Volume 29, Issue 1 pp. 21-33
Original Article

How Do Women with an Intellectual Disability Experience the Support of a Doula During Their Pregnancy, Childbirth and After the Birth of Their Child?

Alison McGarry

Corresponding Author

Alison McGarry

The University of Birmingham, Edgbaston, Birmingham, UK

Correspondence

Any correspondence should be directed to Alison McGarry, Community Learning Disability Team, Whitnash Lodge, RLSRH, Heathcote Lane, Warwick. CV34 6SR Email: [email protected]).

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Biza Stenfert Kroese

Biza Stenfert Kroese

The University of Birmingham, Edgbaston, Birmingham, UK

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Rachel Cox

Rachel Cox

Developmental Neurosciences and Learning Disabilities, Mytton Oak Unit, Royal Shrewsbury Hospital (North), Shrewsbury, UK

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First published: 07 May 2015
Citations: 16

Abstract

Background

With increasing numbers of people with an intellectual disability choosing to become parents, the right support is imperative for effective parenting (Macintyre & Stewart 2011). The aim of this study was to gain insight into the experiences of parents who received support from Doulas during pregnancy, birth and following the birth of their child. In addition, the experiences of the Doulas who provided the support were investigated.

Materials and Methods

Four women with an intellectual disability who received Doula support were interviewed before and after the birth of their child. Three Doulas were interviewed after the birth about their experiences of supporting women with an intellectual disability.

Results

Interview transcripts were analysed using Interpretive Phenomenological Analysis (IPA). Themes were identified from each interview, before an overall analysis of themes from each support phase was undertaken.

Conclusions

Pre-natally, the Doula was considered helpful and a reliable source of information about pregnancy. Each mother perceived Doula support as a means of keeping her child in her care. Post-natally, mothers described a trusting relationship with their Doula, who enabled them to make informed choices. Doulas described how they adapted their work to meet the needs of parents with intellectual disability. Being involved in Child Protection procedures was perceived as stressful and challenging.

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