Chapter 78
Family and Caregiver Support
Karine E. Manera,
Talia Gutman,
Fred Finkelstein,
Allison Tong,
Karine E. Manera
Sydney School of Public Health, University of Sydney, Sydney, Australia
Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia
Search for more papers by this authorTalia Gutman
Sydney School of Public Health, University of Sydney, Sydney, Australia
Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia
Search for more papers by this authorFred Finkelstein
Department of Medicine, Yale University, New Haven, CT, USA
Search for more papers by this authorAllison Tong
Sydney School of Public Health, University of Sydney, Sydney, Australia
Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia
Search for more papers by this authorKarine E. Manera,
Talia Gutman,
Fred Finkelstein,
Allison Tong,
Karine E. Manera
Sydney School of Public Health, University of Sydney, Sydney, Australia
Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia
Search for more papers by this authorTalia Gutman
Sydney School of Public Health, University of Sydney, Sydney, Australia
Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia
Search for more papers by this authorFred Finkelstein
Department of Medicine, Yale University, New Haven, CT, USA
Search for more papers by this authorAllison Tong
Sydney School of Public Health, University of Sydney, Sydney, Australia
Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia
Search for more papers by this authorBook Editor(s):Jonathan C. Craig MBChB, DipCH, MMed(Clin Epi), PhD, FAHMS,
Donald A. Molony MD,
Giovanni F.M. Strippoli MD, PhD, MPH, MM (Epi),
Jonathan C. Craig MBChB, DipCH, MMed(Clin Epi), PhD, FAHMS
Matthew Flinders Distinguished Professor Vice President and Executive Dean
College of Medicine and Public Health, Flinders University, Adelaide, Australia
Search for more papers by this authorDonald A. Molony MD
Professor of Medicine Distinguished Teaching Professor of the University of Texas System
Division of Renal Diseases and Hypertension AND Center for Clinical Research and Evidence-based Medicine, McGovern Medical School University of Texas, Houston, TX, USA
Search for more papers by this authorGiovanni F.M. Strippoli MD, PhD, MPH, MM (Epi)
Professor of Nephrology Adjunct Professor of Epidemiology
Department of Emergency and Organ Transplantation – University of Bari, Bari, Italy
School of Public Health, University of Sydney, Sydney, NSW, Australia
Search for more papers by this authorFirst published: 18 November 2022
Summary
The aging population and increasing prevalence of chronic kidney disease (CKD) globally has resulted in an increased burden being placed on informal caregivers, namely family members or friends, to provide support and care. Family caregivers provide care to their patients even while hospitalized due to the shortage of nursing staff. The nature, severity, and intensity of the burden experienced by caregivers of patients with CKD may vary depending on the type of kidney replacement therapy. Caregivers of children with CKD experience considerable psychological, social, and financial stress. Interventions to support caregivers have the potential to improve outcomes for both the caregiver and the patient. Further research that elicits and evaluates caregiver needs and preferences is needed to validate the areas that have already been identified, such as depression, stress, fatigue, isolation, and ability to cope, and to identify outcomes of importance to caregivers.
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