Is Dorothy Correct? The Role of Patient Education in Promoting Home Dialysis
Corresponding Author
Thomas A. Golper
Division of Nephrology and Hypertension, Department of Medicine, Vanderbilt University Medical Center, Nashville, Tennessee
Address correspondence to: Thomas A. Golper, MD, S-3303 Medical Center North, Vanderbilt University Medical Center, 21st Avenue South, Nashville, TN 37232, Tel.: +615-343-2220, Fax: +615-322-8653, or e-mail: [email protected].Search for more papers by this authorRajnish Mehrotra
Division of Nephrology, Department of Medicine, Harborview Medical Center and the University of Washington, Seattle, Washington
Search for more papers by this authorMartin S. Schreiber
Nephrology and Hypertension, Cleveland Clinic, Cleveland, Ohio
Search for more papers by this authorCorresponding Author
Thomas A. Golper
Division of Nephrology and Hypertension, Department of Medicine, Vanderbilt University Medical Center, Nashville, Tennessee
Address correspondence to: Thomas A. Golper, MD, S-3303 Medical Center North, Vanderbilt University Medical Center, 21st Avenue South, Nashville, TN 37232, Tel.: +615-343-2220, Fax: +615-322-8653, or e-mail: [email protected].Search for more papers by this authorRajnish Mehrotra
Division of Nephrology, Department of Medicine, Harborview Medical Center and the University of Washington, Seattle, Washington
Search for more papers by this authorMartin S. Schreiber
Nephrology and Hypertension, Cleveland Clinic, Cleveland, Ohio
Search for more papers by this authorAbstract
The major payer of dialysis services in the United States, Medicare, has established incentives to encourage the use of home dialysis. However, this modality remains underutilized. We think that a major cause of this situation is ineffective education of the prospective dialysis population regarding the choices of kidney replacement modalities. We discuss the value of patient education and the consequences of failing to educate prospective dialysis patients. We then explore approaches to achieve patient education goals and the physician's and education team's roles in the development of an individual patient's life plan.
References
- 1Golper TA, Saxena AB, Piraino B, Teitelbaum I, Burkart J, Finkelstein FO, Abu-Alfa A: Systematic barriers to the effective delivery of home dialysis in the United States: a report from the Public Policy/Advocacy Committee of the North American Chapter of the International Society for Peritoneal Dialysis. Am J Kidney Dis 58(6): 879–885, 2011
- 2Young B, Chan C, Blagg C, Lockridge R, Golper T, Finkelstein F, Shaffer R, Mehrotra R: How to overcome barriers and establish a successful home HD program. Clin J Am Soc Nephrol, 12: 2023–2032, 2012
- 3Ratcliffe PJ, Phillips RE, Oliver D: Late referral for maintenance dialysis. BR Med J (Clin Res Ed) 288(6415): 441–443, 1984
- 4Rasgon S, Schwankivsky L, James-Rogers A, Widrow L, Glick J, Butts E: An intervention for employment maintenance among blue-collar workers with end-stage renal disease. Am J Kidney Dis 22(3): 403–412, 1993
- 5Yeoh H, Tiquia H, Abcar A, Rasgon SA, Idroos ML, Daneshvari SE: Impact of predialysis care on clinical outcomes. Hemodial Int 7: 338–341, 2003
- 6Levin A, Lewis M, Mortiboy P, Faber S, Hare I, Porter EC, Mendelsohn DC: Multidisciplinary predialysis programs: quantification and limitations of their impact on patient outcomes in two Canadian settings. Am J Kidney Dis 28(4): 533–540, 1997
- 7Goldstein M, Yassa T, Dacouris N, McFarlane P: Multidisciplinary predialysis care and morbidity and mortality of patients on dialysis. Am J Kidney Dis 44(4): 706–714, 2004
- 8Jungers P, Massy Z, Nguyen-Khoa T, Choukroun G, Robino C, Fakhouri F, Touam M, Nguyen A-T, Grunfeld J-P: Longer duration of predialysis nephrological care is associated with improved long-term survival of dialysis patients. Nephrol Dial Transplant 16: 2357–2364, 2001
