Monitoring the joint health of patients with haemophilia in a middle-income country: Considerations on the use of the Haemophilia Joint Health Score
Corresponding Author
Vanessa Giroto Guedes
Blood Center of Marília Medical School - FAMEMA, Marília, São Paulo, Brazil
Radiology Department, Hospital Clementino Fraga Filho, Federal University of Rio de Janeiro – UFRJ, Rio de Janeiro, Brazil
Correspondence
Vanessa Giroto Guedes, Physiotherapy Service of Blood Center of Marília Medical School – FAMEMA, Rua Lourival Freire, nº 240, Bairro Fragata, Marília/SP CEP: 17519-050, Brazil.
Email: [email protected]
Search for more papers by this authorPatrick Alexander Wachholz
Botucatu Medical School, São Paulo State University – UNESP, Botucatu, São Paulo, Brazil
Search for more papers by this authorSylvia Thomas
Radiology Department, Hospital Clementino Fraga Filho, Federal University of Rio de Janeiro – UFRJ, Rio de Janeiro, Brazil
Search for more papers by this authorSergio Augusto Lopes Souza
Radiology Department, Hospital Clementino Fraga Filho, Federal University of Rio de Janeiro – UFRJ, Rio de Janeiro, Brazil
Search for more papers by this authorCorresponding Author
Vanessa Giroto Guedes
Blood Center of Marília Medical School - FAMEMA, Marília, São Paulo, Brazil
Radiology Department, Hospital Clementino Fraga Filho, Federal University of Rio de Janeiro – UFRJ, Rio de Janeiro, Brazil
Correspondence
Vanessa Giroto Guedes, Physiotherapy Service of Blood Center of Marília Medical School – FAMEMA, Rua Lourival Freire, nº 240, Bairro Fragata, Marília/SP CEP: 17519-050, Brazil.
Email: [email protected]
Search for more papers by this authorPatrick Alexander Wachholz
Botucatu Medical School, São Paulo State University – UNESP, Botucatu, São Paulo, Brazil
Search for more papers by this authorSylvia Thomas
Radiology Department, Hospital Clementino Fraga Filho, Federal University of Rio de Janeiro – UFRJ, Rio de Janeiro, Brazil
Search for more papers by this authorSergio Augusto Lopes Souza
Radiology Department, Hospital Clementino Fraga Filho, Federal University of Rio de Janeiro – UFRJ, Rio de Janeiro, Brazil
Search for more papers by this author
REFERENCES
- 1Ahlberg A. Haemophilia in Sweden. VII. Incidence, treatment and prophylaxis of arthropathy and other musculo-skeletal manifestations of haemophilia A and B. Acta Orthop Scand Suppl. 1965; 36: 3-132.
10.3109/ort.1965.36.suppl-77.01 Google Scholar
- 2Warren BB, Thornhill D, Stein J, et al. Young adult outcomes of childhood prophylaxis for severe hemophilia A: results of the Joint Outcome Continuation Study. Blood Adv. 2020; 4: 2451-2459.
- 3Guedes VG, Thomas S, Farrugia A, Wachholz PA, Souza SAL. Perspectives on haemophilia access in Brazil? Haemophilia. 2018; 24: 255-256.
- 4 Brasil, Ministério da Saúde. Protocolo de Uso de Profilaxia Primária para Hemofilia Grave. PORTARIA No 364, DE 6 DE MAIO DE 2014. Brasilia: Ministério da Saúde; 2014. http://www.saude.gov.br/images/pdf/2014/maio/08/PT364-6MAIO2014.pdf. Accessed July 28, 2020.
- 5 Ministério da Sáude (Brasil). Perfil das Coagulopatias Hereditárias no Brasil: 2015 ( 1st ed.). Brasília - DF: Ministério da Saúde; 2017. https://pesquisa.bvsalud.org/bvsms/resource/pt/mis-38939
- 6Feldman BM, Funk SM, Bergstrom B-M, et al. Validation of a new pediatric joint scoring system from the International Hemophilia Prophylaxis Study Group: validity of the hemophilia joint health score. Arthritis Care Res. 2011; 63: 223-230.
- 7Sun J, Hilliard PE, Feldman BM, et al. Chinese Hemophilia Joint Health Score 2.1 reliability study. Haemophilia. 2014; 20: 435-440.
- 8Saulyte Trakymiene S, Ingerslev J, Rageliene L. Utility of the Haemophilia Joint Health Score in study of episodically treated boys with severe haemophilia A and B in Lithuania. Haemophilia. 2010; 16: 479-486.
- 9Seuser A, Navarrete-Duran M, Auerswald G, Mancuso ME. Muscle function deterioration in patients with haemophilia: Prospective experience from Costa Rica. Haemophilia. 2018; 24: 230-241.
- 10Stephensen D, Classey S, Harbidge H, Patel V, Taylor S, Wells A. Physiotherapist inter-rater reliability of the Haemophilia Early Arthropathy Detection with Ultrasound protocol. Haemophilia. 2018; 24(3): 471-476.
