Evaluation of a West Australian residential mental health respite service
Corresponding Author
Sue Gillieatt BSc, DipEd, BSW, MA, DCA
School of Occupational Therapy and Social Work, Curtin University, Perth, WA, Australia
Correspondence
Dr Sue Gillieatt, School of Occupational Therapy and Social Work, Curtin University, Perth, WA, Australia.
Email: [email protected]
Search for more papers by this authorRobyn Martin BSW, M.Soc.Sci, PhD
School of Occupational Therapy and Social Work, Curtin University, Perth, WA, Australia
Search for more papers by this authorKate P. Dorozenko BSc Psychology (Hons), PhD
School of Occupational Therapy and Social Work, Curtin University, Perth, WA, Australia
Search for more papers by this authorAdrian Munro BSc Physiotherapy, Grad Dip Health Admin
Richmond Wellbeing, Perth, WA, Australia
Search for more papers by this authorCorresponding Author
Sue Gillieatt BSc, DipEd, BSW, MA, DCA
School of Occupational Therapy and Social Work, Curtin University, Perth, WA, Australia
Correspondence
Dr Sue Gillieatt, School of Occupational Therapy and Social Work, Curtin University, Perth, WA, Australia.
Email: [email protected]
Search for more papers by this authorRobyn Martin BSW, M.Soc.Sci, PhD
School of Occupational Therapy and Social Work, Curtin University, Perth, WA, Australia
Search for more papers by this authorKate P. Dorozenko BSc Psychology (Hons), PhD
School of Occupational Therapy and Social Work, Curtin University, Perth, WA, Australia
Search for more papers by this authorAdrian Munro BSc Physiotherapy, Grad Dip Health Admin
Richmond Wellbeing, Perth, WA, Australia
Search for more papers by this authorFunding information
This research and evaluation was funded by Richmond Wellbeing.
Abstract
Family members continue to be the predominant providers of support, care and accommodation for loved ones with mental health issues, and empirical studies suggest that accessing mental health respite can be helpful for both carers and consumers. However, the availability of, and access to, this respite in Australia is far from optimal. Major issues have also been identified such as low utilisation, the inappropriate and inflexible nature of services and the inability of services to respond to situations where multiple needs exist. This article presents findings from a small evaluation of a pilot residential respite service. Semi-structured interviews were conducted with eight family members/carers and four consumers using the service, and five service providers. In addition, anonymised sociodemographic information about all users of the service in the first 9 months of its operation were analysed. Reflecting the current limitations around respite options, the majority of family members/carers and consumers were appreciative of, and satisfied with, the service. The research highlighted issues such as availability and suitability of respite, particularly when consumers had multiple and unmet needs. Mental health residential respite is often a stopgap in crisis situations and intersects with the difficulty of planning respite and shortages in affordable supported accommodation. Furthermore, the ramifications of individualised funding for people with “psychosocial disability” in the new Australian National Disability Insurance Scheme (NDIS) remain unclear. While family members and carers may benefit indirectly from NDIS funding, it is especially important at this time that the need for more suitable, recovery-oriented respite services is highlighted.
REFERENCES
- Australian Government Department of Social Services. (2013). Part C2: Mental health respite: Carer support activity under the targeted community care (mental health) program April 2013. Retrieved from https://www.dss.gov.au/our-responsibilities/mental-health/publications-articles/mental-health-respite-carer-support-guidelines-part-c2
- Australian Government Department of Social Services. (2015). National disability insurance scheme transition: Guidelines overview. Retrieved from https://www.dss.gov.au/grants/grant-programmes/national-disability-insurance-scheme-transition-programme
- Baldry, E. (2014). Complex needs and the justice system. In C. Chamberlain, G. Johnson, & C. Robinson (Eds.), Homelessness in Australia: An introduction (pp. 196–212). Sydney, NSW: NewSouth Publishing.
- Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 77–101. https://doi.org/10.1191/1478088706qp063o
10.1191/1478088706qp063oa Google Scholar
- Broady, T. R., & Stone, K. (2015). “How can I take a break?” Coping strategies and support needs of mental health carers. Social Work in Mental Health, 13, 318–355. https://doi.org/10.1080/15332985.2014.955941
- Browne, G., & Hemsley, M. (2010). Housing and living with a mental illness: Exploring carers' views. International Journal of Mental Health Nursing, 19, 22–29. https://doi.org/10.1111/j.1447-0349.2009.00635.x
- Bryant, W., Craik, C., & McKay, E. (2005). Perspectives of day and accommodation services for people with enduring mental illness. Journal of Mental Health, 14, 109–120. https://doi.org/10.1080/09638230500073600
10.1080/09638230500073600 Google Scholar
- Commonwealth of Australia. (2013a). A national framework for recovery-oriented mental health services: Guide for practitioners and providers. Retrieved from http://www.health.gov.au/internet/main/publishing.nsf/Content/mental-pubs-n-recovgde
- Commonwealth of Australia. (2013b). National Disability Insurance Scheme (Supports for Participants) Rules 2013. Retrieved from https://www.comlaw.gov.au/Details/F2013L01063
- Commonwealth of Australia. (2013c). National mental health report 2012: Tracking progress of mental health reform in Australia, 1993-2011. Retrieved from http://www.health.gov.au/internet/main/publishing.nsf/Content/B090F03865A7FAB9CA257C1B0079E198/$File/rep13.pdf
- Council of Australian Governments. (2012). The roadmap for national mental health reform 2012-2022. Retrieved from http://www.coag.gov.au/node/482
- Foster, M., Henman, P., Fleming, J., Tilse, C., & Harrington, R. (2012). The politics of entitlement and personalisation: Perspectives on a proposed national disability long-term care and support scheme in Australia. Social Policy and Society, 11, 331–343. https://doi.org/10.1017/S147474641200005X
10.1017/S147474641200005X Google Scholar
- Henty, J. (2013). Supporting a central role for carers and families. In D. Singerman (Ed.), Perspectives: Mental health and wellbeing in Australia (pp. 76–77). Retrieved from https://mhaustralia.org/publication/perspectives-mental-health-and-wellbeing-australia-2013
- Highet, N. J., McNair, B. G., Davenport, T. A., & Hickie, I. B. (2004). “How much more can we lose?” Carer and family perspectives on living with a person with depression [Supplement]. The Medical Journal of Australia, 181(7), S6–S9. Retrieved from https://www-mja-com-au.dbgw.lis.curtin.edu.au/system/files/issues/181_07_041004/hig10363_fm.pdf
- Hungerford, C., & Richardson, F. (2013). Operationalising recovery-oriented services: The challenges for carers. Advances in Mental Health, 12, 11–21. https://doi.org/10.5172/jamh.2013.12.1.11
10.5172/jamh.2013.12.1.11 Google Scholar
- Jardim, C., & Pakenham, K. (2009). Carers of adults with mental illness: Comparison of respite care users and non-users. Australian Psychologist, 45, 50–58. https://doi.org/10.1080/00050060903286717
- Jardim, C., & Pakenham, K. I. (2010). Carers' views on respite care for adults with mental disorders. Advances in Mental Health, 9, 84–97. https://doi.org/10.5172/jamh.9.1.84
10.5172/jamh.9.1.84 Google Scholar
- Jeon, Y., Brodaty, H., & Chesterson, J. (2005). Respite care for caregivers and people with severe mental illness: Literature review. Journal of Advanced Nursing, 49, 297–306. https://doi.org/10.1111/j.1365-2648.2004.03287.x
- Jeon, Y., Brodaty, H., O'Neill, C., & Chesterson, J. (2006). ‘Give me a break’: Respite care for older carers of mentally ill persons. Scandinavian Journal of Caring Sciences, 20, 417–426. https://doi.org/10.1111/j.1471-6712.2006.00423.x
- Jeon, Y., Chenoweth, L., & McIntosh, H. (2007). Factors influencing the use and provision of respite care services for older families of people with a severe mental illness. International Journal of Mental Health Nursing, 16, 96–107. https://doi.org/10.1111/j.1447-0349.2007.00452.x
- Karnieli-Miller, O., Perlick, D. A., Nelson, A., Mattias, K., Corrigan, P., & Roe, D. (2013). Family members' of persons living with a serious mental illness: Experiences and efforts to cope with stigma. Journal of Mental Health, 22, 254–262. https://doi.org/10.3109/09638237.2013.779368
- Koopmanschap, M. A., van Exel, N. J. A., van den Bos, G. A. M., van den Berg, B., & Brouwer, W. B. F. (2004). The desire for support and respite care: Preferences of Dutch informal caregivers. Health Policy, 68, 309–320. https://doi.org/10.1016/j.healthpol.2003.10.002
- Lakeman, R. (2008). Practice standards to improve the quality of family and carer participation in adult mental health care: An overview and evaluation. International Journal of Mental Health Nursing, 17, 44–56. https://doi.org/10.1111/j.1447-0349.2007.00510.x
- Laragy, C., Sanders, F., & Brophy, L. (2015). Implications for family carers when people wih disability have individualised funding packages – Literature review. Retrieved from https://www.mindaustralia.org.au/assets/docs/News%20&%20Media/Mind_Literature_Review.pdf
- Lincoln, Y. S., & Guba, E. G. (1985). Naturalistic inquiry. Newbury Park, CA: Sage Publications.
