Building a comprehensive team for the longitudinal care of single ventricle heart defects: Building blocks and initial results
Corresponding Author
Karen Texter MD
Division of Cardiology, Nationwide Children's Hospital, Columbus, Ohio, USA
Department of Pediatrics, The Ohio State University, Columbus, Ohio, USA
Correspondence Karen Texter, MD, The Heart Center, Nationwide Children's Hospital, 700 Children's Drive, Columbus, OH, USA. Email: [email protected]Search for more papers by this authorJo Ann M. Davis RN, MS, CPNP-AC
Division of Cardiology, Nationwide Children's Hospital, Columbus, Ohio, USA
Search for more papers by this authorChristina Phelps MD
Division of Cardiology, Nationwide Children's Hospital, Columbus, Ohio, USA
Department of Pediatrics, The Ohio State University, Columbus, Ohio, USA
Search for more papers by this authorSharon Cheatham PhD, ACNP
Division of Cardiology, Nationwide Children's Hospital, Columbus, Ohio, USA
Department of Pediatrics, The Ohio State University, Columbus, Ohio, USA
Search for more papers by this authorJohn Cheatham MD
Division of Cardiology, Nationwide Children's Hospital, Columbus, Ohio, USA
Department of Pediatrics, The Ohio State University, Columbus, Ohio, USA
Search for more papers by this authorMark Galantowicz MD
Division of Cardiology, Nationwide Children's Hospital, Columbus, Ohio, USA
Division of Cardiothoracic Surgery, Nationwide Children's Hospital, Columbus, Ohio, USA
Search for more papers by this authorTimothy F. Feltes MD
Division of Cardiology, Nationwide Children's Hospital, Columbus, Ohio, USA
Department of Pediatrics, The Ohio State University, Columbus, Ohio, USA
Search for more papers by this authorCorresponding Author
Karen Texter MD
Division of Cardiology, Nationwide Children's Hospital, Columbus, Ohio, USA
Department of Pediatrics, The Ohio State University, Columbus, Ohio, USA
Correspondence Karen Texter, MD, The Heart Center, Nationwide Children's Hospital, 700 Children's Drive, Columbus, OH, USA. Email: [email protected]Search for more papers by this authorJo Ann M. Davis RN, MS, CPNP-AC
Division of Cardiology, Nationwide Children's Hospital, Columbus, Ohio, USA
Search for more papers by this authorChristina Phelps MD
Division of Cardiology, Nationwide Children's Hospital, Columbus, Ohio, USA
Department of Pediatrics, The Ohio State University, Columbus, Ohio, USA
Search for more papers by this authorSharon Cheatham PhD, ACNP
Division of Cardiology, Nationwide Children's Hospital, Columbus, Ohio, USA
Department of Pediatrics, The Ohio State University, Columbus, Ohio, USA
Search for more papers by this authorJohn Cheatham MD
Division of Cardiology, Nationwide Children's Hospital, Columbus, Ohio, USA
Department of Pediatrics, The Ohio State University, Columbus, Ohio, USA
Search for more papers by this authorMark Galantowicz MD
Division of Cardiology, Nationwide Children's Hospital, Columbus, Ohio, USA
Division of Cardiothoracic Surgery, Nationwide Children's Hospital, Columbus, Ohio, USA
Search for more papers by this authorTimothy F. Feltes MD
Division of Cardiology, Nationwide Children's Hospital, Columbus, Ohio, USA
Department of Pediatrics, The Ohio State University, Columbus, Ohio, USA
Search for more papers by this authorAbstract
Introduction
With increasing survival of children with HLHS and other single ventricle lesions, the complexity of medical care for these patients is substantial. Establishing and adhering to best practice models may improve outcome, but requires careful coordination and monitoring.
Methods
In 2013 our Heart Center began a process to build a comprehensive Single Ventricle Team designed to target these difficult issues.
Results
Comprehensive Single Ventricle Team in 2014 was begun, to standardize care for children with single ventricle heart defects from diagnosis to adulthood within our institution. The team is a multidisciplinary group of providers committed to improving outcomes and quality of life for children with single ventricle heart defects, all functioning within the medical home of our heart center. Standards of care were developed and implemented in five target areas to standardize medical management and patient and family support. Under the team 100 patients have been cared for. Since 2014 a decrease in interstage mortality for HLHS were seen. Using a team approach and the tools of Quality Improvement they have been successful in reaching high protocol compliance for each of these areas.
Conclusions
This article describes the process of building a successful Single Ventricle team, our initial results, and lessons learned. Additional study is ongoing to demonstrate the effects of these interventions on patient outcomes.
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