Chapter 165

Assessing and Scoring Life Quality

Andrew Y. Finlay

Andrew Y. Finlay

Division of Infection and Immunity, Cardiff University School of Medicine, Cardiff, UK

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First published: 20 November 2019

Summary

Measurement of the impact of skin disease on the quality of life of children is important to inform clinical decision taking, for research and audit purposes and to demonstrate the impact of skin disease compared to other conditions. Quality of life measures for children are designed to be disease specific, dermatology specialty specific or generic, usable across many specialties. There are measures for teenagers and for infants. Major life-changing decisions influenced by skin disease can be recorded. There are questionnaires to measure the secondary impact on the quality of life of other family members of having a child in the family with skin disease, a burden that is often unrecognized. These measures are also disease specific, dermatology specific or generic. Utility measures that allow calculation of economic impact of skin disease in children are being developed.

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