10.1016/0147-1767(85)90062-8 Google Scholar
- Lyons, C., Hopley, P., Burton, C. R., & Horrocks, J. (2009). Mental health crisis and respite services: Service user and carer aspirations. Journal of Psychiatric and Mental Health Nursing, 16, 424–433. https://doi.org/10.1111/j.1365-2850.2009.01393.x
- Martin, R. M., Ridley, S. C., & Gillieatt, S. J. (2017). Family inclusion in mental health services: Reality or rhetoric? International Journal of Social Psychiatry, 63(6), 480–487. https://doi.org/10.1177/0020764017716695
- McGorry, P. (2013). The roots and branches reform. In D. Singerman (Ed.), Perspectives: Mental health and wellbeing in Australia (pp. 16–17). Retrieved from https://mhaustralia.org/publication/perspectives-mental-health-and-wellbeing-australia-2013
- Mental Health Council of Australia. (2009). Home truths: Mental health, housing and homelessness in Australia. Retrieved from https://mhaustralia.org/publication/perspectives-mental-health-and-wellbeing-australia-2013https://mhaustralia.org/publication/home-truths-mental-health-housing-and-homelessness-australia-2009
- Mental Health Council of Australia. (2012). Recognition and respect: Mental health carers report 2012. Retrieved from http://mhaustralia.org/publication/recognition-and-respect-mental-health-carers-report-2012
- Miles, M., Huberman, M., & Saldana, J. (2014). Qualitative data analysis: A methods source book ( 3rd ed.). Thousand Oaks, CA: Sage.
- National Mental Health Commission. (2014). The national review of mental health programmes and services. Sydney, NSW: National Mental Health Commission.
- Oxford English Dictionary. (2015). Respite, n. Retrieved from http://www.oed.com/view/Entry/163826?redirectedFrom=respite+care
- Productivity Commission. (2011). Disability care and support: Productivity commission inquiry report volume 1, no. 54. Canberra: Commonwealth of Australia. Retrieved from http://www.pc.gov.au/inquiries/completed/disability-support/report/disability-support-volume1.pdf
- Salvador-Carulla, L., & Einfeld, S. (2014). Mental illness and the national disability insurance scheme: Lessons from Europe. Australian and New Zealand Journal of Psychiatry, 48, 482–484. https://doi.org/10.1177/0004867414531833
- Senior, P. (2013). Looking beyond hospital beds for more flexible interventions. In D. Singerman (Ed.), Perspectives: Mental health and wellbeing in Australia (pp. 24–25). Retrieved from https://mhaustralia.org/publication/perspectives-mental-health-and-wellbeing-australia-2013
- Shah, A. J., Wadoo, O., & Latoo, J. (2010). Psychological distress in carers of people with mental disorders. British Journal of Medical Practitioners, 3, 327–334.
- Slade, M. (2009). Personal recovery and mental illness: A guide for mental health professionals. Cambridge, UK: Cambridge University Press.
10.1017/CBO9780511581649 Google Scholar
- Smith, T. (2015). Further unravelling psychosocial disability – Experiences of the National Disability Insurance Scheme in the NSW Trial Site: A Mental Health Analysis. Sydney: Mental Health Coordinating Council.
- Stanbridge, R., & Burbach, F. (2007). Developing family-inclusive mainstream mental health services. Journal of Family Therapy, 29, 21–43. https://doi.org/10.1111/j.1467-6427.2007.00367.x
- Stokes, B. (2012). Review of the admission or referral to and the discharge and transfer practices of public mental health facilities/services in Western Australia. Retrieved from http://www.mentalhealth.wa.gov.au/mentalhealth_changes/Stokes_Review.aspx
- Thornicroft, G., & Tansella, M. (2004). Components of a modern mental health service: A pragmatic balance of community and hospital care. British Journal of Psychiatry, 185, 283–290. https://doi.org/10.1192/bjp.185.4.283
- Uniting Care Community Options. (2006). Literature review: Mental health respite. Melbourne, VIC: Uniting Care.
- Williams, T. M., & Smith, G. P. (2014). Can the national disability insurance scheme work for mental health? Australian and New Zealand Journal of Psychiatry, 48, 391–394. https://doi.org/10.1177/0004867414530007
- World Health Organization. (2013). Mental health action plan 2013–2020. Geneva, Switzerland: World Health Organization.
- Yates, J., Milligan, V., Berry, M., Burke, T., Gabriel, M., Phibbs, P. … Randolph, B. (2007). Housing affordability: A 21st century problem. Sydney, NSW: Australian Housing and Urban Research Institute.