K. Skett BNSG, Post Grad Dip NSG, MNSG

K. Skett BNSG, Post Grad Dip NSG, MNSG

Quality Coordinator

Silver Chain Group, Perth, Western Australia, Australia

Search for more papers by this author
First published: 07 April 2015
Citations: 18

Abstract

This study describes the lived experiences of older people coping with terminal cancer and living alone, focusing on how they face challenges of the biographical life changes from their disease progression. Face-to-face semi-structured interviews were conducted in two phases with palliative care clients of a community-based service in Western Australia (2009–2011): Brief interviews with 43 cancer patients who live alone and then in-depth interviews with 8 of them. Using biographical disruption as the analytical framework for interpreting the qualitative data, four main themes emerged: Biographical disruption: adjusting to change; Biographical continuity: preserving normality; Biographical reconstruction: redefining normality; and Biographical closure: facing the end. Biographical disruption was a suitable framework for analysis, permitting identification of the biographical disruptions of the individual's world and the reframing that is undertaken by the individual to maintain autonomy and independence while acknowledging and accepting their closeness to death. Understanding the factors associated with the individual's need to maintain their own identity will enable nurses working with this population to tailor support plans that meet the individuals’ needs while maintaining or restoring the person's sense of self. Interventions that directly address end-of-life suffering and bolster sense of dignity and personhood need to be considered.

The full text of this article hosted at iucr.org is unavailable due to technical difficulties.