Confidentiality in Epidemiology

Hubert G. Leufkens,

Hubert G. Leufkens

Utrecht University, Utrecht, The Netherlands

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Hubert G. Leufkens,

Hubert G. Leufkens

Utrecht University, Utrecht, The Netherlands

Search for more papers by this author

First published: 15 July 2005

https://doi.org/10.1002/0470011815.b2a04008

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Abstract

This entry describes the need for confidentiality in conducting clinical and epidemiologic research, particularly with respect to informational privacy of individuals. Ethical principles (including beneficence, nonmalfeasance, autonomy, and justice) are reviewed, and mention is made of the legal framework and guidelines to prevent the violation of confidentiality.

References

1 Beauchamp, T. L. & Childres, J. F. (1989). Principles of Biomedical Ethics, 3rd Ed. Oxford University Press, New York.
Google Scholar
2 Gillon, R. (1994). Medical ethics: four principles plus attention to scope, British Medical Journal 309, 184–188.
10.1136/bmj.309.6948.184
CAS PubMed Web of Science® Google Scholar
3 Herings, R. M. C., Stricker, B. H. Ch., Boer, de A., Bakker, A. & Sturmans, F. (1995). Benzodiazepines and the risk of falling leading to femur fractures: dosage more important than elimination half-life, Archives of Internal Medicine 155, 1801–1807.
CAS PubMed Web of Science® Google Scholar
4 Knox, E. G. (1992). Confidential medical records and epidemiological research, British Medical Journal 304, 727–728.
10.1136/bmj.304.6829.727
CAS PubMed Web of Science® Google Scholar
5 Newcombe, H. B. (1995). When “privacy” threatens public health, Canadian Journal of Public Health, 86, 188–192.
CAS PubMed Web of Science® Google Scholar
6 Nilstun, T. & Westrin, C. G. (1994). Analyzing ethics, Health Care Analysis, 2, 43–46.
10.1007/BF02251336
CAS PubMed Google Scholar
7 Olsen, J., Breart, G., Feskens, E., Grabauskas, V., Noah, N., Olsen, J., Porta, M. & Saracci, R. The International Epidemiological Association-IEA European Epidemiological Group (1995). Directive of the European Parliament and of the council on the protection of individuals with regard to the processing of personal data and on the free movement of such data, International Journal of Epidemiology 24, 462–463.
CAS PubMed Web of Science® Google Scholar
8 Thompson, I. E. (1979). The nature of confidentiality, Journal of Medical Ethics, 5, 5.
10.1136/jme.5.2.57
Web of Science® Google Scholar
9 Vandenbroucke, J. P. (1992). Privacy, confidentiality and epidemiology: the Dutch ordeal, International Journal of Epidemiology 21, 825–826.
10.1093/ije/21.4.825
CAS PubMed Web of Science® Google Scholar
10 Weed, D. L. (1994). Science, ethics guidelines, and advocacy in epidemiology, Annals of Epidemiology 4, 166–171.
10.1016/1047-2797(94)90064-7
CAS PubMed Google Scholar
11 Westrin, C. G. & Nilstun, T. (1994). The ethics of data utilisation: a comparison between epidemiology and journalism, British Medical Journal 308, 522–523.
10.1136/bmj.308.6927.522
CAS PubMed Web of Science® Google Scholar

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