- 9Devins G, Mendelssohn D, Barre P, Taub K, Binik YM: Predialysis psychoeducational intervention extends survival in CKD: a 20-year follow-up. Am J Kidney Dis 46(6): 1088–1098, 2005
- 10Wu IW, Wang SY, Hsu KH, Lee CC, Chiao YS, Tsai C-J, Wu M-S: Multidisciplinary predialysis education decreases the incidence of dialysis and reduces mortality- a controlled cohort study based on the NKF/DOQI guidelines. Nephrol Dial Transplant 24: 3426–3433, 2009
- 11Golper TA: Patient education: can it maximize the success of therapy? Nephrol Dial Transplant 16(7): 20–24, 2001
- 12Fine A, Fontaine B, Kraushar MM, Rich BR: Nephrologists should voluntarily divulge survival data to potential dialysis Patients: a questionnaire study. Perit Dial Int 25: 269–273, 2005
- 13Lacson E, Weiling W, DeVries C, Lester K, Hakim RM, Lazarus M, Pulliam J: Effects of a nationwide predialysis educational program on modality choice, vascular access, and patient outcomes. Am J Kidney Dis 58(2): 235–242, 2011
- 14Manns B, Taub K, Vanderstraeten C, Jones H, Mills C, Visser M, McLaughlin K: The impact of education on chronic kidney disease patients' plans to initiate dialysis with self-care dialysis: a randomized trial. Kidney Int 68: 1777–1783, 2005
- 15Mehrotra R, Blake P, Berman N, Nolph KD: An analysis of dialysis training in the United States and Canada. Am J Kidney Dis 40(1): 152–160, 2002
- 16McLaughlin K, Manns B, Mortis G, Hons R, Taub K: Why patients with ESRD do not select self-care dialysis as a treatment option. Am J Kidney Dis 41: 380–385, 2003
- 17Mehrotra R, Marsh D, Vonesh E, Peters V, Nissenson A: Patient education and access of ESRD patients to renal replacement therapies beyond in-center hemodialysis. Kidney Int 68: 378–390, 2005
- 18Young HN, Chan M, Yevzlin A, Becker BN: The rationale, implementation, and effect of the medicare CKD education benefit. Am J Kidney Dis 57(3): 381–386, 2011
- 19Finkelstein F, Story K, Firanek C, Barre P, Takano T, Soroka S, Mujais S, Rodd K, Mendelsohn D: Perceived knowledge among patients cared for by nephrologists about chronic kidney disease and end-stage renal disease therapies. Kidney Int 74(9): 1178–1184, 2008
- 20Kutner NG, Zhang R, Huang Y, Wasse H: Patient awareness and initiation of peritoneal dialysis. Arch Intern Med 17: 119–124, 2011
- 21Morton RL, Tong A, Howard K, Snelling P, Webster AC: The views of patients and carers in treatment decision making for chronic kidney disease: systematic review and thematic synthesis of qualitative studies. BMJ 340: c112, 2010 doi: 10.1136/bmj.c112
- 22Visser A, Dijkstra GJ, Kuiper D, de Jong PE, Franssen CFM, Gansevoort RT, Izaks GJ, Jager KJ, Reijneveld SA: Accepting or declining dialysis: considerations taken into account by elderly patients with end-stage renal disease. J Nephrol 22(6): 794–799, 2009
- 23Golper TA, Schreiber MJ Jr: The course of therapy: changing the paradigm. In: S Fadem (ed). Issues in Dialysis. New York: Nova Science Publishers Inc., 2012: 35–49
- 24Perl J, Lok CE, Chan CT: Central venous catheter outcomes in nocturnal hemodialysis. Kidney Int 70(7): 1348–1354, 2006
- 25Saggi SJ, Allon M, Bernardini J, Kalantar-Zadeh K, Shaffer R, Mehrotra R: Considerations in the optimal preparation of patients for dialysis. Nat Rev Nephrol, 8: 381–389, 2012
- 26Sintchenko V, Usherwood T, Coiera E: Are clinician' information needs and decision support affected by different models of care? experimental study. Stud Health Technol Inform 129(pt 2): 895–899, 2007
- 27Sintchenko V, Coiera E: Decision complexity affects the extent and type of decision support use. AMIA 2006 Symposium Proceedings 724–728, 2006